{"id":4342,"date":"2023-06-26T17:46:07","date_gmt":"2023-06-26T17:46:07","guid":{"rendered":"https:\/\/lpfch.org\/preschooler-spreads-joy-after-fetal-surgery-for-spina-bifida\/"},"modified":"2025-07-15T23:43:49","modified_gmt":"2025-07-15T23:43:49","slug":"preschooler-spreads-joy-after-fetal-surgery-for-spina-bifida","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/preschooler-spreads-joy-after-fetal-surgery-for-spina-bifida\/","title":{"rendered":"B\u00e9 m\u1eabu gi\u00e1o vui m\u1eebng sau ca ph\u1eabu thu\u1eadt ch\u1eefa b\u1ec7nh n\u1ee9t \u0111\u1ed1t s\u1ed1ng \u1edf thai nhi"},"content":{"rendered":"

Khi Yair Blumenfeld, Ti\u1ebfn s\u0129 Y khoa, m\u1ed9t chuy\u00ean gia y khoa v\u1ec1 m\u1eb9 v\u00e0 thai nhi, nh\u1eadn \u0111\u01b0\u1ee3c tin nh\u1eafn k\u00e8m \u1ea3nh ho\u1eb7c video c\u1ee7a Iliana, 4 tu\u1ed5i, \u0111ang c\u01b0\u1eddi \u0111\u00f9a, \u0111i l\u1ea1i v\u00e0 t\u1eadn h\u01b0\u1edfng cu\u1ed9c s\u1ed1ng, \u00f4ng \u0111\u00e3 chia s\u1ebb n\u00f3 v\u1edbi c\u00e1c \u0111\u1ed3ng nghi\u1ec7p c\u1ee7a m\u00ecnh t\u1eeb Ch\u01b0\u01a1ng tr\u00ecnh S\u1ee9c kh\u1ecfe Thai nhi v\u00e0 Thai k\u1ef3 t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi \u0111\u1ed3ng Lucile Packard Stanford, nh\u1eefng ng\u01b0\u1eddi \u0111\u00e3 gi\u00fap t\u1ea5t c\u1ea3 tr\u1edf n\u00ean kh\u1ea3 thi. \u0110i\u1ec1u \u0111\u00f3 l\u00e0m cho ng\u00e0y c\u1ee7a m\u1ecdi ng\u01b0\u1eddi tr\u1edf n\u00ean \u00fd ngh\u0129a. K\u1ec3 t\u1eeb khi Iliana \u0111\u01b0\u1ee3c ph\u1eabu thu\u1eadt thai nhi, c\u00f4 b\u00e9 \u0111\u00e3 v\u01b0\u1ee3t qua nh\u1eefng kh\u00f3 kh\u0103n th\u01b0\u1eddng \u0111i k\u00e8m v\u1edbi d\u1ea1ng t\u1eadt n\u1ee9t \u0111\u1ed1t s\u1ed1ng nghi\u00eam tr\u1ecdng c\u1ee7a m\u00ecnh.<\/p>\n

\u0110i xa<\/h3>\n

M\u1eb9 c\u1ee7a Iliana, Helisabed, \u0111\u00e3 v\u00f4 c\u00f9ng v\u1ecb tha khi r\u1eddi kh\u1ecfi nh\u00e0 \u1edf Nam California, tr\u1ea3i qua ca ph\u1eabu thu\u1eadt t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard, r\u1ed3i \u1edf l\u1ea1i g\u1ea7n b\u1ec7nh vi\u1ec7n t\u1ea1i Nh\u00e0 Ronald McDonald \u1edf Stanford trong nhi\u1ec1u th\u00e1ng tr\u01b0\u1edbc v\u00e0 sau khi sinh. H\u00f4m nay, c\u00f4 v\u00f4 c\u00f9ng vui m\u1eebng v\u00ec \u0111i\u1ec1u \u0111\u00f3.<\/p>\n

Helisabed cho bi\u1ebft: \u201cT\u00f4i \u0111\u00e3 c\u00f3 c\u01a1 h\u1ed9i mang \u0111\u1ebfn cho con m\u00ecnh m\u1ed9t c\u01a1 h\u1ed9i t\u1ed1t h\u01a1n trong cu\u1ed9c s\u1ed1ng v\u00e0 t\u00f4i \u0111\u00e3 n\u1eafm b\u1eaft c\u01a1 h\u1ed9i \u0111\u00f3\u201d.<\/p>\n

Ch\u1ec9 m\u1edbi 22 tu\u1ea7n thai, c\u00f4 ph\u00e1t hi\u1ec7n em b\u00e9 \u0111ang ph\u00e1t tri\u1ec3n c\u1ee7a m\u00ecnh m\u1eafc ph\u1ea3i d\u1ea1ng t\u1eadt n\u1ee9t \u0111\u1ed1t s\u1ed1ng nghi\u00eam tr\u1ecdng nh\u1ea5t, \u0111\u01b0\u1ee3c g\u1ecdi l\u00e0 tho\u00e1t v\u1ecb t\u1ee7y s\u1ed1ng. V\u1edbi t\u1eadt n\u1ee9t \u0111\u1ed1t s\u1ed1ng \u1edf thai nhi, t\u1ee7y s\u1ed1ng, hay \u1ed1ng th\u1ea7n kinh, kh\u00f4ng \u0111\u00f3ng ho\u00e0n to\u00e0n, v\u00e0 tho\u00e1t v\u1ecb qua x\u01b0\u01a1ng s\u1ed1ng v\u00e0o khoang \u1ed1i. M\u1ed9t t\u1ee7y s\u1ed1ng nguy\u00ean v\u1eb9n l\u00e0 r\u1ea5t quan tr\u1ecdng cho s\u1ef1 v\u1eadn \u0111\u1ed9ng, ch\u1ee9c n\u0103ng c\u01a1 th\u1ec3 v\u00e0 s\u1ee9c kh\u1ecfe n\u00e3o b\u1ed9.<\/p>\n

Helisabed bi\u1ebft r\u1eb1ng B\u1ec7nh vi\u1ec7n Nhi Packard c\u00f3 th\u1ec3 th\u1ef1c hi\u1ec7n m\u1ed9t ca ph\u1eabu thu\u1eadt trong t\u1eed cung ti\u00ean ti\u1ebfn \u0111\u1ec3 c\u1ee9u con c\u00f4 kh\u1ecfi nh\u1eefng h\u1ea1n ch\u1ebf nghi\u00eam tr\u1ecdng v\u1ec1 sau, v\u00e0 ca ph\u1eabu thu\u1eadt n\u00e0y \u0111\u00e3 \u0111\u01b0\u1ee3c ch\u1ee9ng minh l\u00e0 th\u00e0nh c\u00f4ng trong m\u1ed9t th\u1eed nghi\u1ec7m l\u00e2m s\u00e0ng qu\u1ed1c gia mang t\u00ean Nghi\u00ean c\u1ee9u Qu\u1ea3n l\u00fd Tho\u00e1t v\u1ecb t\u1ee7y s\u1ed1ng (MOMS). C\u00f4 \u0111\u00e3 tr\u1ea3i qua m\u1ed9t qu\u00e1 tr\u00ecnh nghi\u00eam ng\u1eb7t \u0111\u1ec3 \u0111\u1ee7 \u0111i\u1ec1u ki\u1ec7n v\u00ec kh\u00f4ng ph\u1ea3i b\u00e0 m\u1eb9 n\u00e0o v\u00e0 thai nhi n\u00e0o c\u0169ng c\u00f3 th\u1ec3 tham gia. Khi \u0111\u01b0\u1ee3c \u0111\u1ec1 ngh\u1ecb ph\u1eabu thu\u1eadt, c\u00f4 \u0111\u00e3 kh\u00f4ng ng\u1ea7n ng\u1ea1i.<\/p>\n

B\u00e1c s\u0129 ph\u1eabu thu\u1eadt th\u1ea7n kinh Kelly Mahaney, MD cho bi\u1ebft: "C\u00f4 \u1ea5y \u0111\u00e3 ch\u1ea5p nh\u1eadn r\u1ee7i ro \u0111\u1ec3 c\u00f3 c\u01a1 h\u1ed9i mang l\u1ea1i l\u1ee3i \u00edch cho em b\u00e9".<\/p>\n

L\u1ef1a ch\u1ecdn c\u00f2n l\u1ea1i l\u00e0 \u0111\u1ee3i \u0111\u1ebfn khi Iliana ch\u00e0o \u0111\u1eddi r\u1ed3i ph\u1eabu thu\u1eadt \u0111\u00f3ng t\u1ee7y s\u1ed1ng c\u1ee7a b\u00e9.<\/p>\n

Mahaney cho bi\u1ebft: \u201cKhi t\u1ee7y s\u1ed1ng b\u1ecb h\u1edf, nguy c\u01a1 vi\u00eam m\u00e0ng n\u00e3o s\u1ebd t\u0103ng cao, m\u1ed9t t\u00ecnh tr\u1ea1ng nguy hi\u1ec3m \u0111\u1ebfn t\u00ednh m\u1ea1ng. \u0110\u00f3 l\u00e0 l\u00fd do t\u1ea1i sao khi th\u1ef1c hi\u1ec7n ph\u1eabu thu\u1eadt s\u1eeda ch\u1eefa khi\u1ebfm khuy\u1ebft \u1ed1ng th\u1ea7n kinh truy\u1ec1n th\u1ed1ng, ch\u00fang t\u00f4i th\u01b0\u1eddng th\u1ef1c hi\u1ec7n m\u1ed9t ho\u1eb7c hai ng\u00e0y sau khi em b\u00e9 ch\u00e0o \u0111\u1eddi\u201d.<\/p>\n

Ph\u1eabu thu\u1eadt thai nhi \u0111\u00e3 mang l\u1ea1i nh\u1eefng k\u1ebft qu\u1ea3 \u0111\u00e1ng ch\u00fa \u00fd. N\u00f3 \u0111\u00f2i h\u1ecfi ph\u1ea3i m\u1edf b\u1ee5ng m\u1eb9, r\u00fat n\u01b0\u1edbc \u1ed1i ra kh\u1ecfi t\u1eed cung v\u00e0 \u0111\u1eb7t thai nhi sao cho c\u1ed9t s\u1ed1ng nh\u1ecf b\u00e9 c\u1ee7a thai nhi h\u01b0\u1edbng v\u1ec1 ph\u00eda b\u00e1c s\u0129 ph\u1eabu thu\u1eadt th\u1ea7n kinh. Sau \u0111\u00f3, c\u00e1c b\u00e1c s\u0129 ph\u1eabu thu\u1eadt \u0111\u00f3ng khuy\u1ebft t\u1eadt t\u1ee7y s\u1ed1ng, thay th\u1ebf n\u01b0\u1edbc \u1ed1i v\u00e0 kh\u00e2u c\u00e1c m\u0169i kh\u00e2u \u0111\u1eb7c bi\u1ec7t \u0111\u1ec3 t\u1ea1o ra m\u1ed9t l\u1edbp ni\u00eam phong k\u00edn n\u01b0\u1edbc cho t\u1eed cung tr\u01b0\u1edbc khi \u0111\u00f3ng b\u1ee5ng m\u1eb9.<\/p>\n

Theo Vi\u1ec7n Qu\u1ed1c gia v\u1ec1 R\u1ed1i lo\u1ea1n Th\u1ea7n kinh v\u00e0 \u0110\u1ed9t qu\u1ef5, ph\u1ea7n l\u1edbn tr\u1ebb s\u01a1 sinh m\u1eafc ch\u1ee9ng tho\u00e1t v\u1ecb t\u1ee7y s\u1ed1ng c\u1ea7n \u0111\u1eb7t shunt \u0111\u1ec3 li\u00ean t\u1ee5c d\u1eabn l\u01b0u d\u1ecbch n\u00e3o, v\u00e0 h\u1ea7u h\u1ebft \u0111\u1ec1u b\u1ecb y\u1ebfu ch\u00e2n, thay \u0111\u1ed5i c\u1ea5u tr\u00fac n\u00e3o v\u00e0 r\u1ed1i lo\u1ea1n ch\u1ee9c n\u0103ng b\u00e0ng quang v\u00e0 ru\u1ed9t. Trong khi Iliana c\u1ea7n n\u1eb9p ch\u00e2n \u0111\u1ec3 \u0111i l\u1ea1i v\u00e0 \u0111\u1eb7t \u1ed1ng th\u00f4ng \u0111\u1ec3 d\u1eabn l\u01b0u b\u00e0ng quang, n\u00e3o v\u00e0 ru\u1ed9t c\u1ee7a b\u00e9 v\u1eabn ho\u1ea1t \u0111\u1ed9ng b\u00ecnh th\u01b0\u1eddng. V\u00e0 b\u00e9 ch\u01b0a bao gi\u1edd c\u1ea7n \u0111\u1eb7t shunt.<\/p>\n

\u201cCon b\u00e9 ph\u1ea3i \u0111eo n\u1eb9p ch\u00e2n v\u00ec b\u00e0n ch\u00e2n n\u00f3 h\u01b0\u1edbng v\u00e0o trong, nh\u01b0ng n\u00f3 v\u1eabn ch\u1ea1y \u0111\u01b0\u1ee3c. Gi\u00e1o vi\u00ean ph\u1ea3i y\u00eau c\u1ea7u n\u00f3 ch\u1ea1y ch\u1eadm l\u1ea1i. H\u01a1n n\u1eefa, n\u00f3 r\u1ea5t th\u00f4ng minh. N\u00f3 r\u1ea5t th\u00edch \u0111i h\u1ecdc,\u201d Helisabed n\u00f3i.<\/p>\n

Iliana c\u0169ng r\u1ea5t th\u00edch s\u00e2n ch\u01a1i. Con b\u00e9 lao ngay v\u00e0o v\u00e0 th\u1eed th\u00e1ch b\u1ea3n th\u00e2n b\u1eb1ng c\u00e1ch leo c\u1ea7u thang v\u00e0 tr\u01b0\u1ee3t l\u00ean xu\u1ed1ng c\u1ea7u tr\u01b0\u1ee3t. "Con b\u00e9 lu\u00f4n t\u00ecm \u0111\u01b0\u1ee3c c\u00e1ch \u0111\u1ec3 l\u00e0m \u0111\u01b0\u1ee3c t\u1ea5t c\u1ea3. Ngay c\u1ea3 khi ph\u1ea3i ng\u1ed3i b\u1ec7t xu\u1ed1ng \u0111\u1ea5t \u0111\u1ec3 leo l\u00ean c\u1ea7u thang, con b\u00e9 v\u1eabn l\u00e0m \u0111\u01b0\u1ee3c", Helisabed n\u00f3i.<\/p>\n

Khi Helisabed \u0111\u01b0a Iliana \u0111\u1ebfn ph\u00f2ng kh\u00e1m t\u1eadt n\u1ee9t \u0111\u1ed1t s\u1ed1ng \u1edf Qu\u1eadn Cam, California \u0111\u1ec3 v\u1eadt l\u00fd tr\u1ecb li\u1ec7u, c\u00f4 b\u00e9 r\u1eddi \u0111i v\u1edbi c\u1ea3m gi\u00e1c v\u00f4 c\u00f9ng bi\u1ebft \u01a1n c\u00e1c b\u00e1c s\u0129 t\u1ea1i B\u1ec7nh vi\u1ec7n Nhi Packard v\u00e0 t\u1ef1 h\u00e0o v\u1ec1 b\u1ea3n th\u00e2n v\u00ec \u0111\u00e3 tr\u1ea3i qua ca ph\u1eabu thu\u1eadt thai nhi.<\/p>\n

\u201cC\u00f3 nh\u1eefng \u0111\u1ee9a tr\u1ebb ph\u1ea3i ng\u1ed3i xe l\u0103n v\u00e0 c\u00f3 nh\u1eefng \u0111\u1ee9a tr\u1ebb b\u1ecb shunt. T\u00f4i kh\u00f4ng th\u1ec3 t\u01b0\u1edfng t\u01b0\u1ee3ng n\u1ed5i nh\u1eefng b\u00e0 m\u1eb9 \u0111\u00f3 l\u00e0m th\u1ebf n\u00e0o,\u201d c\u00f4 n\u00f3i. \u201cIliana \u0111\u00e3 c\u00f3 k\u1ebft qu\u1ea3 tuy\u1ec7t v\u1eddi.\u201d<\/p>\n

K\u1ebft qu\u1ea3 c\u1ee7a Iliana t\u01b0\u01a1ng \u0111\u01b0\u01a1ng ho\u1eb7c t\u1ed1t h\u01a1n so v\u1edbi k\u1ebft qu\u1ea3 chung c\u1ee7a nghi\u00ean c\u1ee9u MOMS, trong \u0111\u00f3 kho\u1ea3ng 40% tr\u1ebb s\u01a1 sinh \u0111\u01b0\u1ee3c ph\u1eabu thu\u1eadt tr\u01b0\u1edbc sinh c\u1ea7n \u0111\u1eb7t shunt, so v\u1edbi kho\u1ea3ng 80% tr\u1ebb s\u01a1 sinh \u0111\u01b0\u1ee3c ph\u1eabu thu\u1eadt \u0111\u00f3ng t\u1ee7y s\u1ed1ng sau khi sinh. Nghi\u00ean c\u1ee9u MOMS \u0111\u00e3 th\u00e0nh c\u00f4ng \u0111\u1ebfn m\u1ee9c k\u1ebft th\u00fac s\u1edbm, \u0111i\u1ec1u hi\u1ebfm khi x\u1ea3y ra.<\/p>\n

Trong khi ph\u1eabu thu\u1eadt thai nhi \u0111\u01b0\u1ee3c th\u1ef1c hi\u1ec7n t\u1ea1i m\u1ed9t s\u1ed1 b\u1ec7nh vi\u1ec7n ngo\u00e0i B\u1ec7nh vi\u1ec7n Nhi Packard, Stanford l\u00e0 m\u1ed9t trong s\u1ed1 \u00edt n\u01a1i t\u1ea1i Hoa K\u1ef3 cung c\u1ea5p d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c chuy\u00ean m\u00f4n song song cho c\u1ea3 tr\u1ebb s\u01a1 sinh v\u00e0 b\u00e0 m\u1eb9.<\/p>\n

Tr\u1ebb em b\u1ecb t\u1eadt n\u1ee9t \u0111\u1ed1t s\u1ed1ng th\u01b0\u1eddng c\u1ea7n \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c su\u1ed1t \u0111\u1eddi \u0111\u1ec3 \u0111\u1ea1t \u0111\u01b0\u1ee3c c\u00e1c m\u1ed1c ph\u00e1t tri\u1ec3n v\u00e0 duy tr\u00ec c\u00e1c ch\u1ee9c n\u0103ng c\u01a1 th\u1ec3. \u0110\u00f3 l\u00e0 l\u00fd do t\u1ea1i sao Iliana \u0111\u1ebfn g\u1eb7p b\u00e1c s\u0129 t\u1ea1i qu\u00ea nh\u00e0 \u0111\u1ec3 gi\u00fap con \u0111i l\u1ea1i \u0111\u00fang h\u01b0\u1edbng. Con c\u0169ng nh\u1eadn \u0111\u01b0\u1ee3c m\u1ed9t s\u1ed1 h\u1ed7 tr\u1ee3 \u1edf tr\u01b0\u1eddng. Khi Iliana c\u00f2n nh\u1ecf, Helisabed \u0111\u00e3 \u0111\u01b0a con \u0111\u1ebfn Ph\u00f2ng kh\u00e1m N\u1ee9t \u0111\u1ed1t s\u1ed1ng c\u1ee7a \u0110\u1ea1i h\u1ecdc Stanford, nh\u01b0ng vi\u1ec7c \u1edf l\u1ea1i \u0111\u00f3 l\u00e0 kh\u00f4ng kh\u1ea3 thi v\u00ec nh\u00e0 con c\u00e1ch xa v\u00e0i gi\u1edd. Tuy nhi\u00ean, con hi\u1ec3u \u0111\u01b0\u1ee3c s\u1ee9c m\u1ea1nh c\u1ee7a vi\u1ec7c Iliana \u0111\u01b0\u1ee3c ch\u0103m s\u00f3c li\u00ean t\u1ee5c.<\/p>\n

"Con b\u00e9 l\u00e0 m\u1ed9t trong nh\u1eefng \u0111\u1ee9a tr\u1ebb th\u00f4ng minh v\u00e0 h\u1ea1nh ph\u00fac nh\u1ea5t m\u00e0 b\u1ea1n t\u1eebng g\u1eb7p," Helisabed n\u00f3i. "Con b\u00e9 khi\u1ebfn m\u1ecdi ng\u01b0\u1eddi ng\u1ea1c nhi\u00ean v\u00ec s\u1ef1 ti\u1ebfn b\u1ed9 v\u01b0\u1ee3t b\u1eadc c\u1ee7a m\u00ecnh."<\/p>\n

Blumenfeld v\u00f4 c\u00f9ng vui m\u1eebng. \u00d4ng mong ch\u1edd \u0111\u01b0\u1ee3c xem \u1ea3nh c\u1ee7a Iliana trong nhi\u1ec1u n\u0103m t\u1edbi khi c\u00f4 b\u00e9 l\u1edbn l\u00ean. "Th\u1eadt l\u00e0 m\u1ed9t \u0111\u1eb7c \u00e2n v\u00e0 vinh d\u1ef1 khi bi\u1ebft r\u1eb1ng ch\u00fang t\u00f4i \u0111\u00e3 c\u00f3 th\u1ec3 thay \u0111\u1ed5i cu\u1ed9c \u0111\u1eddi con b\u00e9 m\u1ed9t c\u00e1ch ngo\u1ea1n m\u1ee5c", \u00f4ng n\u00f3i.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

Khi Yair Blumenfeld, Ti\u1ebfn s\u0129 Y khoa, m\u1ed9t chuy\u00ean gia y khoa v\u1ec1 m\u1eb9 v\u00e0 thai nhi, nh\u1eadn \u0111\u01b0\u1ee3c tin nh\u1eafn c\u00f3 \u1ea3nh ho\u1eb7c video v\u1ec1 Iliana, 4 tu\u1ed5i, \u0111ang c\u01b0\u1eddi, \u0111i l\u1ea1i v\u00e0 t\u1eadn h\u01b0\u1edfng\u2026<\/p>","protected":false},"author":17,"featured_media":15601,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[148,22],"class_list":["post-4342","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-in-the-news","category-patient-stories"],"acf":[],"yoast_head":"\nPreschooler Spreads Joy After Fetal Surgery for Spina Bifida - 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