{"id":4192,"date":"2021-03-08T17:33:47","date_gmt":"2021-03-08T17:33:47","guid":{"rendered":"https:\/\/lpfch.org\/curing-the-incurable-breakthrough-therapies-transforming-the-future-of-medicine\/"},"modified":"2024-02-22T17:53:46","modified_gmt":"2024-02-22T17:53:46","slug":"curing-the-incurable-breakthrough-therapies-transforming-the-future-of-medicine","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/curing-the-incurable-breakthrough-therapies-transforming-the-future-of-medicine\/","title":{"rendered":"Ch\u1eefa kh\u1ecfi b\u1ec7nh nan y: Li\u1ec7u ph\u00e1p \u0111\u1ed9t ph\u00e1 thay \u0111\u1ed5i t\u01b0\u01a1ng lai c\u1ee7a y h\u1ecdc"},"content":{"rendered":"<p>\u201cKh\u00f4ng c\u00f3 c\u00e1ch ch\u1eefa tr\u1ecb.\u201d Nh\u1eefng l\u1eddi n\u00e0y \u00e1m \u1ea3nh h\u00e0ng tri\u1ec7u gia \u0111\u00ecnh c\u00f3 con em ph\u1ea3i \u0111\u1ed1i m\u1eb7t v\u1edbi c\u0103n b\u1ec7nh nan y su\u1ed1t \u0111\u1eddi. M\u1eb7c d\u00f9 thu\u1ed1c men v\u00e0 can thi\u1ec7p ph\u1eabu thu\u1eadt c\u00f3 th\u1ec3 c\u1ea3i thi\u1ec7n k\u1ebft qu\u1ea3, nh\u01b0ng c\u00e1c li\u1ec7u ph\u00e1p n\u00e0y \u0111ang nhanh ch\u00f3ng \u0111\u1ea1t \u0111\u1ebfn gi\u1edbi h\u1ea1n c\u1ee7a ch\u00fang.<\/p>\n<p>Nh\u01b0ng c\u00f3 tin t\u1ed1t. Trong nh\u1eefng n\u0103m g\u1ea7n \u0111\u00e2y, li\u1ec7u ph\u00e1p t\u1ebf b\u00e0o v\u00e0 gen bi\u1ebfn \u0111\u1ed5i \u0111\u00e3 kh\u00f4ng ch\u1ec9 \u0111i\u1ec1u tr\u1ecb m\u00e0 c\u00f2n th\u1ef1c s\u1ef1 ch\u1eefa kh\u1ecfi b\u1ec7nh.<\/p>\n<p>N\u0103m 2017, Stanford Medicine \u0111\u00e3 th\u00e0nh l\u1eadp Trung t\u00e2m Y h\u1ecdc Ch\u1eefa tr\u1ecb v\u00e0 X\u00e1c \u0111\u1ecbnh (CDCM) \u0111\u1ec3 h\u00ecnh th\u00e0nh, th\u1eed nghi\u1ec7m, c\u1ea3i ti\u1ebfn v\u00e0 ch\u1ee9ng minh c\u00e1c li\u1ec7u ph\u00e1p m\u1edbi \u0111\u00e1ng kinh ng\u1ea1c s\u1ebd thay \u0111\u1ed5i t\u01b0\u01a1ng lai s\u1ee9c kh\u1ecfe c\u1ee7a tr\u1ebb em.<\/p>\n<p>Tu\u1ea7n n\u00e0y, c\u00e1c gi\u1ea3ng vi\u00ean c\u1ee7a CDCM \u0111\u00e3 tham gia c\u00f9ng ch\u00fang t\u00f4i trong s\u1ef1 ki\u1ec7n tr\u1ef1c tuy\u1ebfn mang t\u00ean Ch\u1eefa kh\u1ecfi b\u1ec7nh nan y: C\u00e1c li\u1ec7u ph\u00e1p \u0111\u1ed9t ph\u00e1 \u0111ang thay \u0111\u1ed5i t\u01b0\u01a1ng lai c\u1ee7a y h\u1ecdc, \u0111\u1ec3 chia s\u1ebb t\u1ea7m nh\u00ecn l\u1edbn lao v\u00e0 nh\u1eefng ti\u1ebfn b\u1ed9 th\u00fa v\u1ecb s\u1eafp t\u1edbi, bao g\u1ed3m:<\/p>\n<ul>\n<li>s\u1ef1 ra m\u1eaft s\u1eafp t\u1edbi c\u1ee7a <a href=\"http:\/\/med.stanford.edu\/cdcm\/news.html\">th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng ch\u1ec9nh s\u1eeda gen \u0111\u1ea7u ti\u00ean tr\u00ean ng\u01b0\u1eddi, m\u1ed9t ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb ti\u1ec1m n\u0103ng cho b\u1ec7nh h\u1ed3ng c\u1ea7u h\u00ecnh li\u1ec1m<\/a><\/li>\n<li>s\u1ef1 ra m\u1eaft d\u1ef1 ki\u1ebfn c\u1ee7a m\u1ed9t <a href=\"https:\/\/blog.cirm.ca.gov\/2020\/10\/30\/cirm-funded-treatment-gets-orphan-drug-and-rare-pediatric-disease-designations-from-fda\/\">th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng n\u0103m nay \u0111\u1ec3 ch\u1eefa kh\u1ecfi b\u1ec7nh IPEX, m\u1ed9t c\u0103n b\u1ec7nh t\u1ef1 mi\u1ec5n hi\u1ebfm g\u1eb7p<\/a><\/li>\n<li>ti\u1ebfp t\u1ee5c c\u1ea3i ti\u1ebfn m\u1ed9t h\u00ecnh th\u1ee9c c\u1ea5y gh\u00e9p t\u1ebf b\u00e0o g\u1ed1c m\u1edbi do khoa CDCM ti\u00ean phong, cho ph\u00e9p \u0111i\u1ec1u tr\u1ecb an to\u00e0n v\u00e0 hi\u1ec7u qu\u1ea3 h\u01a1n cho nh\u1eefng b\u1ec7nh nh\u00e2n kh\u00f4ng c\u00f3 ng\u01b0\u1eddi hi\u1ebfn t\u1eb7ng ph\u00f9 h\u1ee3p<\/li>\n<\/ul>\n<p><strong>Xem video t\u1ea1i \u0111\u00e2y:<iframe loading=\"lazy\" src=\"https:\/\/www.youtube.com\/embed\/a0GqThV9ouM\" width=\"560\" height=\"315\" frameborder=\"0\" allowfullscreen=\"allowfullscreen\"><\/iframe><\/strong><\/p>\n<p>Ho\u1ea1t \u0111\u1ed9ng t\u1eeb thi\u1ec7n \u0111\u00f3ng vai tr\u00f2 thi\u1ebft y\u1ebfu trong vi\u1ec7c th\u00fac \u0111\u1ea9y nh\u1eefng nghi\u00ean c\u1ee9u \u0111\u1ed9t ph\u00e1, \u0111i\u1ec1u m\u00e0 ch\u1ec9 c\u00e1c chuy\u00ean gia t\u1ea1i Stanford m\u1edbi c\u00f3 th\u1ec3 th\u1ef1c hi\u1ec7n \u0111\u01b0\u1ee3c. N\u1ebfu b\u1ea1n quan t\u00e2m t\u00ecm hi\u1ec3u th\u00eam v\u1ec1 c\u00f4ng tr\u00ecnh n\u00e0y, vui l\u00f2ng li\u00ean h\u1ec7 Payal Shah theo \u0111\u1ecba ch\u1ec9 email Payal.Shah@lpfch.org.<\/p>\n<p>\u0110\u1ea7u t\u01b0 v\u00e0o t\u1ea7m nh\u00ecn n\u00e0y c\u00f3 t\u00e1c \u0111\u1ed9ng ti\u1ec1m n\u0103ng cao nh\u1ea5t: gi\u00fap h\u00e0ng tri\u1ec7u tr\u1ebb em tr\u00ean th\u1ebf gi\u1edbi s\u1ed1ng m\u00e0 kh\u00f4ng c\u00f3 b\u1ec7nh t\u1eadt.<\/p>","protected":false},"excerpt":{"rendered":"<p>\u201cKh\u00f4ng c\u00f3 c\u00e1ch ch\u1eefa tr\u1ecb.\u201d Nh\u1eefng l\u1eddi n\u00e0y \u00e1m \u1ea3nh h\u00e0ng tri\u1ec7u gia \u0111\u00ecnh c\u00f3 con em ph\u1ea3i \u0111\u1ed1i m\u1eb7t v\u1edbi c\u0103n b\u1ec7nh nan y su\u1ed1t \u0111\u1eddi. M\u1eb7c d\u00f9 thu\u1ed1c men v\u00e0 ph\u1eabu thu\u1eadt c\u00f3 th\u1ec3 c\u1ea3i thi\u1ec7n\u2026<\/p>","protected":false},"author":17,"featured_media":16304,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148],"class_list":["post-4192","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","health_topic-medical-complexity"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Curing the Incurable: Breakthrough Therapies Transforming the Future of Medicine - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/vi\/impact-stories\/curing-the-incurable-breakthrough-therapies-transforming-the-future-of-medicine\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Curing the Incurable: Breakthrough Therapies Transforming the Future of Medicine\" \/>\n<meta property=\"og:description\" content=\"\u201cThere is no cure.\u201d These words haunt millions of families whose children face a lifetime of incurable illness. 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