{"id":4348,"date":"2023-06-26T18:22:14","date_gmt":"2023-06-26T18:22:14","guid":{"rendered":"https:\/\/lpfch.org\/thank-you-notes-summer-2023-2\/"},"modified":"2025-07-15T23:35:15","modified_gmt":"2025-07-15T23:35:15","slug":"thank-you-notes-summer-2023","status":"publish","type":"post","link":"https:\/\/lpfch.org\/vi\/impact-stories\/thank-you-notes-summer-2023\/","title":{"rendered":"L\u1eddi c\u1ea3m \u01a1n"},"content":{"rendered":"

T\u1ed5 ch\u1ee9c t\u1eeb thi\u1ec7n Alfred E Mann th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u y h\u1ecdc c\u00f3 t\u00e1c \u0111\u1ed9ng<\/h3>\n

Alfred Mann, m\u1ed9t nh\u00e0 v\u1eadt l\u00fd, doanh nh\u00e2n, nh\u00e0 ph\u00e1t minh v\u00e0 nh\u00e0 t\u1eeb thi\u1ec7n, \u0111\u00e3 c\u1ed1ng hi\u1ebfn c\u1ea3 cu\u1ed9c \u0111\u1eddi v\u00e0 t\u00e0i s\u1ea3n c\u1ee7a m\u00ecnh cho s\u1ef1 ph\u00e1t tri\u1ec3n khoa h\u1ecdc, gi\u00fap con ng\u01b0\u1eddi s\u1ed1ng t\u1ed1t h\u01a1n v\u00e0 l\u00e2u h\u01a1n. T\u1ed5 ch\u1ee9c t\u1eeb thi\u1ec7n Alfred E. Mann ti\u1ebfp t\u1ee5c k\u1ebf th\u1eeba di s\u1ea3n c\u1ee7a \u00f4ng b\u1eb1ng c\u00e1ch th\u00fac \u0111\u1ea9y s\u1ee9c kh\u1ecfe v\u00e0 nh\u00e2n \u0111\u1ea1o th\u00f4ng qua khoa h\u1ecdc v\u00e0 y h\u1ecdc.<\/p>\n

\u201cN\u1ebfu kh\u00f4ng c\u00f3 ho\u1ea1t \u0111\u1ed9ng t\u1eeb thi\u1ec7n, ch\u00fang ta s\u1ebd kh\u00f4ng th\u1ec3 d\u1eabn \u0111\u1ea7u th\u1ebf gi\u1edbi trong vi\u1ec7c t\u00ecm ra ph\u01b0\u01a1ng ph\u00e1p ch\u1eefa tr\u1ecb nhi\u1ec1u c\u0103n b\u1ec7nh t\u1eebng \u0111\u01b0\u1ee3c cho l\u00e0 nan y. Stanford l\u00e0 m\u1ed9t tr\u01b0\u1eddng \u0111\u1ea1i h\u1ecdc \u0111\u1eb3ng c\u1ea5p th\u1ebf gi\u1edbi, v\u00e0 ch\u00fang t\u00f4i t\u1ef1 h\u00e0o \u0111\u01b0\u1ee3c \u0111\u1ed3ng h\u00e0nh c\u00f9ng s\u1ee9 m\u1ec7nh th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u y h\u1ecdc c\u00f3 t\u00e1c \u0111\u1ed9ng m\u1ea1nh m\u1ebd\u201d, \u00f4ng Michael Dreyer, ch\u1ee7 t\u1ecbch c\u1ee7a T\u1ed5 ch\u1ee9c T\u1eeb thi\u1ec7n Alfred E. Mann, ph\u00e1t bi\u1ec3u.<\/p>\n

T\u1ed5 ch\u1ee9c t\u1eeb thi\u1ec7n Alfred E Mann g\u1ea7n \u0111\u00e2y \u0111\u00e3 trao t\u1eb7ng kho\u1ea3n ti\u1ec1n $6 tri\u1ec7u \u0111\u1ec3 h\u1ed7 tr\u1ee3 nghi\u00ean c\u1ee9u b\u1ec7nh tim b\u1ea9m sinh c\u1ee7a Ti\u1ebfn s\u0129 Casey Gifford; nghi\u00ean c\u1ee9u v\u1ec1 tr\u1ebb sinh non do Ti\u1ebfn s\u0129 Nima Aghaeepour \u0111\u1ee9ng \u0111\u1ea7u; nghi\u00ean c\u1ee9u v\u1ec1 ung th\u01b0 do Ti\u1ebfn s\u0129 Tanja Gruber \u0111\u1ee9ng \u0111\u1ea7u; v\u00e0 nghi\u00ean c\u1ee9u s\u1eed d\u1ee5ng m\u00f4 h\u00ecnh n\u00e3o do Ti\u1ebfn s\u0129 Sergiu Pasca \u0111\u1ee9ng \u0111\u1ea7u.<\/p>\n

V\u1edbi m\u00f3n qu\u00e0 n\u00e0y, c\u00e1c nh\u00e0 khoa h\u1ecdc Stanford hi\u1ec7n \u0111\u00e3 s\u1eb5n s\u00e0ng chuy\u1ec3n nh\u1eefng kh\u00e1m ph\u00e1 c\u1ee7a m\u00ecnh th\u00e0nh ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb cho nh\u1eefng b\u1ec7nh nh\u00e2n tr\u1ebb tu\u1ed5i b\u1ec7nh n\u1eb7ng nh\u1ea5t.<\/p>\n

\u201cM\u1eb7c d\u00f9 khoa h\u1ecdc y t\u1ebf \u0111\u00e3 ph\u00e1t tri\u1ec3n v\u01b0\u1ee3t b\u1eadc trong v\u00e0i th\u1eadp k\u1ef7 qua, ch\u00fang t\u00f4i tin r\u1eb1ng v\u1eabn c\u00f2n v\u00f4 s\u1ed1 kh\u00e1m ph\u00e1 \u00fd ngh\u0129a h\u01a1n n\u1eefa \u1edf ph\u00eda tr\u01b0\u1edbc\u201d, Anoosheh Bostani, \u0111\u1ed3ng l\u00e3nh \u0111\u1ea1o c\u1ee7a T\u1ed5 ch\u1ee9c T\u1eeb thi\u1ec7n Alfred E. Mann, cho bi\u1ebft. \u201cCh\u00fang t\u00f4i mong mu\u1ed1n h\u1ed7 tr\u1ee3 nh\u1eefng ng\u01b0\u1eddi t\u1eadn t\u00e2m, d\u1eabn \u0111\u1ea7u trong c\u00e1c l\u0129nh v\u1ef1c n\u00e0y \u0111\u1ea1t \u0111\u01b0\u1ee3c m\u1ee5c ti\u00eau c\u1ee7a h\u1ecd b\u1eb1ng c\u00e1ch h\u1ed7 tr\u1ee3 cung c\u1ea5p \u0111\u1ee7 kinh ph\u00ed \u0111\u1ec3 h\u1ecd th\u1ef1c hi\u1ec7n.\u201d<\/p>\n

C\u1ea3m \u01a1n t\u1ed5 ch\u1ee9c t\u1eeb thi\u1ec7n Alfred E Mann \u0111\u00e3 h\u1ed7 tr\u1ee3 c\u00f4ng vi\u1ec7c c\u1ee7a c\u00e1c nh\u00e0 nghi\u00ean c\u1ee9u t\u1ea1i Stanford, gi\u00fap h\u1ecd t\u00ecm ra nh\u1eefng kh\u00e1m ph\u00e1 v\u00e0 ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb m\u1edbi.<\/p>\n

Gi\u00fap thanh thi\u1ebfu ni\u00ean an to\u00e0n khi ti\u1ebfp x\u00fac v\u1edbi ma t\u00fay<\/h3>\n

Ch\u00fang t\u00f4i xin ch\u00e2n th\u00e0nh c\u1ea3m \u01a1n Qu\u1ef9 William G. Nash v\u00ec \u0111\u00e3 t\u00e0i tr\u1ee3 cho Ph\u00f2ng th\u00ed nghi\u1ec7m REACH Halpern-Felsher t\u1ea1i \u0110\u1ea1i h\u1ecdc Stanford. Ph\u00f2ng th\u00ed nghi\u1ec7m REACH, do Ti\u1ebfn s\u0129 Bonnie Halpern-Felsher, FSAHM, s\u00e1ng l\u1eadp v\u00e0 \u0111i\u1ec1u h\u00e0nh, t\u1eadp trung v\u00e0o vi\u1ec7c t\u00ecm hi\u1ec3u v\u00e0 gi\u1ea3m thi\u1ec3u t\u00ecnh tr\u1ea1ng s\u1eed d\u1ee5ng ch\u1ea5t g\u00e2y nghi\u1ec7n \u1edf thanh thi\u1ebfu ni\u00ean v\u00e0 ng\u01b0\u1eddi tr\u01b0\u1edfng th\u00e0nh tr\u1ebb tu\u1ed5i\u2014bao g\u1ed3m thu\u1ed1c l\u00e1, thu\u1ed1c l\u00e1 \u0111i\u1ec7n t\u1eed, c\u1ea7n sa v\u00e0 r\u01b0\u1ee3u\u2014c\u00f9ng nhi\u1ec1u h\u00e0nh vi nguy c\u01a1 kh\u00e1c.<\/p>\n

M\u00f3n qu\u00e0 t\u1eeb Qu\u1ef9 William G. Nash s\u1ebd gi\u00fap Ph\u00f2ng th\u00ed nghi\u1ec7m REACH c\u1eadp nh\u1eadt v\u00e0 ph\u00e2n ph\u1ed1i Safety First, ch\u01b0\u01a1ng tr\u00ecnh gi\u00e1o d\u1ee5c v\u1ec1 ma t\u00fay to\u00e0n di\u1ec7n \u0111\u1ea7u ti\u00ean tr\u00ean to\u00e0n qu\u1ed1c, t\u1eadp trung v\u00e0o gi\u1ea3m t\u00e1c h\u1ea1i, d\u00e0nh cho h\u1ecdc sinh trung h\u1ecdc.<\/p>\n

\u201cGi\u1edd \u0111\u00e2y, h\u01a1n bao gi\u1edd h\u1ebft, thanh thi\u1ebfu ni\u00ean c\u1ea7n \u0111\u01b0\u1ee3c gi\u00e1o d\u1ee5c v\u1ec1 gi\u1ea3m thi\u1ec3u t\u00e1c h\u1ea1i c\u1ee7a ma t\u00fay, t\u01b0 duy ph\u1ea3n bi\u1ec7n v\u00e0 k\u1ef9 n\u0103ng truy\u1ec1n th\u00f4ng \u0111\u1ec3 \u0111\u01b0a ra quy\u1ebft \u0111\u1ecbnh v\u00e0 gi\u1eef an to\u00e0n cho b\u1ea3n th\u00e2n c\u0169ng nh\u01b0 nh\u1eefng ng\u01b0\u1eddi kh\u00e1c khi ti\u1ebfp x\u00fac v\u1edbi r\u01b0\u1ee3u bia v\u00e0 c\u00e1c lo\u1ea1i ma t\u00fay kh\u00e1c\u201d, Kristin Nash, Th\u1ea1c s\u0129 Y t\u1ebf C\u00f4ng c\u1ed9ng, Gi\u00e1m \u0111\u1ed1c \u0110i\u1ec1u h\u00e0nh Qu\u1ef9 William G. Nash, cho bi\u1ebft. \u201c\u0110\u00f3 l\u00e0 l\u00fd do t\u1ea1i sao ch\u00fang t\u00f4i r\u1ea5t vui m\u1eebng \u0111\u01b0\u1ee3c h\u1ed7 tr\u1ee3 Stanford trong vi\u1ec7c c\u1eadp nh\u1eadt v\u00e0 ph\u1ed5 bi\u1ebfn ch\u01b0\u01a1ng tr\u00ecnh gi\u1ea3ng d\u1ea1y An to\u00e0n l\u00e0 tr\u00ean h\u1ebft.\u201d<\/p>\n

Gia \u0111\u00ecnh v\u00e0 b\u1ea1n b\u00e8 tham gia cu\u1ed9c h\u00e0nh tr\u00ecnh g\u00e2y qu\u1ef9 cho nghi\u00ean c\u1ee9u ALD<\/h3>\n

M\u00f9a h\u00e8 n\u0103m ngo\u00e1i, gia \u0111\u00ecnh Anderson \u0111\u00e3 t\u1ed5 ch\u1ee9c m\u1ed9t bu\u1ed5i g\u00e2y qu\u1ef9 \u0111\u1ec3 t\u01b0\u1edfng nh\u1edb con trai Ben \u201cCole\u201d, ng\u01b0\u1eddi \u0111\u00e3 m\u1ea5t v\u00ec b\u1ec7nh tho\u00e1i h\u00f3a ch\u1ea5t tr\u1eafng th\u01b0\u1ee3ng th\u1eadn (ALD) v\u00e0o n\u0103m 2020. H\u1ecd \u0111\u00e3 t\u1eadp h\u1ee3p c\u00e1c th\u00e0nh vi\u00ean c\u1ee7a Ph\u00f2ng th\u00ed nghi\u1ec7m Van Haren t\u1ea1i Stanford, c\u0169ng nh\u01b0 b\u1ea1n b\u00e8 v\u00e0 gia \u0111\u00ecnh, cho chuy\u1ebfn \u0111i b\u1ed9 \u0111\u01b0\u1eddng d\u00e0i th\u01b0\u1eddng ni\u00ean l\u1ea7n th\u1ee9 hai l\u00ean \u0111\u1ec9nh n\u00fai Rose cao 3.280 m\u00e9t t\u1ea1i H\u1ed3 Tahoe. H\u1ecd \u0111\u1eb7t t\u00ean cho chuy\u1ebfn leo n\u00fai c\u1ee7a m\u00ecnh l\u00e0 Th\u1eed th\u00e1ch \u201cH\u00e3y l\u00e0 Chi\u1ebfn binh\u201d.<\/p>\n

H\u01a1n 100 ng\u01b0\u1eddi \u0111i b\u1ed9 \u0111\u01b0\u1eddng d\u00e0i \u1edf m\u1ecdi tr\u00ecnh \u0111\u1ed9 \u0111\u00e3 tham gia, gi\u00fap gia \u0111\u00ecnh Anderson quy\u00ean g\u00f3p \u0111\u01b0\u1ee3c g\u1ea7n $40.000 \u0111\u1ec3 h\u1ed7 tr\u1ee3 ph\u00f2ng th\u00ed nghi\u1ec7m n\u01a1i Ti\u1ebfn s\u0129 Keith Van Haren v\u00e0 nh\u00f3m c\u1ee7a \u00f4ng \u0111ang nghi\u00ean c\u1ee9u ALD, m\u1ed9t c\u0103n b\u1ec7nh di truy\u1ec1n nguy hi\u1ec3m ch\u1ee7 y\u1ebfu \u1ea3nh h\u01b0\u1edfng \u0111\u1ebfn tr\u1ebb em trai.<\/p>\n

\u201cTrong su\u1ed1t cu\u1ed9c chi\u1ebfn ch\u1ed1ng l\u1ea1i ALD c\u1ee7a Ben, ch\u00fang t\u00f4i \u0111\u00e3 c\u1ea3m nh\u1eadn \u0111\u01b0\u1ee3c s\u1ef1 bao dung v\u00e0 r\u1ed9ng l\u01b0\u1ee3ng v\u00f4 b\u1edd b\u1ebfn t\u1eeb c\u1ed9ng \u0111\u1ed3ng \u1edf Reno v\u00e0 nhi\u1ec1u n\u01a1i kh\u00e1c,\u201d Katie Anderson, m\u1eb9 c\u1ee7a Ben, chia s\u1ebb. \u201cCh\u00fang t\u00f4i nh\u1eadn ra r\u1eb1ng vi\u1ec7c chuy\u1ec3n h\u01b0\u1edbng n\u0103ng l\u01b0\u1ee3ng \u0111\u00f3 sang nghi\u00ean c\u1ee9u v\u1ec1 ALD l\u00e0 c\u00e1ch ph\u00f9 h\u1ee3p nh\u1ea5t \u0111\u1ec3 ch\u1ed1ng l\u1ea1i c\u0103n b\u1ec7nh hi\u1ec3m ngh\u00e8o n\u00e0y. Ch\u00fang t\u00f4i v\u00f4 c\u00f9ng vinh d\u1ef1 khi \u0111\u01b0\u1ee3c h\u1ed7 tr\u1ee3 Ph\u00f2ng th\u00ed nghi\u1ec7m Van Haren trong c\u00f4ng cu\u1ed9c nghi\u00ean c\u1ee9u c\u1ee7a h\u1ecd.\u201d<\/p>\n

C\u1ea3m \u01a1n gia \u0111\u00ecnh Anderson \u0111\u00e3 \u1ee7ng h\u1ed9 n\u1ed7 l\u1ef1c t\u00ecm ra ph\u01b0\u01a1ng ph\u00e1p \u0111i\u1ec1u tr\u1ecb t\u1ed1t h\u01a1n v\u00e0 c\u00f3 kh\u1ea3 n\u0103ng ch\u1eefa kh\u1ecfi b\u1ec7nh ALD.<\/p>\n

N\u1ebfu b\u1ea1n mu\u1ed1n tham gia c\u00f9ng h\u1ecd, Th\u1eed th\u00e1ch \u201cH\u00e3y l\u00e0 chi\u1ebfn binh\u201d ti\u1ebfp theo s\u1ebd di\u1ec5n ra v\u00e0o ng\u00e0y 23 th\u00e1ng 8. T\u00ecm hi\u1ec3u th\u00eam t\u1ea1i bewarrior.org.<\/a>\u00a0<\/em><\/p>\n

Gi\u00fap ch\u1ea5m d\u1ee9t t\u00ecnh tr\u1ea1ng t\u1eed vong \u1edf b\u00e0 m\u1eb9<\/h3>\n

Hoa K\u1ef3 c\u00f3 t\u1ef7 l\u1ec7 m\u1eafc b\u1ec7nh v\u00e0 t\u1eed vong \u1edf s\u1ea3n ph\u1ee5 cao nh\u1ea5t trong s\u1ed1 c\u00e1c n\u01b0\u1edbc ph\u00e1t tri\u1ec3n. Theo CDC, m\u1ed9t ph\u1ea7n ba s\u1ed1 ca t\u1eed vong \u1edf s\u1ea3n ph\u1ee5 x\u1ea3y ra sau khi xu\u1ea5t vi\u1ec7n. Ph\u1ee5 n\u1eef da \u0111en c\u00f3 nguy c\u01a1 t\u1eed vong cao nh\u1ea5t trong giai \u0111o\u1ea1n n\u00e0y.<\/p>\n

\u0110\u1ec3 \u1ee9ng ph\u00f3, California \u0111\u00e3 th\u00f4ng qua lu\u1eadt k\u00e9o d\u00e0i th\u1eddi gian ch\u0103m s\u00f3c sau sinh l\u00ean \u0111\u1ebfn m\u1ed9t n\u0103m cho t\u1ea5t c\u1ea3 c\u00e1c b\u00e0 m\u1eb9 \u0111\u01b0\u1ee3c Medi-Cal chi tr\u1ea3. H\u1ed9i \u0111\u1ed3ng H\u1ee3p t\u00e1c Ch\u0103m s\u00f3c Ch\u1ea5t l\u01b0\u1ee3ng S\u1ea3n ph\u1ee5 California (CMQCC), m\u1ed9t t\u1ed5 ch\u1ee9c \u0111a b\u00ean c\u00f3 tr\u1ee5 s\u1edf t\u1ea1i Tr\u01b0\u1eddng Y Stanford, \u0111\u00e3 v\u00e0o cu\u1ed9c \u0111\u1ec3 cung c\u1ea5p h\u01b0\u1edbng d\u1eabn v\u1ec1 c\u00e1ch th\u1ee9c tri\u1ec3n khai d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c sau sinh to\u00e0n di\u1ec7n t\u1ed1t nh\u1ea5t.<\/p>\n

Ti\u1ebfn s\u0129 Jeffrey Gould, Th\u1ea1c s\u0129 Y t\u1ebf C\u00f4ng c\u1ed9ng, nh\u00e0 nghi\u00ean c\u1ee9u ch\u00ednh c\u1ee7a CMQCC cho bi\u1ebft: \u201cS\u1ef1 thay \u0111\u1ed5i l\u1edbn v\u1ec1 ph\u1ea1m vi b\u1ea3o hi\u1ec3m n\u00e0y l\u00e0 c\u01a1 h\u1ed9i \u0111\u1ec3 t\u00e1i \u0111\u1ecbnh h\u00ecnh l\u1ea1i d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c to\u00e0n di\u1ec7n c\u1ea7n thi\u1ebft trong m\u1ed9t n\u0103m sau sinh \u0111\u1ec3 \u0111\u1ea3m b\u1ea3o t\u1ea5t c\u1ea3 ph\u1ee5 n\u1eef sau sinh \u0111\u1ec1u nh\u1eadn \u0111\u01b0\u1ee3c d\u1ecbch v\u1ee5 ch\u0103m s\u00f3c hi\u1ec7u qu\u1ea3\u201d.<\/p>\n

Merck g\u1ea7n \u0111\u00e2y \u0111\u00e3 quy\u00ean g\u00f3p $200.000 \u0111\u1ec3 h\u1ed7 tr\u1ee3 c\u00f4ng vi\u1ec7c c\u1ee7a CMQCC trong vi\u1ec7c gi\u1ea3i quy\u1ebft v\u1ea5n \u0111\u1ec1 ch\u0103m s\u00f3c sau sinh, m\u1ed9t ph\u1ea7n c\u1ee7a s\u00e1ng ki\u1ebfn Merck for Mothers, nh\u1eb1m m\u1ee5c \u0111\u00edch ch\u1ea5m d\u1ee9t c\u00e1c ca t\u1eed vong m\u1eb9 c\u00f3 th\u1ec3 ph\u00f2ng ng\u1eeba tr\u00ean to\u00e0n th\u1ebf gi\u1edbi. Ch\u00fang t\u00f4i r\u1ea5t bi\u1ebft \u01a1n s\u1ef1 h\u1ed7 tr\u1ee3 c\u1ee7a Merck for Mothers cho c\u00f4ng vi\u1ec7c c\u1ee9u s\u1ed1ng quan tr\u1ecdng n\u00e0y.<\/p>\n

 <\/p>","protected":false},"excerpt":{"rendered":"

T\u1ed5 ch\u1ee9c t\u1eeb thi\u1ec7n Alfred E Mann th\u00fac \u0111\u1ea9y nghi\u00ean c\u1ee9u y h\u1ecdc c\u00f3 t\u00e1c \u0111\u1ed9ng Alfred Mann, m\u1ed9t nh\u00e0 v\u1eadt l\u00fd, doanh nh\u00e2n, nh\u00e0 ph\u00e1t minh v\u00e0 nh\u00e0 t\u1eeb thi\u1ec7n, \u0111\u00e3 c\u1ed1ng hi\u1ebfn cu\u1ed9c \u0111\u1eddi v\u00e0 t\u00e0i s\u1ea3n c\u1ee7a m\u00ecnh \u0111\u1ec3 th\u00fac \u0111\u1ea9y khoa h\u1ecdc\u2026<\/p>","protected":false},"author":17,"featured_media":15304,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[21,148],"class_list":["post-4348","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-donor-stories","category-in-the-news","health_topic-heart","health_topic-moms-babies","health_topic-pediatric-cancer"],"acf":[],"yoast_head":"\nThank You Notes - 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