{"id":3894,"date":"2017-06-08T16:42:27","date_gmt":"2017-06-08T16:42:27","guid":{"rendered":"https:\/\/lpfch.org\/mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back\/"},"modified":"2024-02-16T20:53:41","modified_gmt":"2024-02-16T20:53:41","slug":"mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back","status":"publish","type":"post","link":"https:\/\/lpfch.org\/zh\/impact-stories\/mycah-lost-her-4-year-old-daughter-to-dipg-now-shes-fighting-back\/","title":{"rendered":"\u7c73\u5361\u56e0DIPG\u5931\u53bb\u4e86\u59794\u5c81\u7684\u5973\u513f\u3002\u73b0\u5728\u5979\u6b63\u5728\u594b\u529b\u53cd\u6297\u3002"},"content":{"rendered":"

\u5f53\u6bcd\u4eb2\u7c73\u5361\u00b7\u514b\u83b1\u8499\u65af\uff08Mycah Clemons\uff09\u5931\u53bb\u5979\u552f\u4e00\u7684\u5973\u513f\u2014\u2014\u56db\u5c81\u7684\u6885\u4f0a\uff08Maiy\uff09\u65f6\uff0c\u5979\u60a3\u4e0a\u4e86\u5f25\u6f2b\u6027\u5185\u751f\u6027\u8111\u6865\u80f6\u8d28\u7624\uff08\u4e00\u79cd\u7f55\u89c1\u7684\u3001\u65e0\u6cd5\u624b\u672f\u7684\u8111\u7624\uff0c\u4e3b\u8981\u5f71\u54cd\u513f\u7ae5\uff09\u3002\u5979\u51b3\u5b9a\u91c7\u53d6\u884c\u52a8\u3002\u5979\u4e0d\u4ec5\u5c06\u5973\u513f\u7684\u80bf\u7624\u6350\u732e\u7ed9\u79d1\u5b66\u754c\uff0c\u73b0\u5728\u8fd8\u5728\u7b79\u96c6\u8d44\u91d1\uff0c\u652f\u6301\u533b\u5b66\u535a\u58eb\u7c73\u6b47\u5c14\u00b7\u8499\u8036\uff08Michelle Monje\uff09\u7684\u5f00\u521b\u6027\u7814\u7a76\uff0c\u5e0c\u671b\u627e\u5230\u6cbb\u6108\u65b9\u6cd5\u3002\u6700\u8fd1\uff0c\u5728\u62dc\u8bbf\u8499\u8036\u535a\u58eb\u7684\u5b9e\u9a8c\u5ba4\u65f6\uff0c\u7c73\u5361\u4e0e\u6211\u4eec\u5206\u4eab\u4e86\u6885\u4f0a\u5947\u8ff9\u80cc\u540e\u7684\u52b1\u5fd7\u6545\u4e8b\u3002<\/p>\n

\u60a8\u80fd\u5426\u5411\u6211\u4eec\u8bb2\u8ff0\u4e00\u4e0b Maiy \u7684\u6545\u4e8b\u4ee5\u53ca\u60a8\u662f\u5982\u4f55\u51b3\u5b9a\u652f\u6301 Packard Children\u2019s \u7684\uff1f<\/strong><\/p>\n

\u5145\u6ee1\u6d3b\u529b\u3001\u5584\u826f\u3001\u5584\u4e8e\u8868\u8fbe\uff0c\u8fd9\u4e9b\u8bcd\u8db3\u4ee5\u5f62\u5bb9 Maiyanna\u30022013 \u5e74 5 \u6708\uff0c\u5339\u5179\u5821\u513f\u7ae5\u533b\u9662\u5728\u5979\u7684\u8111\u5e72\u4e0a\u53d1\u73b0\u4e86\u4e00\u4e2a\u5de8\u5927\u7684 DIPG \u80bf\u7624\uff0c\u5f53\u65f6\u5979\u624d\u51fa\u751f\u4e09\u5e74\u3002\u6211\u4eec\u5f00\u59cb\u505a\u7814\u7a76\uff0c\u6539\u53d8\u4e86 Maiyanna \u7684\u996e\u98df\uff0c\u5e76\u53d1\u73b0\u65af\u5766\u798f\u9732\u897f\u5c14\u5e15\u5361\u5fb7\u513f\u7ae5\u533b\u9662\u7684 Michelle Monje \u535a\u58eb\u662f\u4e16\u754c\u4e0a\u9886\u5148\u7684 DIPG \u7814\u7a76\u4eba\u5458\u3002\u5f53\u6211\u6253\u7535\u8bdd\u7ed9 Monje \u535a\u58eb\u5bfb\u6c42\u5e2e\u52a9\u65f6\uff0c\u7535\u8bdd\u53e6\u4e00\u7aef\u5145\u6ee1\u6b49\u610f\u548c\u540c\u60c5\u7684\u58f0\u97f3\u544a\u8bc9\u6211\uff0c\u4e0d\u5e78\u7684\u662f\uff0c\u5979\u80fd\u63d0\u4f9b\u7684\u6cbb\u7597\u65b9\u6cd5\u5e76\u4e0d\u4e50\u89c2\u3002\u4f5c\u4e3a\u4e00\u4e2a\u6bcd\u4eb2\uff0c\u6211\u5b8c\u5168\u62d2\u7edd\u63a5\u53d7\u8fd9\u4e2a\u4e8b\u5b9e\uff0c\u5e76\u51b3\u5fc3\u8981\u201c\u6d3b\u201d\u4e0b\u6765\u9762\u5bf9 Maiyanna \u7684\u8bca\u65ad\u7ed3\u679c\u3002Maiy \u4ece\u672a\u4e3a\u5979\u7684\u75c5\u54ed\u8fc7\uff0c\u5373\u4f7f\u5728\u5979\u5931\u53bb\u4e86\u884c\u8d70\u548c\u4e0e\u670b\u53cb\u548c\u5bb6\u4eba\u73a9\u800d\u7684\u80fd\u529b\u4e4b\u540e\u3002\u6211\u4eec\u4ecd\u7136\u5fd9\u7740\u4eab\u53d7\u6709\u673a\u6297\u764c\u98df\u54c1\u3001\u53c2\u52a0\u9009\u7f8e\u6bd4\u8d5b\u3001\u53bb\u8fea\u65af\u5c3c\u4e50\u56ed\u65c5\u884c\u3001\u4e3e\u529e\u6d3e\u5bf9\u3001\u6d82\u6307\u7532\u548c\u626e\u6f14\u516c\u4e3b\u3002\u5f53\u6211\u6700\u7ec8\u63a5\u53d7 Maiyanna \u5373\u5c06\u79bb\u4e16\u7684\u73b0\u5b9e\u65f6\uff0c\u6211\u518d\u6b21\u6253\u7535\u8bdd\u7ed9 Monje \u533b\u751f\uff0c\u8be2\u95ee\u5979\u80bf\u7624\u6350\u8d60\u7684\u6d41\u7a0b\u30022014 \u5e74 4 \u6708 16 \u65e5\u665a\u4e0a\uff0c\u5e74\u4ec5 4 \u5c81\u7684 Maiyanna \u53bb\u4e16\u524d\uff0c\u6211\u8fd8\u6ca1\u6709\u63d0\u4ea4\u76f8\u5173\u6587\u4ef6\u3002\u6211\u6253\u7535\u8bdd\u7ed9 Maiyanna \u5f53\u5730\u7684\u533b\u751f\uff0c\u5b89\u6392 Maiyanna \u7684\u80bf\u7624\u6350\u8d60\u4e8b\u5b9c\uff0c\u7ed3\u679c\u4ed6\u4eec\u5374\u544a\u8bc9\u6211\u65e0\u6cd5\u5b8c\u6210\u3002\u4e8e\u662f\u6211\u6253\u7535\u8bdd\u7ed9 Monje \u533b\u751f\u7684\u529e\u516c\u5ba4\uff0c\u5979\u7acb\u5373\u56de\u590d\u4e86\u6211\uff0c\u786e\u4fdd Maiyanna \u7684\u80bf\u7624\u88ab\u5207\u9664\u3002\u81f3\u4eca\uff0c\u6211\u4ecd\u7136\u4e3a\u5979\u7684\u8f9b\u52e4\u5de5\u4f5c\u548c\u5c06\u4e0d\u53ef\u80fd\u53d8\u4e3a\u53ef\u80fd\u7684\u80fd\u529b\u800c\u611f\u5230\u8c26\u5351\u3002<\/p>\n

\u4f60\u80fd\u544a\u8bc9\u6211\u4f60\u7684\u7b79\u6b3e\u6d3b\u52a8\u5417\uff1f Maiy\u7684\u5947\u8ff9<\/a>?<\/strong><\/p>\n

Maiy's Miracle \u7684\u521d\u8877\u662f\u8ba9 Maiyanna \u5728 DIPG \u7684\u65c5\u7a0b\u4e2d\u62e5\u6709\u6700\u4f18\u8d28\u7684\u751f\u6d3b\u3002\u6211\u4eec\u786e\u4fdd\u5979\u4e0d\u7f3a\u4efb\u4f55\u4e1c\u897f\uff0c\u5e76\u4e14\u4e50\u4e8e\u4e0e\u4efb\u4f55\u60f3\u4e0e\u5979\u5171\u521b\u7f8e\u597d\u56de\u5fc6\u7684\u4eba\u5206\u4eab\u5979\u7684\u7ecf\u5386\u3002\u4e3a\u4e86\u8868\u8fbe\u5979\u5e0c\u671b Maiy's Miracle \u80fd\u591f\u5ef6\u7eed\u4e0b\u53bb\u7684\u613f\u671b\uff0c\u6211\u4eec\u73b0\u5728\u521b\u9020\u5404\u79cd\u4f53\u9a8c\u6765\u5e86\u795d Maiyanna \u7684\u751f\u547d\u548c\u5979\u7684 DIPG \u65c5\u7a0b\u30022017 \u5e74 5 \u6708 19 \u65e5\u548c 20 \u65e5\uff0c\u6211\u4eec\u4e3e\u529e\u4e86 Maiyanna \u8774\u8776\u70e7\u70e4\u548c\u5f69\u7ed8\u6d3e\u5bf9\u6765\u5e86\u795d Maiyanna \u7684\u786e\u8bca\u65e5\u671f\uff0c\u6d3e\u5bf9\u4ee5\u653e\u751f\u8774\u8776\u548c Maiyanna \u8774\u8776\u821e\u4f1a\u7ed3\u675f\uff0c\u6211\u4eec\u5728\u90a3\u91cc\u8fdb\u884c\u4e86 #Dance4DIPG\uff01\u6211\u4eec\u9080\u8bf7\u4eb2\u670b\u597d\u53cb\u8d2d\u4e70\u4e13\u5c5e\u8774\u8776\u76d2\uff0c\u6216\u6350\u6b3e\u53c2\u4e0e\u5f69\u7ed8\u548c\u79cd\u690d\u6d3b\u52a8\u3002\u6211\u4eec\u5728 MaiysMiracle.org \u4e0a\u51fa\u552e\u4e86 Maiyanna \u8774\u8776\u821e\u4f1a\u7684\u644a\u4f4d\uff0c\u6240\u6709\u6536\u76ca\u90fd\u5c06\u6350\u8d60\u7ed9 Maiyanna Marie Antoinette Clemons-McCarthy DIPG \u7814\u7a76\u751f\u5956\u5b66\u91d1\u3002<\/p>\n

\u60a8\u5e0c\u671b\u901a\u8fc7\u7b79\u6b3e\u6d3b\u52a8\/\u6d3b\u52a8\u5b9e\u73b0\u4ec0\u4e48\u76ee\u6807\uff1f<\/strong><\/p>\n

\u6211\u5e0c\u671b\u901a\u8fc7\u521b\u9020\u4e00\u79cd\u6bcf\u4e2a\u4eba\u90fd\u6c38\u751f\u96be\u5fd8\u7684\u4f53\u9a8c\uff0c\u6765\u63d0\u5347\u548c\u6fc0\u53d1\u4eba\u4eec\u5bf9 DIPG \u7684\u8ba4\u8bc6\u3002\u6211\u4e5f\u5e0c\u671b\u9f13\u52b1\u5176\u4ed6\u4eba\u7ee7\u7eed\u5e86\u795d\u751f\u6d3b\uff0c\u5e76\u5728\u56f0\u5883\u4e2d\u4fdd\u6301\u5e0c\u671b\u3002\u6211\u6700\u5e0c\u671b\u7684\u662f\uff0c\u901a\u8fc7 Maiyanna \u5956\u5b66\u91d1\uff0c\u8ba9 Maiy \u7684\u672c\u8d28\u7115\u53d1\u751f\u673a\uff0c\u5e76\u5206\u4eab DIPG \u7814\u7a76\u7684\u6700\u65b0\u8fdb\u5c55\uff0c\u6765\u652f\u6301 Maiy's Miracle \u7684\u52aa\u529b\uff0c\u4e3a 2018 \u5e74\u7684\u5956\u5b66\u91d1\u7b79\u96c6 $6,000 \u7f8e\u5143\u3002<\/p>\n

\u4f5c\u4e3a\u4e00\u540d\u6210\u529f\u7684\u513f\u7ae5\u7b79\u6b3e\u51a0\u519b\uff0c\u60a8\u4f1a\u7ed9\u5176\u4ed6\u6709\u5174\u8da3\u53d1\u8d77\u7b79\u6b3e\u6d3b\u52a8\u7684\u4eba\u63d0\u4f9b\u4ec0\u4e48\u5efa\u8bae\uff1f<\/strong><\/p>\n

\u9996\u5148\uff0c\u6211\u5f88\u8363\u5e78\u88ab\u8bc4\u4e3a\u201c\u6210\u529f\u7b79\u6b3e\u4eba\u201d\uff0c\u56e0\u4e3a\u6211\u771f\u5fc3\u5e0c\u671b\u901a\u8fc7\u8499\u8036\u5b9e\u9a8c\u5ba4\u4e3aDIPG\u7814\u7a76\u505a\u51fa\u66f4\u591a\u8d21\u732e\u3002\u6211\u9f13\u52b1\u90a3\u4e9b\u60f3\u8981\u53d1\u8d77\u7b79\u6b3e\u6d3b\u52a8\u7684\u4eba\u52c7\u6562\u884c\u52a8\u8d77\u6765\u3002\u8981\u77e5\u9053\uff0c\u8fd9\u5e76\u975e\u6613\u4e8b\uff0c\u9700\u8981\u4ed8\u51fa\u5927\u91cf\u52aa\u529b\uff0c\u6240\u4ee5\u8981\u52aa\u529b\u7ec4\u5efa\u4e00\u652f\u5f3a\u5927\u7684\u56e2\u961f\uff0c\u4f46\u4e5f\u8981\u660e\u767d\uff0c\u6ca1\u6709\u4eba\u4f1a\u50cf\u4f60\u4e00\u6837\u5145\u6ee1\u70ed\u60c5\u3002\u7406\u89e3\u4f60\u7b79\u6b3e\u7684\u201c\u539f\u56e0\u201d\uff0c\u5168\u8eab\u5fc3\u6295\u5165\uff0c\u5e76\u575a\u6301\u5230\u5e95\u3002\u4e0d\u8981\u82b1\u8d39\u592a\u591a\uff0c\u7cbe\u6253\u7ec6\u7b97\uff0c\u4e0d\u8981\u5bb3\u6015\u5f00\u53e3\u5bfb\u6c42\u4efb\u4f55\u4f60\u9700\u8981\u7684\u4e1c\u897f\u3002\u6bcf\u4e00\u7b14\u6350\u6b3e\u90fd\u5f88\u91cd\u8981\uff0c\u65e0\u8bba\u662f\u65f6\u95f4\u3001\u624d\u534e\u8fd8\u662f\u8d22\u5bcc\u2014\u2014\u53ea\u8981\u8bb0\u4f4f\u611f\u8c22\u90a3\u4e9b\u5e2e\u52a9\u8fc7\u4f60\u7684\u4eba\u3002\u8981\u7075\u6d3b\u53d8\u901a\uff0c\u6709\u6761\u7406\u3002\u5982\u679c\u76ee\u6807\u6ca1\u6709\u8fbe\u6210\uff0c\u4e5f\u4e0d\u8981\u7070\u5fc3\uff0c\u8ba1\u5212\u53e6\u4e00\u4e2a\u6d3b\u52a8\uff0c\u505a\u4f60\u5185\u5fc3\u6df1\u5904\u60f3\u505a\u7684\u4e8b\u60c5\uff0c\u5e76\u4e14\u529b\u6240\u80fd\u53ca\uff0c\u8fd9\u6837\u4f60\u624d\u80fd\u4eab\u53d7\u7b79\u6b3e\u7684\u8fc7\u7a0b\u3002\u901a\u8fc7\u652f\u6301\u8499\u8036\u535a\u58eb\u7684\u52aa\u529b\uff0c\u6211\u8ba4\u8bc6\u5230\uff0c\u5c3d\u7ba1\u6211\u7b79\u96c6\u7684\u8d44\u91d1\u5e76\u975e\u6700\u591a\uff0c\u6216\u8005\u6211\u5e76\u975e\u6700\u5927\u7684\u7ec4\u7ec7\uff0c\u4f46\u6211\u6240\u505a\u7684\u4e00\u5207\u5b9e\u9645\u4e0a\u6539\u53d8\u4e86\u90a3\u4e9b\u63a5\u53d7\u6211\u4eec\u6350\u8d60\u7684\u4eba\u7684\u751f\u6d3b\uff0c\u4e5f\u6539\u53d8\u4e86DIPG\u7684\u7814\u7a76\u3002\u8fd9\u5bf9\u6211\u6765\u8bf4\u610f\u4e49\u91cd\u5927\uff0c\u56e0\u4e3a\u6211\u505a\u8fd9\u9879\u5de5\u4f5c\u662f\u4e3a\u4e86\u7eaa\u5ff5\u6211\u7684\u5973\u513f\uff0c\u8fd9\u4e5f\u6fc0\u52b1\u7740\u6211\u5728\u672a\u6765\u5c3d\u6211\u6240\u80fd\u5e2e\u52a9DIPG\u5bb6\u5ead\u3002<\/p>\n

\u4e3a\u4ec0\u4e48\u7b79\u6b3e\u5e2e\u52a9\u5176\u4ed6\u5bb6\u5ead\u5bf9\u60a8\u6765\u8bf4\u5f88\u91cd\u8981\uff1f\u60a8\u5bf9\u6211\u4eec\u7167\u987e\u7684\u5b69\u5b50\u548c\u5bb6\u5ead\u6709\u4ec0\u4e48\u671f\u671b\uff1f<\/strong><\/p>\n

\u5bf9\u6211\u6765\u8bf4\uff0c\u7b79\u6b3e\u5e2e\u52a9\u5176\u4ed6\u7ecf\u5386DIPG\u7684\u5bb6\u5ead\u81f3\u5173\u91cd\u8981\u3002\u4f5c\u4e3a\u4e00\u540d\u5931\u53bb\u72ec\u751f\u5b50\u7684\u5355\u8eab\u6bcd\u4eb2\uff0c\u6211\u5bf9\u751f\u547d\u7684\u70ed\u7231\u4ece\u672a\u505c\u6b62\u3002\u4e8b\u5b9e\u4e0a\uff0c\u901a\u8fc7DIPG\uff0c\u6211\u627e\u5230\u4e86\u81ea\u5df1\u7684\u4eba\u751f\u76ee\u6807\uff0c\u90a3\u5c31\u662f\u901a\u8fc7\u4fe1\u4ef0\u548c\u5e2e\u52a9\u4ed6\u4eba\u5bfb\u6c42\u5185\u5fc3\u7684\u5e73\u9759\u3002\u90a3\u4e9b\u5373\u4f7f\u4e0eDIPG\u65e0\u5173\uff0c\u4ecd\u5728\u82e6\u82e6\u6323\u624e\u7684\u4eba\u4e5f\u53d7\u5230\u4e86\u6211\u7684\u9f13\u52b1\uff0c\u800c\u6211\u7684\u52aa\u529b\u6700\u7ec8\u4e5f\u6fc0\u52b1\u4e86\u6211\u3002\u6b64\u5916\uff0cDIPG\u7814\u7a76\u4e3b\u8981\u7531\u50cfMaiy's Miracle\u8fd9\u6837\u7684\u79c1\u4eba\u57fa\u91d1\u4f1a\u548c\u72ec\u7acb\u6350\u6b3e\u8d44\u52a9\uff0c\u8fd9\u6fc0\u52b1\u7740\u6211\u7ee7\u7eed\u7b79\u6b3e\uff0c\u4ee5\u4fbf\u4e0b\u4e00\u4e2a\u81f4\u7535Monje\u535a\u58eb\u5bfb\u6c42\u5e2e\u52a9\u7684\u5bb6\u5ead\u80fd\u591f\u542c\u5230\u5979\u6fc0\u52a8\u548c\u80af\u5b9a\u7684\u58f0\u97f3\uff0c\u76f8\u4fe1\u5979\u80fd\u591f\u5f15\u9886\u4ed6\u4eec\u8d70\u5411\u5bf9\u5b69\u5b50\u548c\u5bb6\u5ead\u5145\u6ee1\u5e0c\u671b\u7684\u672a\u6765\u3002<\/p>\n

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