{"id":4075,"date":"2020-01-17T22:05:28","date_gmt":"2020-01-17T22:05:28","guid":{"rendered":"https:\/\/lpfch.org\/with-visionary-gift-from-additional-ventures-packard-childrens-joins-research-initiative-on-single-ventricle-heart-defects\/"},"modified":"2024-02-16T20:46:07","modified_gmt":"2024-02-16T20:46:07","slug":"with-visionary-gift-from-additional-ventures-packard-childrens-joins-research-initiative-on-single-ventricle-heart-defects","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/with-visionary-gift-from-additional-ventures-packard-childrens-joins-research-initiative-on-single-ventricle-heart-defects\/","title":{"rendered":"V\u1edbi m\u00f3n qu\u00e0 mang t\u00ednh t\u1ea7m nh\u00ecn t\u1eeb Additional Ventures, Packard Children's tham gia s\u00e1ng ki\u1ebfn nghi\u00ean c\u1ee9u v\u1ec1 khuy\u1ebft t\u1eadt tim \u0111\u01a1n t\u00e2m th\u1ea5t"},"content":{"rendered":"

C\u00e1c Trung t\u00e2m Tim m\u1ea1ch Tr\u1ebb em Betty Irene Moore<\/a> t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Lucile Packard Stanford v\u00e0 Tr\u01b0\u1eddng Y khoa \u0110\u1ea1i h\u1ecdc Stanford \u0111\u00e3 nh\u1eadn \u0111\u01b0\u1ee3c kho\u1ea3n t\u00e0i tr\u1ee3 $1 tri\u1ec7u t\u1eeb C\u00e1c d\u1ef1 \u00e1n b\u1ed5 sung<\/a> \u0111\u1ec3 th\u00fac \u0111\u1ea9y c\u00e1c kh\u00e1m ph\u00e1 khoa h\u1ecdc v\u00e0 ph\u00e1t tri\u1ec3n ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb d\u1ecb t\u1eadt tim m\u1ed9t t\u00e2m th\u1ea5t (SVD). Ch\u00fang t\u00f4i \u0111ang h\u1ee3p t\u00e1c v\u1edbi b\u1ed1n vi\u1ec7n nghi\u00ean c\u1ee9u kh\u00e1c trong m\u1ed9t n\u1ed7 l\u1ef1c ph\u1ed1i h\u1ee3p quy m\u00f4 l\u1edbn, t\u1eadp trung v\u00e0o vi\u1ec7c x\u00e1c \u0111\u1ecbnh c\u00e1c h\u01b0\u1edbng \u0111i m\u1edbi nh\u1eb1m lo\u1ea1i b\u1ecf t\u00e1c \u0111\u1ed9ng c\u1ee7a SVD, ch\u1eefa kh\u1ecfi b\u1ec7nh v\u1ec1 m\u1eb7t ch\u1ee9c n\u0103ng cho b\u1ec7nh nh\u00e2n v\u00e0 cu\u1ed1i c\u00f9ng l\u00e0 ng\u0103n ng\u1eeba SVD.<\/p>\n

B\u1ec7nh tim b\u1ea9m sinh m\u1ed9t t\u00e2m th\u1ea5t r\u1ea5t hi\u1ebfm g\u1eb7p v\u00e0 kh\u00f4ng th\u1ec3 ch\u1eefa kh\u1ecfi, \u0111\u1ed3ng th\u1eddi l\u00e0 m\u1ed9t trong nh\u1eefng b\u1ec7nh tim b\u1ea9m sinh kh\u00f3 \u0111i\u1ec1u tr\u1ecb v\u00e0 t\u1ed1n k\u00e9m nh\u1ea5t. B\u1ec7nh \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn kho\u1ea3ng n\u0103m trong s\u1ed1 100.000 tr\u1ebb s\u01a1 sinh m\u1ed7i n\u0103m.<\/p>\n

\u201cB\u1ed1n m\u01b0\u01a1i n\u0103m tr\u01b0\u1edbc, tr\u1ebb em m\u1eafc b\u1ec7nh tim m\u1ed9t t\u00e2m th\u1ea5t th\u01b0\u1eddng kh\u00f4ng s\u1ed1ng s\u00f3t qua giai \u0111o\u1ea1n s\u01a1 sinh\u201d, Erin Hoffmann, ch\u1ee7 t\u1ecbch ki\u00eam \u0111\u1ed3ng s\u00e1ng l\u1eadp Additional Ventures, cho bi\u1ebft. \u201cM\u1eb7c d\u00f9 nh\u1eefng ti\u1ebfn b\u1ed9 trong ph\u1eabu thu\u1eadt \u0111\u00e3 c\u1ea3i thi\u1ec7n \u0111\u00e1ng k\u1ec3 c\u01a1 h\u1ed9i s\u1ed1ng s\u00f3t cho nh\u1eefng tr\u1ebb em n\u00e0y, nh\u01b0ng \u0111i\u1ec1u \u0111\u00f3 c\u0169ng c\u00f3 ngh\u0129a l\u00e0 gi\u1edd \u0111\u00e2y ch\u00fang ta ph\u1ea3i t\u1eadp trung v\u00e0o nghi\u00ean c\u1ee9u c\u00f3 t\u00e1c \u0111\u1ed9ng l\u1edbn \u0111\u1ec3 cung c\u1ea5p c\u00e1c ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb m\u1edbi cho ph\u00e9p c\u00e1c em s\u1ed1ng l\u00e2u v\u00e0 b\u00ecnh th\u01b0\u1eddng.\u201d<\/p>\n

B\u1ec7nh vi\u1ec7n Nhi Packard l\u00e0 b\u1ec7nh vi\u1ec7n duy nh\u1ea5t \u1edf B\u1edd T\u00e2y cung c\u1ea5p d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c l\u00e2m s\u00e0ng to\u00e0n di\u1ec7n cho b\u1ec7nh nh\u00e2n m\u1eafc b\u1ec7nh l\u00fd tim b\u1ea9m sinh (SVD). \u0110\u01b0\u1ee3c th\u00e0nh l\u1eadp v\u00e0o n\u0103m 2017 th\u00f4ng qua kho\u1ea3n t\u00e0i tr\u1ee3 \u0111\u1ea7y t\u1ea7m nh\u00ecn c\u1ee7a Additional Ventures, Ch\u01b0\u01a1ng tr\u00ecnh T\u00e2m th\u1ea5t \u0111\u01a1n to\u00e0n di\u1ec7n<\/a> nh\u1eb1m m\u1ee5c \u0111\u00edch c\u1ea3i thi\u1ec7n kh\u1ea3 n\u0103ng s\u1ed1ng s\u00f3t, t\u1ed1i \u01b0u h\u00f3a k\u1ebft qu\u1ea3 v\u00e0 gi\u00fap tr\u1ebb em v\u00e0 thanh thi\u1ebfu ni\u00ean s\u1ed1ng tr\u1ecdn v\u1eb9n cu\u1ed9c s\u1ed1ng. M\u1ed9t \u0111\u1ed9i ng\u0169 chuy\u00ean gia h\u1ed7 tr\u1ee3 tr\u1ebb em v\u00e0 gia \u0111\u00ecnh \u0111\u1ea1t \u0111\u01b0\u1ee3c h\u1ea1nh ph\u00fac l\u00e2u d\u00e0i, bao g\u1ed3m th\u00e0nh t\u00edch h\u1ecdc t\u1eadp, s\u1ee9c kh\u1ecfe x\u00e3 h\u1ed9i v\u00e0 c\u1ea3m x\u00fac, dinh d\u01b0\u1ee1ng v\u00e0 t\u1eadp th\u1ec3 d\u1ee5c, c\u0169ng nh\u01b0 s\u1ee9c kh\u1ecfe gan v\u00e0 th\u1eadn.<\/p>\n

Kho\u1ea3n t\u00e0i tr\u1ee3 m\u1edbi ra m\u1eaft Ch\u01b0\u01a1ng tr\u00ecnh trao gi\u1ea3i th\u01b0\u1edfng nghi\u00ean c\u1ee9u b\u1ec7nh t\u00e2m th\u1ea5t \u0111\u01a1n c\u1ee7a Qu\u1ef9 \u0111\u1ed5i m\u1edbi doanh nghi\u1ec7p b\u1ed5 sung<\/a> \u0111\u1ec3 b\u1ed5 sung cho ch\u01b0\u01a1ng tr\u00ecnh l\u00e2m s\u00e0ng. Stanford Vi\u1ec7n nghi\u00ean c\u1ee9u s\u1ee9c kh\u1ecfe b\u00e0 m\u1eb9 v\u00e0 tr\u1ebb em<\/a> s\u1ebd trao c\u00e1c kho\u1ea3n t\u00e0i tr\u1ee3 n\u00e0y d\u01b0\u1edbi d\u1ea1ng t\u00e0i tr\u1ee3 h\u1ea1t gi\u1ed1ng cho c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u t\u1ea1i Stanford v\u00ec nh\u1eefng \u00fd t\u01b0\u1edfng m\u1edbi m\u1ebb, \u0111\u1ed9t ph\u00e1 v\u00e0 c\u00e1c nghi\u00ean c\u1ee9u c\u00f3 t\u00e1c \u0111\u1ed9ng cao li\u00ean quan \u0111\u1ebfn SVD. Qu\u1ef9 \u0111\u01b0\u1ee3c \u0111i\u1ec1u h\u00e0nh b\u1edfi m\u1ed9t H\u1ed9i \u0111\u1ed3ng C\u1ed1 v\u1ea5n Khoa h\u1ecdc bao g\u1ed3m Ti\u1ebfn s\u0129 Christopher Almond; <\/a>Ti\u1ebfn s\u0129 Daniel Bernstein; <\/a>Katsuhide Maeda, MD; <\/a>Alison Marsden, Ti\u1ebfn s\u0129; v\u00e0 <\/a>Ti\u1ebfn s\u0129 Stephen J. Roth<\/a>.<\/a><\/p>\n

Qu\u1ef9 s\u1ebd h\u1ed7 tr\u1ee3 nhi\u1ec1u ph\u01b0\u01a1ng ph\u00e1p ti\u1ebfp c\u1eadn khoa h\u1ecdc, ph\u01b0\u01a1ng ph\u00e1p m\u1edbi ho\u1eb7c \u00fd t\u01b0\u1edfng t\u1eeb c\u00e1c ng\u00e0nh khoa h\u1ecdc c\u01a1 b\u1ea3n, l\u00e2m s\u00e0ng, chuy\u1ec3n d\u1ecbch, k\u1ef9 thu\u1eadt, tin h\u1ecdc v\u00e0 c\u00e1c ng\u00e0nh khoa h\u1ecdc y sinh kh\u00e1c \u0111\u1ec3 hi\u1ec3u r\u00f5 h\u01a1n nguy\u00ean nh\u00e2n c\u01a1 b\u1ea3n c\u1ee7a SVD v\u00e0 ph\u00e1t tri\u1ec3n c\u00e1c ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb. C\u00e1c quan h\u1ec7 \u0111\u1ed1i t\u00e1c li\u00ean ng\u00e0nh, h\u1ee3p t\u00e1c li\u00ean trung t\u00e2m, c\u00e1c \u1ee9ng vi\u00ean m\u1edbi v\u00e0o ngh\u1ec1 v\u00e0 nh\u1eefng ng\u01b0\u1eddi m\u1edbi v\u00e0o ngh\u1ec1 \u0111\u01b0\u1ee3c khuy\u1ebfn kh\u00edch n\u1ed9p \u0111\u01a1n.<\/p>\n

\u201cCh\u00fang t\u00f4i r\u1ea5t bi\u1ebft \u01a1n Additional Ventures v\u00ec m\u00f3n qu\u00e0 n\u00e0y \u0111\u1ec3 t\u00e0i tr\u1ee3 cho nghi\u00ean c\u1ee9u mang t\u00ednh \u0111\u1ed5i m\u1edbi, \u0111a ng\u00e0nh v\u00e0 r\u1ee7i ro cao t\u1ea1i Tr\u01b0\u1eddng Y khoa \u0110\u1ea1i h\u1ecdc Stanford\u201d, \u00f4ng n\u00f3i. Ti\u1ebfn s\u0129 Frank Hanley<\/a>Ti\u1ebfn s\u0129 Lawrence Crowley, Gi\u00e1o s\u01b0 Y khoa v\u1ec1 S\u1ee9c kh\u1ecfe Tr\u1ebb em t\u1ea1i Tr\u01b0\u1eddng Y Stanford v\u00e0 Tr\u01b0\u1edfng khoa Ph\u1eabu thu\u1eadt Tim m\u1ea1ch Nhi t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard. \u201cK\u1ebft h\u1ee3p v\u1edbi Ch\u01b0\u01a1ng tr\u00ecnh T\u00e2m th\u1ea5t \u0110\u01a1n To\u00e0n di\u1ec7n c\u1ee7a ch\u00fang t\u00f4i t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard, ch\u00fang t\u00f4i c\u00f3 th\u1ec3 gi\u00fap tr\u1ebb em kh\u00f4ng ch\u1ec9 s\u1ed1ng s\u00f3t m\u00e0 c\u00f2n ph\u00e1t tri\u1ec3n kh\u1ecfe m\u1ea1nh.\u201d<\/p>\n

Ngo\u00e0i ra, B\u1ec7nh vi\u1ec7n Nhi Packard v\u00e0 Tr\u01b0\u1eddng Y s\u1ebd h\u1ee3p t\u00e1c v\u00e0 chia s\u1ebb ki\u1ebfn th\u1ee9c v\u1edbi b\u1ed1n t\u1ed5 ch\u1ee9c kh\u00e1c nh\u1eadn \u0111\u01b0\u1ee3c t\u00e0i tr\u1ee3:<\/p>\n