{"id":22634,"date":"2025-12-09T15:26:03","date_gmt":"2025-12-09T23:26:03","guid":{"rendered":"https:\/\/lpfch.org\/?p=22634"},"modified":"2025-12-09T17:20:28","modified_gmt":"2025-12-10T01:20:28","slug":"2025-year-in-review","status":"publish","type":"post","link":"https:\/\/lpfch.org\/zh\/impact-stories\/2025-year-in-review\/","title":{"rendered":"2025\u5e74\u56de\u987e"},"content":{"rendered":"<p><a href=\"https:\/\/lpfch.org\/impact-stories\/donor-support-advances-new-treatment-for-eb-a-rare-and-painful-skin-disease\/'\" target=\"_blank\" rel=\"noopener\"><strong>\u5e0c\u671b\u88ab\u6cbb\u6108\uff1a\u5927\u75b1\u6027\u8868\u76ae\u677e\u89e3\u75c7\u7684\u57fa\u56e0\u6cbb\u7597\u53d6\u5f97\u7a81\u7834<\/strong><\/a><\/p>\n<figure class=\"no-caption\">\n<p><figure id=\"attachment_21463\" aria-describedby=\"caption-attachment-21463\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-21463 size-medium\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-300x297.png\" alt=\"\" width=\"300\" height=\"297\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-300x297.png 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-1024x1014.png 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-150x150.png 150w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481-768x760.png 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/07\/Charlotte-Brown_2-e1751401704481.png 1227w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-21463\" class=\"wp-caption-text\">\u590f\u6d1b\u7279\u00b7\u5e03\u6717\u53c2\u52a0\u4e86\u4e00\u9879\u57fa\u56e0\u5de5\u7a0b\u76ae\u80a4\u79fb\u690d\u8bd5\u9a8c\uff0c\u4ee5\u6cbb\u7597\u5979\u7f55\u89c1\u7684\u76ae\u80a4\u75c5\u3002<\/figcaption><\/figure><\/figure>\n<p>\u60a3\u6709\u75db\u82e6\u4e14\u5371\u53ca\u751f\u547d\u7684\u76ae\u80a4\u75be\u75c5\u2014\u2014\u5927\u75b1\u6027\u8868\u76ae\u677e\u89e3\u75c7 (EB) \u7684\u5bb6\u5ead\u8fce\u6765\u4e86\u65b0\u7684\u5e0c\u671b\uff1a\u4e00\u9879\u4e09\u671f\u4e34\u5e8a\u8bd5\u9a8c\u8868\u660e\uff0c\u57fa\u56e0\u6cbb\u7597\u76ae\u80a4\u79fb\u690d\u53ef\u4ee5\u663e\u8457\u6cbb\u6108 EB \u4f24\u53e3\u3002\u5e15\u5361\u5fb7\u513f\u7ae5\u533b\u9662\u662f\u5c11\u6570\u51e0\u5bb6\u83b7\u51c6\u5f00\u5c55\u8fd9\u9879\u7a81\u7834\u6027\u6cbb\u7597\u7684\u533b\u9662\u4e4b\u4e00\uff0c\u4e5f\u662f\u79d1\u7f57\u62c9\u591a\u5dde\u4ee5\u897f\u552f\u4e00\u4e00\u5bb6\u83b7\u51c6\u5f00\u5c55\u6b64\u9879\u6cbb\u7597\u7684\u533b\u9662\u3002\u8be5\u7597\u6cd5\u7531\u533b\u5b66\u535a\u58eb\u517c\u54f2\u5b66\u535a\u58eb Jean Tang \u9886\u5bfc\uff0c\u662f\u65af\u5766\u798f\u5927\u5b66\u6cbb\u6108\u4e0e\u786e\u8bca\u533b\u5b66\u4e2d\u5fc3\u9996\u4e2a\u83b7\u5f97 FDA \u6279\u51c6\u7684\u7597\u6cd5\uff0c\u5efa\u7acb\u5728\u8fc7\u53bb\u4e8c\u5341\u5e74\u7684\u521b\u65b0\u57fa\u7840\u4e0a\uff0c\u5e76\u4e3a\u6cbb\u7597\u5176\u4ed6\u5355\u57fa\u56e0\u75be\u75c5\uff08\u4f8b\u5982\u56ca\u6027\u7ea4\u7ef4\u5316\u3001\u9057\u4f20\u6027\u5fc3\u810f\u75c5\u548c\u795e\u7ecf\u7cfb\u7edf\u75be\u75c5\uff09\u94fa\u5e73\u4e86\u9053\u8def\u3002<\/p>\n<p><a href=\"https:\/\/news.stanford.edu\/stories\/2025\/06\/blood-vessels-3d-printed-heart-organs\" target=\"_blank\" rel=\"noopener\"><strong>\u79bb3D\u6253\u5370\u5fc3\u810f\u53c8\u8fd1\u4e86\u4e00\u6b65<\/strong><\/a><\/p>\n<figure id=\"attachment_22649\" aria-describedby=\"caption-attachment-22649\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-22649 size-medium\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-300x200.jpg 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-1024x683.jpg 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-768x512.jpg 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-1536x1025.jpg 1536w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-18x12.jpg 18w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-1440x960.jpg 1440w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5-575x384.jpg 575w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/20250313Mark-Skylar-Scott-4-resized-5.jpg 2000w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-22649\" class=\"wp-caption-text\">\u9a6c\u514b\u00b7\u65af\u51ef\u52d2-\u65af\u79d1\u7279\u535a\u58eb\u624b\u6301\u4e00\u4e2a\u75283D\u751f\u7269\u6253\u5370\u673a\u6253\u5370\u7684\u8840\u7ba1\u6811\u6a21\u578b\u3002\u7167\u7247\u7531\u5b89\u5fb7\u9c81\u00b7\u5e03\u7f57\u5fb7\u9ed1\u5fb7\u62cd\u6444\u3002<\/figcaption><\/figure>\n<p>\u65af\u5766\u798f\u5927\u5b66\u57fa\u7840\u79d1\u5b66\u4e0e\u5de5\u7a0b\uff08BASE\uff09\u8ba1\u5212\u7684\u827e\u8389\u68ee\u00b7\u9a6c\u65af\u767b\u535a\u58eb\u548c\u9a6c\u514b\u00b7\u65af\u51ef\u52d2-\u65af\u79d1\u7279\u535a\u58eb\u8ddd\u79bb\u5229\u7528\u513f\u7ae5\u81ea\u8eab\u5e72\u7ec6\u80de3D\u6253\u5370\u4eba\u7c7b\u5fc3\u810f\u53c8\u8fd1\u4e86\u4e00\u6b65\u2014\u2014\u8fd9\u5bf9\u4e8e\u60a3\u6709\u5371\u53ca\u751f\u547d\u7684\u5fc3\u810f\u75be\u75c5\u7684\u513f\u7ae5\u6765\u8bf4\u662f\u4e00\u9879\u53d8\u9769\u6027\u7684\u7a81\u7834\u3002\u4ed6\u4eec\u521b\u65b0\u7684\u8ba1\u7b97\u673a\u5efa\u6a21\u5de5\u5177\u80fd\u591f\u8bbe\u8ba1\u5e76\u6253\u5370\u201c\u8840\u7ba1\u6811\u201d\u2014\u2014\u7ef4\u6301\u6d3b\u4f53\u6253\u5370\u5668\u5b98\u6240\u9700\u7684\u590d\u6742\u8840\u7ba1\u7f51\u7edc\u2014\u2014\u4ece\u800c\u63cf\u7ed8\u51fa\u4e00\u4e2a\u4e0d\u518d\u6709\u5668\u5b98\u77ed\u7f3a\u3001\u6f2b\u957f\u7b49\u5f85\u540d\u5355\u548c\u6392\u5f02\u98ce\u9669\u7684\u672a\u6765\u3002<\/p>\n<p><a href=\"https:\/\/stanmed.stanford.edu\/immune-therapy-rare-pediatric-brain-tumors\/\"><strong>\u7ed9\u8111\u7624\u60a3\u513f\u5e26\u6765\u5e0c\u671b<\/strong><\/a><\/p>\n<figure id=\"attachment_22639\" aria-describedby=\"caption-attachment-22639\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-22639\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/570A5328-resized-300x200.jpg\" alt=\"Two female doctors stand side by side in a lab. Each is wearing a white lab coat.\" width=\"300\" height=\"200\" \/><figcaption id=\"caption-attachment-22639\" class=\"wp-caption-text\">\u514b\u91cc\u65af\u6258\u00b7\u9ea6\u8003\u5c14\u535a\u58eb\uff08\u5de6\uff09\u548c\u7c73\u6b47\u5c14\u00b7\u8499\u6770\u535a\u58eb\uff08\u53f3\uff09<\/figcaption><\/figure>\n<p>\u7531\u533b\u5b66\u535a\u58ebMichelle Monje\u548c\u533b\u5b66\u535a\u58ebCrystal Mackall\u5171\u540c\u7814\u53d1\u7684\u4e00\u79cd\u65b0\u578bCAR-T\u7ec6\u80de\u7597\u6cd5\uff0c\u5728\u6cbb\u7597\u513f\u7ae5\u5f25\u6f2b\u6027\u4e2d\u7ebf\u80f6\u8d28\u7624\u65b9\u9762\u5c55\u73b0\u51fa\u5de8\u5927\u6f5c\u529b\uff0c\u5176\u4e2d\u5305\u62ec\u6b64\u524d\u51e0\u4e4e\u65e0\u4e00\u5e78\u514d\u7684\u5f25\u6f2b\u6027\u5185\u751f\u6027\u8111\u6865\u80f6\u8d28\u7624\uff08DIPG\uff09\u3002\u5728\u4e00\u9879\u5c0f\u578b\u8bd5\u9a8c\u4e2d\uff0c9\u540d\u53d7\u8bd5\u8005\u7684\u884c\u8d70\u3001\u541e\u54bd\u548c\/\u6216\u8bf4\u8bdd\u80fd\u529b\u5747\u6709\u6240\u6539\u5584\u30024\u540d\u513f\u7ae5\u7684\u80bf\u7624\u7f29\u5c0f\u8d85\u8fc7\u4e00\u534a\uff0c\u5176\u4e2d1\u540d\u60a3\u8005\u5728\u786e\u8bca4\u5e74\u540e\u4ecd\u672a\u51fa\u73b0\u80bf\u7624\u590d\u53d1\u30022\u6708\u4efd\uff0c <a href=\"https:\/\/med.stanford.edu\/news\/topics\/stanford-medicine\/awards-honors\/2025\/02\/michelle-monje--md--phd.html\">\u8499\u6770\u535a\u58eb\u8363\u83b7\u8111\u5956<\/a>\u2014\u2014\u795e\u7ecf\u79d1\u5b66\u754c\u6700\u8d1f\u76db\u540d\u7684\u5956\u9879\u2014\u2014\u8868\u5f70\u5979\u5728 DIPG \u548c\u8fd9\u9879\u53ef\u80fd\u633d\u6551\u751f\u547d\u7684\u7597\u6cd5\u65b9\u9762\u7684\u5f00\u521b\u6027\u5de5\u4f5c\u3002<\/p>\n<p><a href=\"https:\/\/lpfch.org\/impact-stories\/thank-you-for-making-the-15th-annual-summer-scamper-unforgettable\/\" target=\"_blank\" rel=\"noopener\"><strong>2025\u5e74\u590f\u5b63\u72c2\u6b22\u8282\uff1a\u5e86\u795d\u793e\u533a\u548c\u513f\u7ae5\u5065\u5eb7<\/strong><\/a><\/p>\n<p>\u8fd13000\u540d\u53c2\u4e0e\u8005\u53c2\u52a0\u4e86\u6211\u4eec\u7b2c15\u5c4a\u5e74\u5ea6\u590f\u5b63\u8da3\u5473\u8dd1\u6d3b\u52a8\uff0c\u4e3a\u5e15\u5361\u5fb7\u513f\u7ae5\u533b\u9662\u4ee5\u53ca\u65af\u5766\u798f\u5927\u5b66\u533b\u5b66\u9662\u7684\u513f\u7ae5\u548c\u5b55\u4ea7\u5987\u5065\u5eb7\u9879\u76ee\u7b79\u96c6\u4e86\u521b\u7eaa\u5f55\u768493\u4e07\u7f8e\u5143\u5584\u6b3e\u3002\u81ea2011\u5e74\u4ee5\u6765\uff0c\u8fd9\u9879\u5145\u6ee1\u6b22\u4e50\u7684\u793e\u533a\u6d3b\u52a8\u5df2\u7b79\u96c6\u8d85\u8fc7700\u4e07\u7f8e\u5143\uff0c\u76f4\u63a5\u7528\u4e8e\u652f\u6301\u62ef\u6551\u751f\u547d\u7684\u533b\u7597\u62a4\u7406\u3001\u521b\u65b0\u7814\u7a76\u548c\u4ee5\u5bb6\u5ead\u4e3a\u4e2d\u5fc3\u7684\u5404\u9879\u670d\u52a1\u2014\u2014\u4ece\u513f\u7ae5\u751f\u6d3b\u4e13\u5bb6\u7684\u63a2\u8bbf\u5230\u63d0\u4f9b50\u591a\u79cd\u8bed\u8a00\u7684\u53e3\u8bd1\u670d\u52a1\u3002<\/p>\n<p><iframe loading=\"lazy\" title=\"\u65af\u5766\u798f\u5927\u5b66\u7b2c\u5341\u4e94\u5c4a\u5e74\u5ea6\u590f\u5b63\u77ed\u8dd15\u516c\u91cc\u8d5b\u66a8\u513f\u7ae5\u8da3\u5473\u8dd1\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/orB1VKtQSv8?start=47&#038;feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p><strong><u>\u5f00\u653e\u4e24\u4e2a\u6700\u5148\u8fdb\u7684\u62a4\u7406\u548c\u521b\u65b0\u7a7a\u95f4<\/u><\/strong><\/p>\n<figure id=\"attachment_18955\" aria-describedby=\"caption-attachment-18955\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-18955 size-medium\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-300x200.jpg 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-1024x683.jpg 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-768x512.jpg 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-1536x1024.jpg 1536w, https:\/\/lpfch.org\/wp-content\/uploads\/2024\/10\/NICU_MarlaAufmuth__MCA9898_jpg-2048x1365.jpg 2048w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-18955\" class=\"wp-caption-text\">\u5c0f\u5965\u65af\u6c40\u51fa\u751f\u65f6\u60a3\u6709\u975e\u5e38\u4e25\u91cd\u7684\u5148\u5929\u6027\u5fc3\u810f\u7f3a\u9677\uff0c\u5e76\u5728\u6211\u4eec\u533b\u9662\u7684\u65b0\u751f\u513f\u91cd\u75c7\u76d1\u62a4\u5ba4\u63a5\u53d7\u4e86\u4e00\u6bb5\u65f6\u95f4\u7684\u6cbb\u7597\u3002<\/figcaption><\/figure>\n<p>\u8fd9 <a href=\"https:\/\/lpfch.org\/impact-stories\/now-open-private-rooms-for-our-smallest-patients\/\" target=\"_blank\" rel=\"noopener\">Axe &amp; Blaise Wanstrath \u65b0\u751f\u513f\u91cd\u75c7\u76d1\u62a4\u5ba4<\/a> \u5e15\u5361\u5fb7\u513f\u7ae5\u533b\u9662\u9996\u4e2a\u914d\u5907\u5355\u4eba\u75c5\u623f\u7684\u65b0\u751f\u513f\u91cd\u75c7\u76d1\u62a4\u5ba4\uff08NICU\uff09\u4e8e2025\u5e74\u6625\u5b63\u542f\u7528\u3002\u65b0\u7684NICU\u73af\u5883\u66f4\u52a0\u5b89\u9759\uff0c\u53ef\u964d\u4f4e\u8106\u5f31\u5a74\u513f\u7684\u611f\u67d3\u98ce\u9669\uff0c\u7f29\u77ed\u4f4f\u9662\u65f6\u95f4\uff0c\u5e76\u63d0\u9ad8\u7236\u6bcd\u7684\u53c2\u4e0e\u5ea6\u3002\u5355\u4eba\u75c5\u623f\u4e5f\u65b9\u4fbf\u7236\u6bcd\u8fc7\u591c\u966a\u4f34\uff0c\u5e76\u4e3a\u533b\u7597\u56e2\u961f\u63d0\u4f9b\u7a7a\u95f4\uff0c\u4ee5\u4fbf\u5728\u5e8a\u65c1\u63d0\u4f9b\u5148\u8fdb\u7684\u6551\u751f\u62a4\u7406\u3002<\/p>\n<figure class=\"no-caption\">\n<p><figure id=\"attachment_22642\" aria-describedby=\"caption-attachment-22642\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"wp-image-22642 size-medium\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-300x200.jpg 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-1024x683.jpg 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-768x512.jpg 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-1536x1025.jpg 1536w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-2048x1366.jpg 2048w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-18x12.jpg 18w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-1440x960.jpg 1440w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/June_2025_Bass_Center_543x-resized-575x384.jpg 575w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><figcaption id=\"caption-attachment-22642\" class=\"wp-caption-text\">\u65b0\u7684\u5df4\u65af\u513f\u7ae5\u764c\u75c7\u548c\u8840\u6db2\u75be\u75c5\u4e2d\u5fc3\u95e8\u8bca\u90e8\u548c\u8f93\u6db2\u4e2d\u5fc3\u7684\u60a3\u8005\u53ef\u4ee5\u4eab\u53d7\u5230\u66f4\u73b0\u4ee3\u5316\u7684\u7a7a\u95f4\u3002<\/figcaption><\/figure><\/figure>\n<p>\u5e15\u5361\u5fb7\u513f\u7ae5\u7684\u65b0 <a href=\"https:\/\/lpfch.org\/impact-stories\/now-open-the-new-bass-center-clinic-and-infusion-center\/\">\u5df4\u65af\u4e2d\u5fc3\u8bca\u6240\u548c\u8f93\u6db2\u4e2d\u5fc3<\/a> \u8be5\u4e2d\u5fc3\u4e8e2025\u5e745\u6708\u542f\u7528\uff0c\u65e8\u5728\u4e3a\u513f\u7ae5\u53ca\u5176\u5bb6\u5ead\u63d0\u4f9b\u66f4\u8212\u9002\u3001\u66f4\u8f7b\u677e\u7684\u6cbb\u7597\u73af\u5883\uff0c\u5e76\u52a0\u5f3a\u611f\u67d3\u63a7\u5236\u3002\u5f97\u76ca\u4e8e\u6177\u6168\u6350\u52a9\u8005\u7684\u652f\u6301\uff0c\u8fd9\u5ea7\u73b0\u4ee3\u5316\u4e2d\u5fc3\u8bbe\u670915\u95f4\u79c1\u4eba\u8f93\u6db2\u5ba4\u548c14\u95f4\u68c0\u67e5\u5ba4\uff0c\u5728\u513f\u7ae5\u53ca\u5176\u5bb6\u5ead\u7684\u6cbb\u7597\u8fc7\u7a0b\u4e2d\uff0c\u4e3a\u4ed6\u4eec\u63d0\u4f9b\u79c1\u5bc6\u7a7a\u95f4\u4ee5\u53ca\u5145\u6ee1\u5173\u6000\u7684\u5c16\u7aef\u533b\u7597\u670d\u52a1\u3002<\/p>\n<figure class=\"no-caption\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-medium wp-image-22644\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-300x231.png\" alt=\"\" width=\"300\" height=\"231\" srcset=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-300x231.png 300w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-1024x789.png 1024w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-768x591.png 768w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-16x12.png 16w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543-575x443.png 575w, https:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/Screenshot-2025-12-09-164543.png 1392w\" sizes=\"auto, (max-width: 300px) 100vw, 300px\" \/><\/figure>\n<p><a href=\"https:\/\/www.stanfordchildrens.org\/content\/sch\/us\/en\/about\/government-community\/benefits-reports\" target=\"_blank\" rel=\"noopener\"><strong>\u6211\u4eec\u5bf9\u793e\u533a\u5065\u5eb7\u7684\u627f\u8bfa<\/strong><\/a><\/p>\n<p>\u6211\u4eec\u7684\u6350\u8d60\u4f19\u4f34\u5728\u786e\u4fdd\u513f\u7ae5\u3001\u6bcd\u4eb2\u548c\u5bb6\u5ead\u5728\u6700\u9700\u8981\u7684\u65f6\u5019\u83b7\u5f97\u6240\u9700\u62a4\u7406\u65b9\u9762\u53d1\u6325\u7740\u81f3\u5173\u91cd\u8981\u7684\u4f5c\u7528\u3002\u968f\u7740\u52a0\u5dde\u533b\u7597\u8865\u52a9\u8ba1\u5212 (Medi-Cal) \u548c\u8054\u90a6\u7814\u7a76\u7ecf\u8d39\u7684\u9884\u671f\u51cf\u5c11\uff0c\u7528\u4e8e\u652f\u6301\u5bcc\u6709\u540c\u60c5\u5fc3\u7684\u62a4\u7406\u3001\u7a81\u7834\u6027\u7814\u7a76\u548c\u521b\u65b0\u7597\u6cd5\u7684\u6148\u5584\u6350\u8d60\u6bd4\u4ee5\u5f80\u4efb\u4f55\u65f6\u5019\u90fd\u66f4\u52a0\u91cd\u8981\u3002 <em>\u9732\u897f\u5c14\u00b7\u5e15\u5361\u5fb7<\/em><em> \u513f\u7ae5\u57fa\u91d1\u4f1a<\/em> \u4e3a\u6211\u9662\u548c\u533b\u5b66\u9662\u7684\u9700\u6c42\u63d0\u4f9b\u7075\u6d3b\u7684\u652f\u6301\uff0c\u5305\u62ec\u4fdd\u9669\u672a\u6db5\u76d6\u7684\u91cd\u8981\u9879\u76ee\uff0c\u5e76\u6295\u8d44\u4e8e\u6539\u5584\u5065\u5eb7\u7ed3\u679c\u3001\u6269\u5927\u533b\u7597\u670d\u52a1\u8303\u56f4\u4ee5\u53ca\u89e3\u51b3\u5f71\u54cd\u6211\u4eec\u6240\u670d\u52a1\u793e\u533a\u798f\u7949\u7684\u66f4\u5e7f\u6cdb\u56e0\u7d20\u7684\u5408\u4f5c\u4f19\u4f34\u5173\u7cfb\u3002<\/p>\n<p><strong><u>\u63a8\u8fdb\u513f\u7ae5\u80be\u75c5\u7814\u7a76\u548c\u62a4\u7406<\/u><\/strong><\/p>\n<figure id=\"attachment_22055\" aria-describedby=\"caption-attachment-22055\" style=\"width: 300px\" class=\"wp-caption alignleft\"><img loading=\"lazy\" decoding=\"async\" class=\"size-medium wp-image-22055\" src=\"https:\/\/lpfch.org\/wp-content\/uploads\/2025\/09\/Richard_Lafayette_Sophia_Giang_Alice_Bertaina_Mary_Leonard_Paul_Grimm_Douglas-Peck-Photography-1-300x200.jpg\" alt=\"\" width=\"300\" height=\"200\" \/><figcaption id=\"caption-attachment-22055\" class=\"wp-caption-text\">\u4ece\u5de6\u5230\u53f3\uff1aRichard Lafayette \u535a\u58eb\u3001Sophia Giang \u535a\u58eb\u3001Alice Bertaina \u535a\u58eb\u3001Mary Leonard \u535a\u58eb\u548c Paul Grimm \u535a\u58eb<\/figcaption><\/figure>\n<p>\u4e00\u4e2a <a href=\"https:\/\/lpfch.org\/press-release\/15-million-gift-from-david-koch-jr-foundation\/\">\u6765\u81ea\u5927\u536b\u00b7\u79d1\u8d6b\u4e8c\u4e16\u57fa\u91d1\u4f1a\u7684$1500\u4e07\u7f8e\u5143\u6350\u8d60<\/a> \u65af\u5766\u798f\u5927\u5b66\u542f\u52a8\u80be\u810f\u5065\u5eb7\u521b\u65b0\u8ba1\u5212\uff0c\u65e8\u5728\u63a8\u8fdb\u7814\u7a76\u3001\u63d0\u5347\u4e34\u5e8a\u62a4\u7406\u6c34\u5e73\uff0c\u5e76\u6539\u5584\u513f\u7ae5\u548c\u9752\u5c11\u5e74\u7684\u80be\u810f\u5065\u5eb7\u72b6\u51b5\u3002\u8be5\u8ba1\u5212\u7684\u6838\u5fc3\u662f\u6234\u7ef4\u00b7\u79d1\u8d6b\u57fa\u91d1\u4f1a\u80be\u810f\u5065\u5eb7\u521b\u65b0\u5956\uff0c\u65e8\u5728\u63a8\u52a8\u8de8\u5b66\u79d1\u7814\u7a76\uff0c\u4ee5\u52a0\u6df1\u6211\u4eec\u5bf9\u80be\u810f\u75be\u75c5\u7684\u4e86\u89e3\u5e76\u5bfb\u627e\u65b0\u7684\u6cbb\u7597\u65b9\u6cd5\u3002\u5e15\u5361\u5fb7\u513f\u7ae5\u533b\u9662\u4f4d\u5217\u2026\u2026 <a href=\"https:\/\/www.stanfordchildrens.org\/en\/about\/news\/releases\/2025\/us-news.html\" target=\"_blank\" rel=\"noopener\">\u5168\u56fd\u6392\u540d\u524d\u5341\u7684\u513f\u79d1\u80be\u810f\u75c5\u5b66\u9879\u76ee<\/a>\u8be5\u533b\u9662\u8fdb\u884c\u7684\u80be\u79fb\u690d\u624b\u672f\u6570\u91cf\u6bd4\u7f8e\u56fd\u4efb\u4f55\u5176\u4ed6\u513f\u7ae5\u533b\u9662\u90fd\u591a\u2014\u2014\u4e00\u5e74\u548c\u4e09\u5e74\u7684\u5b58\u6d3b\u7387\u8fbe\u5230 100%\u3002<\/p>\n<p><strong>\u63a8\u52a8\u6211\u4eec\u6bcd\u5a74\u4e4b\u5bb6\u6301\u7eed\u73b0\u4ee3\u5316<\/strong><\/p>\n<p><a href=\"https:\/\/lpfch.org\/press-release\/25-million-gift-for-west-building\/\">\u5361\u7f57\u5c14\u548c\u5185\u5fb7\u00b7\u65af\u76ae\u514b\u7684 $25 \u767e\u4e07\u7f8e\u5143\u793c\u7269<\/a> \u5e15\u5361\u5fb7\u513f\u7ae5\u533b\u9662\u6b63\u5f15\u9886\u7740\u533b\u9662\u897f\u697c\u7684\u6301\u7eed\u6539\u9020\uff0c\u65e8\u5728\u4e3a\u60a3\u6709\u5065\u5eb7\u95ee\u9898\u7684\u5b55\u5987\u548c\u65b0\u751f\u513f\u63d0\u4f9b\u66f4\u4f18\u8d28\u7684\u533b\u7597\u670d\u52a1\u3002\u897f\u697c\u6539\u9020\u7684\u613f\u666f\u5305\u62ec\u914d\u5907\u6700\u5148\u8fdb\u7684\u4ea7\u623f\u3001\u5206\u5a29\u5ba4\u548c\u65b0\u751f\u513f\u91cd\u75c7\u76d1\u62a4\u5ba4\uff0c\u4ee5\u53ca\u5347\u7ea7\u6539\u9020\u540e\u7684\u65b0\u751f\u513f\u91cd\u75c7\u76d1\u62a4\u5ba4\uff08NICU\uff09\u3002\u6211\u4eec\u4ecd\u6709\u5f88\u591a\u673a\u4f1a\u53ef\u4ee5\u652f\u6301\u897f\u697c\u7684\u6539\u9020\u3002<\/p>\n<p><iframe loading=\"lazy\" title=\"\u65af\u5766\u798f\u5927\u5b66\u5362\u897f\u5c14\u00b7\u5e15\u5361\u5fb7\u513f\u7ae5\u533b\u9662\u7684\u201c\u660e\u65e5\u897f\u697c\u201d\" width=\"500\" height=\"281\" src=\"https:\/\/www.youtube.com\/embed\/rATmBCkYTGc?feature=oembed\" frameborder=\"0\" allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p>\u793e\u533a\u6148\u5584\u4e8b\u4e1a\u6b63\u5728\u6539\u53d8\u513f\u7ae5\u7684\u5065\u5eb7\u72b6\u51b5\uff0c\u6211\u4eec\u8877\u5fc3\u611f\u8c22\u60a8\u4eca\u5e74\u7684\u9f0e\u529b\u652f\u6301\uff0c\u4f7f\u8fd9\u4e9b\u4ee5\u53ca\u5176\u4ed6\u8bf8\u591a\u8fdb\u5c55\u6210\u4e3a\u53ef\u80fd\u3002\u671f\u5f85\u5728\u65b0\u7684\u4e00\u5e74\u91cc\u7ee7\u7eed\u53d6\u5f97\u66f4\u5927\u6210\u5c31\uff0c\u4ea7\u751f\u66f4\u6df1\u8fdc\u7684\u5f71\u54cd\uff01<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>\u5e0c\u671b\u4e0e\u6cbb\u6108\uff1a\u57fa\u56e0\u7597\u6cd5\u5728\u8868\u76ae\u677e\u89e3\u75c7\u6cbb\u7597\u4e2d\u53d6\u5f97\u7a81\u7834 \u53d7\u75db\u82e6\u4e14\u5371\u53ca\u751f\u547d\u7684\u76ae\u80a4\u75be\u75c5\u2014\u2014\u8868\u76ae\u677e\u89e3\u75c7 (EB) \u5f71\u54cd\u7684\u5bb6\u5ead\u8fce\u6765\u4e86\u65b0\u7684\u5e0c\u671b\uff1a\u4e00\u9879\u9636\u6bb5\u6027\u2026\u2026<\/p>","protected":false},"author":8,"featured_media":22639,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"categories":[21,22,164],"class_list":["post-22634","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-donor-stories","category-patient-stories","category-research","health_topic-heart","health_topic-moms-babies","health_topic-pediatric-cancer"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.3 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>2025 Year in Review - Lucile Packard Foundation for Children&#039;s Health<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"http:\/\/lpfch.org\/zh\/impact-stories\/2025-year-in-review\/\" \/>\n<meta property=\"og:locale\" content=\"zh_CN\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"2025 Year in Review\" \/>\n<meta property=\"og:description\" content=\"Hope, Healed: Gene Therapy Breakthrough for Epidermolysis Bullosa Families affected by a painful and life-limiting skin condition, epidermolysis bullosa (EB), have new hope: a phase...\" \/>\n<meta property=\"og:url\" content=\"http:\/\/lpfch.org\/zh\/impact-stories\/2025-year-in-review\/\" \/>\n<meta property=\"og:site_name\" content=\"Lucile Packard Foundation for Children&#039;s Health\" \/>\n<meta property=\"article:published_time\" content=\"2025-12-09T23:26:03+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2025-12-10T01:20:28+00:00\" \/>\n<meta property=\"og:image\" content=\"http:\/\/lpfch.org\/wp-content\/uploads\/2025\/12\/570A5328-resized-e1765396652128.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"1692\" \/>\n\t<meta property=\"og:image:height\" content=\"1154\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"author\" content=\"Jodi.Mouratis\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Jodi.Mouratis\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"6 minutes\" \/>\n<script type=\"application\/ld+json\" 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