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Project Leadership Engaging Diverse Families for Health Systems Improvement: Phase VI

Organization: Family Voices of California

Primary Contact: Jim Welsh

Grant Amount: $473,455 for 24 months

Date Awarded:


Incorporating families’ lived experience with children with special health care needs into program and policy planning is a strategy increasingly used by health care systems to ensure delivery of appropriate services, enhance consumer and provider satisfaction, and reduce costs. Since 2013, the Foundation has supported Family Voices of California to implement Project Leadership, a community-based training program designed to increase the number of family representatives able to effectively participate in advisory and decision-making roles within programs serving CSHCN. This grant will continue to make advocacy training for parents of CSHCN available in California, with a focus on improved cultural responsiveness and increasing the diversity of participants in trainings and in subsequent leadership roles.