{"id":3941,"date":"2018-02-08T23:56:58","date_gmt":"2018-02-08T23:56:58","guid":{"rendered":"https:\/\/lpfch.org\/thank-you-from-a-lifelong-packard-childrens-patient\/"},"modified":"2024-02-14T14:07:47","modified_gmt":"2024-02-14T14:07:47","slug":"thank-you-from-a-lifelong-packard-childrens-patient","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/","title":{"rendered":"L\u1eddi c\u1ea3m \u01a1n t\u1eeb m\u1ed9t b\u1ec7nh nh\u00e2n l\u00e2u n\u0103m c\u1ee7a B\u1ec7nh vi\u1ec7n Nhi Packard"},"content":{"rendered":"

Xin ch\u00e0o, t\u00f4i t\u00ean l\u00e0 Zariah Stevenson. T\u00f4i l\u00e0 h\u1ecdc sinh n\u0103m 3 tr\u01b0\u1eddng Trung h\u1ecdc Menlo Atherton v\u00e0 l\u00e0 b\u1ec7nh nh\u00e2n t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford. <\/p>\n

B\u1ec7nh vi\u1ec7n l\u00e0 m\u1ed9t n\u01a1i r\u1ea5t \u0111\u1eb7c bi\u1ec7t. V\u00e0 t\u00f4i n\u00ean bi\u1ebft \u0111i\u1ec1u \u0111\u00f3. T\u00f4i \u0111\u00e3 l\u00e0 b\u1ec7nh nh\u00e2n \u1edf \u0111\u00f3 15 n\u0103m r\u1ed3i. T\u00f4i \u0111\u01b0\u1ee3c ch\u1ea9n \u0111o\u00e1n m\u1eafc b\u1ec7nh thalassemia beta h\u1ed3ng c\u1ea7u h\u00ecnh li\u1ec1m l\u00fac m\u1edbi sinh. C\u00e1c t\u1ebf b\u00e0o h\u1ed3ng c\u1ea7u c\u1ee7a t\u00f4i chuy\u1ec3n sang h\u00ecnh l\u01b0\u1ee1i li\u1ec1m v\u00ec kh\u00f4ng nh\u1eadn \u0111\u1ee7 oxy.<\/p>\n

N\u00f3 khi\u1ebfn t\u00f4i \u0111au l\u01b0ng, tay v\u00e0 ch\u00e2n, \u0111\u1eb7c bi\u1ec7t l\u00e0 khi t\u00f4i v\u1eadn \u0111\u1ed9ng nhi\u1ec1u. Cu\u1ed1i c\u00f9ng, t\u00f4i ph\u1ea3i nh\u1eadp vi\u1ec7n v\u00e0o \u0111\u00eam khuya.<\/p>\n

B\u1ec7nh h\u1ed3ng c\u1ea7u h\u00ecnh li\u1ec1m \u0111\u00e3 \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn cu\u1ed9c s\u1ed1ng c\u1ee7a t\u00f4i theo nhi\u1ec1u c\u00e1ch. V\u00ed d\u1ee5, khi t\u00f4i ph\u1ea3i nh\u1eadp vi\u1ec7n, \u0111i\u1ec3m s\u1ed1 c\u1ee7a t\u00f4i b\u1ecb \u1ea3nh h\u01b0\u1edfng, v\u00e0 khi tr\u1edf l\u1ea1i tr\u01b0\u1eddng, n\u0103ng l\u01b0\u1ee3ng c\u1ee7a t\u00f4i l\u1ea1i gi\u1ea3m s\u00fat. Tr\u01b0\u1edbc \u0111\u00e2y, t\u00f4i kh\u00f4ng c\u1ea3m th\u1ea5y h\u00f2a nh\u1eadp v\u1edbi tr\u01b0\u1eddng h\u1ecdc v\u00ec t\u00f4i c\u1ea3m th\u1ea5y m\u00ecnh kh\u00e1c bi\u1ec7t v\u1edbi t\u00ecnh tr\u1ea1ng c\u1ee7a m\u00ecnh.<\/p>\n

T\u00f4i c\u1ea3m th\u1ea5y B\u1ec7nh vi\u1ec7n Nhi Packard l\u00e0 m\u1ed9t b\u1ec7nh vi\u1ec7n r\u1ea5t t\u1ed1t v\u00ec h\u1ecd quan t\u00e2m \u0111\u1ebfn t\u00f4i kh\u00f4ng ch\u1ec9 v\u1ec1 s\u1ee9c kh\u1ecfe th\u1ec3 ch\u1ea5t m\u00e0 c\u00f2n c\u1ea3 nh\u1eefng s\u1edf th\u00edch c\u00e1 nh\u00e2n c\u1ee7a t\u00f4i. N\u0103m ngo\u00e1i, t\u00f4i ph\u1ea3i n\u1eb1m vi\u1ec7n hai tu\u1ea7n. C\u01a1n \u0111au d\u1eef d\u1ed9i h\u01a1n bao gi\u1edd h\u1ebft, \u0111\u1ed3ng ngh\u0129a v\u1edbi vi\u1ec7c t\u00f4i c\u1ea7n th\u00eam thu\u1ed1c v\u00e0 kh\u00f4ng th\u1ec3 h\u1ecdc b\u00e0i. T\u00f4i r\u1ea5t lo l\u1eafng v\u1ec1 tr\u01b0\u1eddng h\u1ecdc. Nh\u01b0ng c\u00e1c b\u00e1c s\u0129 v\u00e0 y t\u00e1 \u0111\u00e3 y\u00eau c\u1ea7u t\u00f4i gi\u1edbi thi\u1ec7u b\u1ea3n th\u00e2n b\u1eb1ng ti\u1ebfng H\u00e0n, ng\u00f4n ng\u1eef y\u00eau th\u00edch c\u1ee7a t\u00f4i. \u0110i\u1ec1u n\u00e0y cho th\u1ea5y h\u1ecd r\u1ea5t quan t\u00e2m \u0111\u1ebfn t\u00f4i.<\/p>\n

T\u00f4i r\u1ea5t vui khi \u0111\u01b0\u1ee3c \u0111i\u1ec1u tr\u1ecb t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard v\u00e0 t\u00f4i ngh\u0129 \u0111\u00e2y l\u00e0 m\u1ed9t b\u1ec7nh vi\u1ec7n t\u1ed1t v\u00ec h\u1ecd ch\u1eafc ch\u1eafn c\u00f3 th\u1ec3 k\u1ebft n\u1ed1i v\u1edbi b\u1ea1n. V\u00e0 h\u1ecd lu\u00f4n khi\u1ebfn t\u00f4i c\u1ea3m th\u1ea5y \u0111\u01b0\u1ee3c y\u00eau th\u01b0\u01a1ng v\u00e0 kh\u00f4ng b\u1ecb l\u00e3ng qu\u00ean. H\u1ecd \u0111\u00e3 gi\u1ea3i th\u00edch t\u00ecnh tr\u1ea1ng c\u1ee7a t\u00f4i cho t\u00f4i th\u00f4ng qua c\u00e1c cu\u1ed9c h\u1eb9n kh\u00e1m \u0111\u1ecbnh k\u1ef3. Khi t\u00f4i nh\u1eadp vi\u1ec7n, h\u1ecd \u0111\u00e3 gi\u00fap t\u00f4i \u0111\u1ed1i ph\u00f3 v\u1edbi t\u00ecnh tr\u1ea1ng c\u1ee7a m\u00ecnh th\u00f4ng qua m\u1ed9t Chuy\u00ean gia Ch\u0103m s\u00f3c Tr\u1ebb em.<\/p>\n

Khi t\u00f4i tr\u1edf l\u1ea1i tr\u01b0\u1eddng, \u0111i\u1ec3m s\u1ed1 c\u1ee7a t\u00f4i kh\u00f4ng \u0111\u01b0\u1ee3c t\u1ed1t l\u1eafm, v\u00e0 t\u00f4i r\u1ea5t lo l\u1eafng. C\u00f4 Jeanne Kane t\u1eeb ch\u01b0\u01a1ng tr\u00ecnh Li\u00ean l\u1ea1c H\u1ed7 tr\u1ee3 Gi\u00e1o d\u1ee5c B\u1ec7nh vi\u1ec7n (HEAL) \u0111\u00e3 \u0111\u1ebfn v\u00e0 n\u00f3i chuy\u1ec7n v\u1edbi t\u00f4i v\u1ec1 tr\u01b0\u1eddng h\u1ecdc. C\u00f4 \u1ea5y \u0111\u00e3 c\u00f9ng m\u1eb9 t\u00f4i v\u1eadn \u0111\u1ed9ng t\u1ea1i tr\u01b0\u1eddng cho ch\u01b0\u01a1ng tr\u00ecnh Gi\u00e1o d\u1ee5c C\u00e1 nh\u00e2n h\u00f3a c\u1ee7a t\u00f4i.
L\u00ean k\u1ebf ho\u1ea1ch \u0111\u1ec3 \u0111\u1ea3m b\u1ea3o t\u00f4i c\u00f3 th\u1ec3 nh\u1eadn \u0111\u01b0\u1ee3c s\u1ef1 tr\u1ee3 gi\u00fap c\u1ea7n thi\u1ebft v\u00e0 k\u1ebft qu\u1ea3 l\u00e0 t\u00f4i \u0111\u00e3 c\u00f3 \u0111\u01b0\u1ee3c m\u1ed9t ng\u01b0\u1eddi qu\u1ea3n l\u00fd tr\u01b0\u1eddng h\u1ee3p gi\u00fap t\u00f4i qu\u1ea3n l\u00fd kh\u1ed1i l\u01b0\u1ee3ng l\u1edbp h\u1ecdc.<\/p>\n

B\u00e2y gi\u1edd t\u00f4i t\u1ef1 tin h\u01a1n, \u0111\u1ea1t \u0111i\u1ec3m cao h\u01a1n v\u00e0 \u0111\u00e3 tham gia m\u00f4n th\u1ec3 thao y\u00eau th\u00edch c\u1ee7a m\u00ecnh, c\u1ed5 v\u0169.<\/p>\n

T\u00f4i mu\u1ed1n c\u1ea3m \u01a1n Ti\u1ebfn s\u0129 Michael Jeng, y t\u00e1 Judith Lea v\u00e0 nh\u00e2n vi\u00ean x\u00e3 h\u1ed9i Kerri Lowe \u0111\u00e3 gi\u00fap t\u00f4i duy tr\u00ec s\u1ee9c kh\u1ecfe t\u1ed1t v\u00e0 h\u1ed7 tr\u1ee3 gia \u0111\u00ecnh t\u00f4i.<\/p>\n

Xin c\u1ea3m \u01a1n t\u1ea5t c\u1ea3 m\u1ecdi ng\u01b0\u1eddi \u0111\u00e3 gi\u00fap \u0111\u1ee1 t\u00f4i, d\u00f9 l\u00e0 l\u1ea5y m\u00e1u, t\u00ecnh nguy\u1ec7n v\u00e0 mang c\u00e1c ho\u1ea1t \u0111\u1ed9ng \u0111\u1ebfn ph\u00f2ng t\u00f4i, nh\u00e2n vi\u00ean m\u1ee5c v\u1ee5 \u0111\u00e3 c\u1ea7u nguy\u1ec7n cho t\u00f4i, v\u00e0 nh\u00e2n vi\u00ean l\u1ec5 t\u00e2n \u0111\u00e3 ch\u00e0o \u0111\u00f3n v\u00e0 quen bi\u1ebft t\u00f4i.<\/p>\n

T\u00f4i c\u0169ng mu\u1ed1n c\u1ea3m \u01a1n c\u00e1c nh\u00e0 h\u1ea3o t\u00e2m v\u00e0 nh\u1eefng ng\u01b0\u1eddi \u0111\u00e3 h\u1ed7 tr\u1ee3 b\u1ec7nh vi\u1ec7n v\u00ec \u0111\u00e3 cho t\u00f4i c\u01a1 h\u1ed9i chia s\u1ebb c\u00e2u chuy\u1ec7n c\u1ee7a m\u00ecnh. Nh\u1edd vi\u1ec7c chia s\u1ebb c\u00e2u chuy\u1ec7n, t\u00f4i nh\u1eadn ra r\u1eb1ng m\u00ecnh c\u00f2n h\u01a1n c\u1ea3 b\u1ec7nh t\u1eadt. \u0110i\u1ec1u n\u00e0y \u0111\u00e3 gi\u00fap n\u00e2ng cao nh\u1eadn th\u1ee9c v\u1ec1 b\u1ec7nh h\u1ed3ng c\u1ea7u h\u00ecnh li\u1ec1m t\u1ea1i tr\u01b0\u1eddng h\u1ecdc, nh\u00e0 th\u1edd v\u00e0 c\u1ed9ng \u0111\u1ed3ng c\u1ee7a t\u00f4i.<\/p>\n

T\u00f4i kh\u00f4ng ng\u1ea1i chia s\u1ebb v\u1ec1 t\u00ecnh tr\u1ea1ng c\u1ee7a m\u00ecnh v\u00e0 \u0111ang ngh\u0129 \u0111\u1ebfn vi\u1ec7c tr\u1edf th\u00e0nh m\u1ed9t y t\u00e1. B\u1edfi v\u00ec khi m\u1ed9t y t\u00e1 \u0111\u1ed1i x\u1eed v\u1edbi t\u00f4i nh\u01b0 con g\u00e1i ru\u1ed9t, t\u00f4i c\u1ea3m th\u1ea5y \u0111\u01b0\u1ee3c h\u1ed7 tr\u1ee3 nhi\u1ec1u h\u01a1n. Gi\u1edd \u0111\u00e2y, t\u00f4i mu\u1ed1n gi\u00fap \u0111\u1ee1 nh\u1eefng ng\u01b0\u1eddi kh\u00e1c gi\u1ed1ng nh\u01b0 m\u00ecnh.<\/p>\n

B\u00e0i vi\u1ebft n\u00e0y ban \u0111\u1ea7u xu\u1ea5t hi\u1ec7n trong \u1ea5n b\u1ea3n M\u00f9a xu\u00e2n n\u0103m 2018 c\u1ee7a C\u1eadp nh\u1eadt Qu\u1ef9 Tr\u1ebb em<\/em><\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

Xin ch\u00e0o, t\u00f4i t\u00ean l\u00e0 Zariah Stevenson. T\u00f4i l\u00e0 h\u1ecdc sinh n\u0103m ba t\u1ea1i tr\u01b0\u1eddng Trung h\u1ecdc Menlo Atherton v\u00e0 l\u00e0 b\u1ec7nh nh\u00e2n t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford....<\/p>","protected":false},"author":17,"featured_media":3942,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-3941","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories"],"acf":[],"yoast_head":"\nThank You, From a Lifelong Packard Children's Patient - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/vi\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Thank You, From a Lifelong Packard Children's Patient\" \/>\n<meta property=\"og:description\" content=\"Hello, my name is Zariah Stevenson. I am a junior at Menlo Atherton High School and a patient at Lucile Packard Children’s Hospital Stanford.  The...\" \/>\n<meta property=\"og:url\" content=\"http:\/\/lpfch.org\/vi\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/\" \/>\n<meta property=\"og:site_name\" content=\"Lucile Packard Foundation for Children's Health\" \/>\n<meta property=\"article:published_time\" content=\"2018-02-08T23:56:58+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2024-02-14T14:07:47+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/lpfch.org\/wp-content\/uploads\/2024\/01\/zariah_1.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"522\" \/>\n\t<meta property=\"og:image:height\" content=\"280\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"admin\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"admin\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"3 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"http:\/\/lpfch.org\/ja\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/#article\",\"isPartOf\":{\"@id\":\"http:\/\/lpfch.org\/ja\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/\"},\"author\":{\"name\":\"admin\",\"@id\":\"https:\/\/lpfch.org\/km\/#\/schema\/person\/0c27ee3a03f60d4845413e6163db996c\"},\"headline\":\"Thank You, From a Lifelong Packard Children’s Patient\",\"datePublished\":\"2018-02-08T23:56:58+00:00\",\"dateModified\":\"2024-02-14T14:07:47+00:00\",\"mainEntityOfPage\":{\"@id\":\"http:\/\/lpfch.org\/ja\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/\"},\"wordCount\":581,\"commentCount\":0,\"image\":{\"@id\":\"http:\/\/lpfch.org\/ja\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/01\/zariah_1.jpg\",\"articleSection\":[\"In the News\",\"Patient Stories\"],\"inLanguage\":\"vi\",\"potentialAction\":[{\"@type\":\"CommentAction\",\"name\":\"Comment\",\"target\":[\"http:\/\/lpfch.org\/ja\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/#respond\"]}]},{\"@type\":\"WebPage\",\"@id\":\"http:\/\/lpfch.org\/ja\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/\",\"url\":\"http:\/\/lpfch.org\/ja\/impact-stories\/thank-you-from-a-lifelong-packard-childrens-patient\/\",\"name\":\"Thank You, From a Lifelong Packard Children's Patient - 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