{"id":4210,"date":"2021-06-08T21:56:34","date_gmt":"2021-06-08T21:56:34","guid":{"rendered":"https:\/\/lpfch.org\/a-high-stakes-decision\/"},"modified":"2024-07-01T20:36:06","modified_gmt":"2024-07-01T20:36:06","slug":"a-high-stakes-decision","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/a-high-stakes-decision\/","title":{"rendered":"M\u1ed9t quy\u1ebft \u0111\u1ecbnh c\u00f3 r\u1ee7i ro cao"},"content":{"rendered":"

Gia \u0111\u00ecnh Makhzoumi \u0111\u00e3 ch\u1ecdn Packard Children's \u0111\u1ec3 ch\u0103m s\u00f3c con trai v\u00e0 h\u1ed7 tr\u1ee3 t\u1eeb thi\u1ec7n.<\/h2>\n

Kate v\u00e0 Mohamad Makhzoumi cho bi\u1ebft h\u1ecd c\u1ea3m th\u1ea5y v\u1eeba "s\u1ed1c v\u1eeba kinh ng\u1ea1c" khi con trai h\u1ecd, Hassan, ch\u00e0o \u0111\u1eddi v\u1edbi m\u1ed9t b\u1ec7nh tim g\u1ecdi l\u00e0 h\u1eb9p \u0111\u1ed9ng m\u1ea1ch ch\u1ee7. \u0110\u00e2y kh\u00f4ng ph\u1ea3i l\u00e0 tr\u1ea3i nghi\u1ec7m th\u01b0\u1eddng th\u1ea5y \u1edf tr\u1ebb s\u01a1 sinh m\u00e0 h\u1ecd mong \u0111\u1ee3i, v\u00e0 h\u1ecd \u0111\u1ed9t nhi\u00ean \u0111\u01b0\u1ee3c \u0111\u01b0a v\u00e0o th\u1ea3o lu\u1eadn v\u1ec1 c\u00e1c ca ph\u1eabu thu\u1eadt ph\u1ee9c t\u1ea1p v\u1edbi c\u00e1c b\u00e1c s\u0129 t\u1ea1i m\u1ed9t s\u1ed1 b\u1ec7nh vi\u1ec7n h\u00e0ng \u0111\u1ea7u c\u1ea3 n\u01b0\u1edbc. C\u00e1c b\u00e1c s\u0129 tr\u1ea5n an h\u1ecd r\u1eb1ng ti\u00ean l\u01b0\u1ee3ng c\u1ee7a con trai h\u1ecd c\u00f3 v\u1ebb t\u1ed1t mi\u1ec5n l\u00e0 b\u00e9 \u0111\u01b0\u1ee3c can thi\u1ec7p tim m\u1ea1ch s\u1edbm. Tuy nhi\u00ean, sau b\u01b0\u1edbc \u0111\u1ea7u ti\u00ean \u0111\u00f3, b\u00e9 s\u1ebd c\u1ea7n th\u00eam nhi\u1ec1u th\u1ee7 thu\u1eadt kh\u00e1c trong su\u1ed1t th\u1eddi th\u01a1 \u1ea5u.<\/p>\n

Cu\u1ed9c t\u00ecm ki\u1ebfm c\u1ee7a h\u1ecd k\u1ebft th\u00fac khi h\u1ecd tr\u00f2 chuy\u1ec7n v\u1edbi b\u00e1c s\u0129 Frank Hanley, tr\u01b0\u1edfng khoa Ph\u1eabu thu\u1eadt Tim Nhi t\u1ea1i Trung t\u00e2m Tim m\u1ea1ch Nhi Betty Irene Moore thu\u1ed9c B\u1ec7nh vi\u1ec7n Nhi Packard. Gia \u0111\u00ecnh Makhzoumi bi\u1ebft r\u1eb1ng h\u1ecd \u0111\u00e3 t\u00ecm th\u1ea5y n\u01a1i m\u00e0 h\u1ecd mu\u1ed1n Hassan n\u1eb7ng 3,1kg.<\/p>\n

\u201cCh\u00fang t\u00f4i c\u1ea3m th\u1ea5y nh\u01b0 m\u00ecnh \u0111ang ch\u1ecdn m\u1ed9t \u0111\u1ed9i ng\u0169 ch\u0103m s\u00f3c s\u1ebd \u0111\u1ed3ng h\u00e0nh c\u00f9ng con trai ch\u00fang t\u00f4i su\u1ed1t qu\u00e3ng \u0111\u1eddi c\u00f2n l\u1ea1i, ho\u1eb7c \u00edt nh\u1ea5t l\u00e0 su\u1ed1t qu\u00e3ng \u0111\u1eddi nhi khoa c\u1ee7a ch\u00e1u,\u201d Mohamad n\u00f3i. \u201cNh\u00ecn th\u1ea5y suy ngh\u0129, s\u1ef1 quan t\u00e2m v\u00e0 th\u1eddi gian m\u00e0 B\u00e1c s\u0129 Hanley \u0111\u00e3 d\u00e0nh cho cu\u1ed9c tr\u00f2 chuy\u1ec7n \u0111\u1ea7u ti\u00ean \u0111\u00f3, ch\u00fang t\u00f4i th\u1ea5y \u0111\u01b0\u1ee3c tri\u1ebft l\u00fd ch\u0103m s\u00f3c m\u00e0 to\u00e0n b\u1ed9 \u0111\u1ed9i ng\u0169 \u0111ang theo \u0111u\u1ed5i.\u201d<\/p>\n

Hanley gi\u1edbi thi\u1ec7u c\u1eb7p \u0111\u00f4i n\u00e0y v\u1edbi Ti\u1ebfn s\u0129 Stanton Perry v\u00e0 Ti\u1ebfn s\u0129 Lynn Peng, nh\u1eefng ng\u01b0\u1eddi \u0111\u1ee9ng \u0111\u1ea7u ch\u01b0\u01a1ng tr\u00ecnh th\u00f4ng tim can thi\u1ec7p. C\u00e1c b\u00e1c s\u0129 khuy\u1ebfn ngh\u1ecb Hassan n\u00ean th\u1ef1c hi\u1ec7n nong van tim b\u1eb1ng b\u00f3ng, bao g\u1ed3m vi\u1ec7c \u0111\u01b0a m\u1ed9t \u1ed1ng th\u00f4ng nh\u1ecf ch\u1ee9a m\u1ed9t qu\u1ea3 b\u00f3ng c\u00f3 th\u1ec3 gi\u00e3n n\u1edf v\u00e0o tim v\u00e0 b\u00ean trong van tim h\u1eb9p. B\u00f3ng \u0111\u01b0\u1ee3c b\u01a1m c\u0103ng \u0111\u1ec3 l\u00e0m gi\u00e3n van tim.<\/p>\n

Ph\u01b0\u01a1ng ph\u00e1p n\u00e0y \u0111\u00e3 hi\u1ec7u qu\u1ea3! Hi\u1ec7n t\u1ea1i, Kate m\u00f4 t\u1ea3 Hassan l\u00e0 m\u1ed9t c\u1eadu b\u00e9 2 tu\u1ed5i n\u0103ng \u0111\u1ed9ng, th\u00edch x\u00e2y nh\u00e0 "c\u00f4ng phu" cho \u00f4 t\u00f4 v\u00e0 xe \u0111\u00e0o b\u1eb1ng g\u1ea1ch Magna-Tiles, v\u00e0 l\u00e0m b\u00e1nh qu\u1ebf v\u00e0o cu\u1ed1i tu\u1ea7n v\u1edbi hai ch\u1ecb g\u00e1i Samira, 4 tu\u1ed5i, v\u00e0 Ameena, 5 tu\u1ed5i, t\u1ea1i nh\u00e0 ri\u00eang \u1edf Bay Area.<\/p>\n

V\u00ec t\u00ecnh tr\u1ea1ng c\u1ee7a b\u00e9 khi\u1ebfn b\u00e9 c\u00f3 nguy c\u01a1 ch\u1eadm ph\u00e1t tri\u1ec3n, Hassan \u0111\u00e3 \u0111\u01b0\u1ee3c gi\u1edbi thi\u1ec7u v\u00e0 \u0111\u0103ng k\u00fd v\u00e0o Ph\u00f2ng kh\u00e1m Nhi khoa Ph\u00e1t tri\u1ec3n v\u00e0 H\u00e0nh vi c\u1ee7a B\u1ec7nh vi\u1ec7n Nhi Packard. B\u00e9 \u0111\u00e3 t\u1ed1t nghi\u1ec7p ch\u01b0\u01a1ng tr\u00ecnh v\u00e0o th\u00e1ng 3 sau khi \u0111\u00e1p \u1ee9ng t\u1ea5t c\u1ea3 c\u00e1c ti\u00eau chu\u1ea9n.<\/p>\n

M\u1ed9t ho\u1ea1t \u0111\u1ed9ng kh\u00e1c, nh\u01b0ng khi n\u00e0o?<\/h3>\n

Hassan v\u1eabn \u0111\u1ebfn b\u1ec7nh vi\u1ec7n c\u1ee7a ch\u00fang t\u00f4i t\u00e1m tu\u1ea7n m\u1ed9t l\u1ea7n \u0111\u1ec3 si\u00eau \u00e2m tim v\u1edbi b\u00e1c s\u0129 Michelle Kaplinski. Mohamad n\u00f3i \u0111\u00f9a r\u1eb1ng Kaplinski l\u00e0 ng\u01b0\u1eddi duy nh\u1ea5t ngo\u00e0i gia \u0111\u00ecnh m\u00e0 Hassan g\u1eb7p k\u1ec3 t\u1eeb khi \u0111\u1ea1i d\u1ecbch b\u1eaft \u0111\u1ea7u.<\/p>\n

\u201cCh\u00fang t\u00f4i li\u00ean t\u1ee5c theo d\u00f5i. Ch\u00fang t\u00f4i ngh\u0129 r\u1eb1ng m\u1ed9t n\u0103m kh\u00f4ng ph\u1eabu thu\u1eadt n\u1eefa \u0111\u00e3 l\u00e0 m\u1ed9t th\u00e0nh c\u00f4ng l\u1edbn. Gi\u1edd \u0111\u00e3 hai n\u0103m r\u1ed3i,\u201d Kate n\u00f3i. \u201cPh\u1eabu thu\u1eadt \u0111\u1ea7u ti\u00ean di\u1ec5n ra r\u1ea5t t\u1ed1t.\u201d<\/p>\n

V\u00e0 \u0111i\u1ec1u \u0111\u00f3 gi\u00fap Hassan c\u00f3 th\u00eam th\u1eddi gian tr\u01b0\u1edbc khi c\u1ea7n thay van tim ho\u00e0n to\u00e0n. "T\u00f4i nh\u1edb b\u00e1c s\u0129 Hanley \u0111\u00e3 n\u00f3i r\u1eb1ng n\u1ebfu ch\u00fang t\u00f4i thay van tim b\u00e2y gi\u1edd, n\u00f3 s\u1ebd l\u00e0 van tim l\u1ee3n. Khi Hassan tr\u01b0\u1edfng th\u00e0nh ho\u00e0n to\u00e0n v\u00e0 ch\u00fang t\u00f4i thay van l\u1ea7n cu\u1ed1i, n\u00f3 s\u1ebd \u0111\u01b0\u1ee3c in 3D", Kate n\u00f3i. "T\u00f4i nh\u1eadn ra r\u1eb1ng r\u1ea5t nhi\u1ec1u th\u1ee9 s\u1ebd thay \u0111\u1ed5i t\u1eeb b\u00e2y gi\u1edd \u0111\u1ebfn khi Hassan 18 tu\u1ed5i. \u0110i\u1ec1u \u0111\u00f3 khi\u1ebfn t\u00f4i c\u1ea3m th\u1ea5y \u0111\u01b0\u1ee3c an \u1ee7i v\u00e0 hy v\u1ecdng - nh\u01b0 th\u1ec3 \u0111\u00e2y l\u00e0 m\u1ed9t v\u1ea5n \u0111\u1ec1 c\u00f3 th\u1ec3 gi\u1ea3i quy\u1ebft \u0111\u01b0\u1ee3c."<\/p>\n

Gi\u00fap \u0111\u1ee1 nh\u1eefng \u0111\u1ee9a tr\u1ebb nh\u01b0 Hassan<\/h3>\n

Vi\u1ec7c in 3D m\u00f4 n\u1ed9i t\u1ea1ng v\u00e0 c\u00e1c c\u00f4ng ngh\u1ec7 ti\u00ean ti\u1ebfn kh\u00e1c \u0111\u00e3 v\u00e0 \u0111ang \u0111\u01b0\u1ee3c tri\u1ec3n khai t\u1ea1i Stanford, nh\u01b0 m\u1ed9t ph\u1ea7n c\u1ee7a s\u00e1ng ki\u1ebfn Khoa h\u1ecdc v\u00e0 K\u1ef9 thu\u1eadt C\u01a1 b\u1ea3n (BASE) m\u1edbi. C\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u t\u1ea1i BASE \u0111ang n\u1ed7 l\u1ef1c t\u00ecm ra ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb c\u00e1c d\u1ecb t\u1eadt tim b\u1ea9m sinh nguy hi\u1ec3m \u0111\u1ebfn t\u00ednh m\u1ea1ng nh\u01b0 b\u1ec7nh c\u1ee7a Hassan, v\u00e0 \u0111i\u1ec1u n\u00e0y \u0111\u00e3 th\u00f4i th\u00fac gia \u0111\u00ecnh Makhzoumi quy\u00ean g\u00f3p \u0111\u1ec3 th\u00fac \u0111\u1ea9y c\u00f4ng tr\u00ecnh \u0111\u1ea7y h\u1ee9a h\u1eb9n n\u00e0y.<\/p>\n

Qu\u1ef9 Makhzoumi d\u00e0nh cho \u0110\u1ed5i m\u1edbi BASE s\u1ebd h\u1ed7 tr\u1ee3 m\u1ed9t nh\u00f3m nghi\u00ean c\u1ee9u li\u00ean ng\u00e0nh l\u00e0m vi\u1ec7c c\u00f9ng nhau \u0111\u1ec3 x\u00e1c \u0111\u1ecbnh xem \u0111\u1ed9t bi\u1ebfn gen c\u00f3 g\u00e2y suy gi\u1ea3m ch\u1ee9c n\u0103ng van tim hay kh\u00f4ng. N\u1ebfu c\u00f3, h\u1ecd s\u1ebd n\u1ed7 l\u1ef1c \u0111i\u1ec1u ch\u1ec9nh \u0111\u1ed9t bi\u1ebfn ho\u1eb7c t\u1ea1o \u0111i\u1ec1u ki\u1ec7n cho s\u1ef1 ph\u00e1t tri\u1ec3n van tim b\u1ecb c\u1ea3n tr\u1edf b\u1edfi \u0111\u1ed9t bi\u1ebfn.<\/p>\n

Mohamad cho bi\u1ebft: \u201cCh\u00fang t\u00f4i mu\u1ed1n th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u v\u00e0 \u0111\u1ed5i m\u1edbi, \u0111\u1ed3ng th\u1eddi \u0111\u1ea3m b\u1ea3o r\u1eb1ng b\u1ea5t k\u1ef3 gia \u0111\u00ecnh n\u00e0o \u1edf trong ho\u00e0n c\u1ea3nh c\u1ee7a ch\u00fang t\u00f4i \u0111\u1ec1u c\u00f3 th\u1ec3 nh\u1eadn \u0111\u01b0\u1ee3c s\u1ef1 ch\u0103m s\u00f3c t\u01b0\u01a1ng t\u1ef1 nh\u01b0 ch\u00fang t\u00f4i \u0111\u00e3 nh\u1eadn \u0111\u01b0\u1ee3c\u201d.<\/p>\n

B\u00e0i vi\u1ebft n\u00e0y ban \u0111\u1ea7u xu\u1ea5t hi\u1ec7n trong \u1ea5n b\u1ea3n M\u00f9a h\u00e8 n\u0103m 2021 c\u1ee7a\u00a0Tin t\u1ee9c tr\u1ebb em Packard.<\/a><\/em><\/p>","protected":false},"excerpt":{"rendered":"

Gia \u0111\u00ecnh Makhzoumi \u0111\u00e3 ch\u1ecdn B\u1ec7nh vi\u1ec7n Nhi Packard \u0111\u1ec3 ch\u0103m s\u00f3c con trai v\u00e0 h\u1ed7 tr\u1ee3 t\u1eeb thi\u1ec7n. Kate v\u00e0 Mohamad Makhzoumi cho bi\u1ebft h\u1ecd c\u1ea3m th\u1ea5y v\u1eeba "s\u1ed1c...<\/p>","protected":false},"author":17,"featured_media":17733,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[21,148,22],"class_list":["post-4210","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-donor-stories","category-in-the-news","category-patient-stories"],"acf":[],"yoast_head":"\nA High-Stakes Decision - Lucile Packard Foundation for Children's Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/lpfch.org\/vi\/impact-stories\/a-high-stakes-decision\/\" \/>\n<meta property=\"og:locale\" content=\"vi_VN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"A High-Stakes Decision\" \/>\n<meta property=\"og:description\" content=\"The Makhzoumi family chose Packard Children\u2019s for their son\u2019s care and their philanthropic support. 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