{"id":4036,"date":"2019-05-28T21:37:47","date_gmt":"2019-05-28T21:37:47","guid":{"rendered":"https:\/\/lpfch.org\/racing-to-find-a-cure\/"},"modified":"2024-02-14T14:08:03","modified_gmt":"2024-02-14T14:08:03","slug":"racing-to-find-a-cure","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/racing-to-find-a-cure\/","title":{"rendered":"Cu\u1ed9c \u0111ua t\u00ecm ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb"},"content":{"rendered":"

M\u1ed9t gia \u0111\u00ecnh \u1edf Alabama t\u1eadp h\u1ee3p c\u1ed9ng \u0111\u1ed3ng \u0111\u1ec3 g\u00e2y qu\u1ef9 cho nghi\u00ean c\u1ee9u c\u1ee9u ng\u01b0\u1eddi.<\/h3>\n

B\u1ea1n c\u00f3 nghe th\u1ea5y kh\u00f4ng? \u0110\u00f3 l\u00e0 \u00e2m thanh c\u1ee7a h\u00e0ng ng\u00e0n ng\u01b0\u1eddi c\u1ed5 v\u0169 Kruz v\u00e0 Paizlee Davenport t\u1eeb t\u1eadn Alabama.<\/p>\n

H\u1ecd c\u00f3 m\u1ed9t c\u00e2u l\u1ea1c b\u1ed9 ng\u01b0\u1eddi h\u00e2m m\u1ed9 kh\u00e1 l\u1edbn \u1edf qu\u00ea nh\u00e0, v\u00e0 kh\u00f4ng kh\u00f3 \u0111\u1ec3 hi\u1ec3u t\u1ea1i sao h\u1ecd l\u1ea1i truy\u1ec1n c\u1ea3m h\u1ee9ng cho r\u1ea5t nhi\u1ec1u ng\u01b0\u1eddi xa l\u1ea1 c\u00f9ng nhau h\u01b0\u1edbng t\u1edbi m\u1ed9t m\u1ee5c ti\u00eau chung.<\/p>\n

Hai anh ch\u1ecb em n\u00e0y l\u00e0 hai trong s\u1ed1 n\u0103m tr\u1ebb em \u1edf Hoa K\u1ef3 m\u1eafc ch\u1ee9ng lo\u1ea1n s\u1ea3n x\u01b0\u01a1ng mi\u1ec5n d\u1ecbch Schimke (SIOD), m\u1ed9t d\u1ea1ng b\u1ec7nh l\u00f9n c\u1ef1c k\u1ef3 hi\u1ebfm g\u1eb7p v\u1edbi tu\u1ed5i th\u1ecd trung b\u00ecnh t\u1eeb 9 \u0111\u1ebfn 11 n\u0103m. B\u1ec7nh c\u00f3 th\u1ec3 g\u00e2y suy th\u1eadn, suy gi\u1ea3m h\u1ec7 mi\u1ec5n d\u1ecbch v\u00e0 lo\u1ea1n s\u1ea3n x\u01b0\u01a1ng h\u00f4ng.<\/p>\n

"Kh\u1ea3 n\u0103ng c\u1ea3 Kruz v\u00e0 Paizlee \u0111\u1ec1u m\u1eafc SIOD l\u00e0 m\u1ed9t ph\u1ea7n 80 tri\u1ec7u", m\u1eb9 c\u1ee7a hai b\u00e9, Jessica, cho bi\u1ebft. C\u00f4 v\u00e0 ch\u1ed3ng, Kyle, \u0111\u00e3 t\u1ea1m th\u1eddi chuy\u1ec3n gia \u0111\u00ecnh t\u1eeb Muscle Shoals, Alabama, \u0111\u1ebfn Palo Alto \u0111\u1ec3 c\u00e1c con \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c t\u1ed1t nh\u1ea5t v\u00e0 c\u00f3 c\u01a1 h\u1ed9i cho m\u1ed9t t\u01b0\u01a1ng lai t\u01b0\u01a1i s\u00e1ng h\u01a1n.<\/p>\n

V\u00ec SIOD d\u1eabn \u0111\u1ebfn suy th\u1eadn, Kruz, 5 tu\u1ed5i, v\u00e0 Paizlee, 4 tu\u1ed5i, s\u1ebd \u0111\u01b0\u1ee3c gh\u00e9p th\u1eadn t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford. Hi\u1ec7n t\u1ea1i, Kruz \u0111ang ph\u1ea3i ch\u1ea1y th\u1eadn nh\u00e2n t\u1ea1o v\u00e0 Paizlee \u0111ang \u0111\u01b0\u1ee3c \u0111\u1ed9i ng\u0169 chuy\u00ean khoa th\u1eadn c\u1ee7a ch\u00fang t\u00f4i theo d\u00f5i v\u00e0 \u0111i\u1ec1u tr\u1ecb. M\u1ed9t c\u00e1ch kh\u00e1c \u0111\u1ec3 SIOD bi\u1ec3u hi\u1ec7n l\u00e0 s\u1ef1 thi\u1ebfu h\u1ee5t t\u1ebf b\u00e0o T, d\u1eabn \u0111\u1ebfn h\u1ec7 mi\u1ec5n d\u1ecbch suy y\u1ebfu. Kruz g\u1ea7n \u0111\u00e2y l\u00e0 b\u1ec7nh nh\u00e2n SIOD \u0111\u1ea7u ti\u00ean \u0111\u01b0\u1ee3c nh\u1eadn t\u1ebf b\u00e0o g\u1ed1c t\u1eeb ng\u01b0\u1eddi hi\u1ebfn t\u1eb7ng. Paizlee \u0111ang \u0111\u01b0\u1ee3c \u0111\u00e1nh gi\u00e1 \u0111\u1ec3 gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c. Trong t\u01b0\u01a1ng lai, hai anh em c\u0169ng s\u1ebd c\u1ea7n ph\u1eabu thu\u1eadt t\u00e1i t\u1ea1o kh\u1edbp h\u00e1ng \u0111\u1ec3 \u0111i\u1ec1u tr\u1ecb ch\u1ee9ng lo\u1ea1n s\u1ea3n.<\/p>\n

\u201cStanford v\u00e0 Ti\u1ebfn s\u0129 David Lewis \u0111\u00e3 r\u1ea5t vui l\u00f2ng ti\u1ebfp nh\u1eadn nghi\u00ean c\u1ee9u SIOD v\u00e0o n\u0103m 2017, d\u1eabn \u0111\u1ebfn vi\u1ec7c ch\u00fang t\u00f4i \u0111\u01b0\u1ee3c g\u1eb7p Ti\u1ebfn s\u0129 Alice Bertaina v\u00e0 c\u00e1c b\u00e1c s\u0129 tuy\u1ec7t v\u1eddi, nh\u1eefng ng\u01b0\u1eddi hi\u1ec7n l\u00e0 nh\u00f3m gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c v\u00e0 gh\u00e9p th\u1eadn c\u1ee7a ch\u00fang t\u00f4i,\u201d Jessica n\u00f3i. \u201cCh\u00fang t\u00f4i c\u1ea3m th\u1ea5y may m\u1eafn khi c\u00f3 Kruz v\u00e0 Paizlee t\u1ea1i c\u01a1 s\u1edf ch\u0103m s\u00f3c t\u1ed1t nh\u1ea5t th\u1ebf gi\u1edbi.\u201d<\/p>\n

L\u00e0 nh\u1eefng anh ch\u1ecb em \u0111\u1ea7u ti\u00ean m\u1eafc SIOD \u1edf \u0111\u1ea5t n\u01b0\u1edbc n\u00e0y, h\u1ecd \u0111\u00e3 tr\u1edf th\u00e0nh \u0111\u1ea1i s\u1ee9 cho c\u0103n b\u1ec7nh n\u00e0y v\u00e0 chia s\u1ebb kinh nghi\u1ec7m c\u1ee7a m\u00ecnh th\u00f4ng qua qu\u1ef9 Kruzn for a Kure c\u1ee7a gia \u0111\u00ecnh. G\u1ea7n \u0111\u00e2y, Jessica \u0111\u00e3 trao t\u1eb7ng Lewis t\u1ea5m s\u00e9c tr\u1ecb gi\u00e1 $150.000, n\u00e2ng t\u1ed5ng s\u1ed1 ti\u1ec1n quy\u00ean g\u00f3p c\u1ee7a h\u1ecd l\u00ean h\u01a1n $1,3 tri\u1ec7u.<\/p>\n

\u201cQu\u1ef9 Kruzn for a Kure \u0111ang cung c\u1ea5p kinh ph\u00ed nghi\u00ean c\u1ee9u c\u1ee9u s\u1ed1ng \u0111\u1ec3 gi\u00fap nh\u1eefng tr\u1ebb em n\u00e0y c\u00f3 \u0111\u01b0\u1ee3c k\u1ebf ho\u1ea1ch \u0111i\u1ec1u tr\u1ecb v\u00e0 c\u01a1 h\u1ed9i s\u1ed1ng l\u00e2u h\u01a1n,\u201d Jessica n\u00f3i. \u201cL\u1ea7n \u0111\u1ea7u ti\u00ean, nghi\u00ean c\u1ee9u v\u1ec1 SIOD t\u1ea1i Stanford c\u00f3 c\u01a1 h\u1ed9i \u0111\u1ea7y h\u1ee9a h\u1eb9n \u0111\u1ec3 th\u1ef1c s\u1ef1 ch\u1eefa kh\u1ecfi c\u0103n b\u1ec7nh nan y n\u00e0y. Ch\u00fang t\u00f4i v\u00f4 c\u00f9ng bi\u1ebft \u01a1n c\u00e1c nh\u00e0 t\u00e0i tr\u1ee3 \u0111\u00e3 h\u1ed7 tr\u1ee3 Kruz, Paizlee v\u00e0 nh\u1eefng tr\u1ebb em kh\u00e1c m\u1eafc SIOD.\u201d<\/p>\n

V\u00e0o ng\u00e0y 23 th\u00e1ng 6, Kruz v\u00e0 Paizlee s\u1ebd l\u00e0 nh\u1eefng Anh h\u00f9ng B\u1ec7nh nh\u00e2n t\u1ea1i s\u1ef1 ki\u1ec7n Summer Scamper th\u01b0\u1eddng ni\u00ean l\u1ea7n th\u1ee9 9, gi\u00fap g\u00e2y qu\u1ef9 v\u00e0 n\u00e2ng cao nh\u1eadn th\u1ee9c cho B\u1ec7nh vi\u1ec7n Nhi Packard v\u00e0 Tr\u01b0\u1eddng Y khoa \u0110\u1ea1i h\u1ecdc Stanford.<\/p>\n

Ch\u00fang t\u00f4i r\u1ea5t vinh d\u1ef1 khi c\u00f3 nhi\u1ec1u ng\u01b0\u1eddi \u1ee7ng h\u1ed9 t\u1eeb kh\u1eafp n\u01a1i tr\u00ean Scamper-ing \u0111\u1ec3 h\u1ed7 tr\u1ee3 nh\u1eefng b\u1ec7nh nh\u00e2n nh\u01b0 Kruz v\u00e0 Paizlee!<\/p>\n

B\u00e0i vi\u1ebft n\u00e0y ban \u0111\u1ea7u xu\u1ea5t hi\u1ec7n trong \u1ea5n b\u1ea3n M\u00f9a xu\u00e2n n\u0103m 2019 c\u1ee7a Tin t\u1ee9c Tr\u1ebb em Packard<\/a>.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

M\u1ed9t gia \u0111\u00ecnh \u1edf Alabama \u0111ang v\u1eadn \u0111\u1ed9ng c\u1ed9ng \u0111\u1ed3ng g\u00e2y qu\u1ef9 cho nghi\u00ean c\u1ee9u c\u1ee9u ng\u01b0\u1eddi. B\u1ea1n c\u00f3 nghe th\u1ea5y kh\u00f4ng? \u0110\u00f3 l\u00e0 \u00e2m thanh c\u1ee7a h\u00e0ng ng\u00e0n ng\u01b0\u1eddi \u0111ang reo h\u00f2 c\u1ed5 v\u0169 Kruz\u2026<\/p>","protected":false},"author":17,"featured_media":10519,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-4036","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories"],"acf":[],"yoast_head":"\nRacing to Find a Cure - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/vi\/impact-stories\/racing-to-find-a-cure\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Racing to Find a Cure\" \/>\n<meta property=\"og:description\" content=\"Alabama family rallies the community to raise funds for life-saving research. 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