Skip to content
See all Grants Awarded

State Scorecard of Public Support for Children and Youth with Special Health Care Needs: Phase I – Framework Development

Organization: Child Trends

Primary Contact: Kristen Harper, Ed.M.

Grant Amount: $115,201 for 12 months

Date Awarded:


The first of two phases of work leading to the publication of a state scorecard providing state specific and comparative information on publicly funded services for children with special health care needs and their families. This phase will develop a framework for the collection, analysis, and dissemination of a scorecard.


This project was intended as a first phase of work toward creation of a state-level scorecard of the public services available to children and youth with special health care needs and their families. A scorecard would allow comparison of available services that could be used by advocates and policymakers to improve services within their states. The project yielded a well-considered framework of service domains and services, identified candidate indicators, and catalogued sources of data to use to populate a scorecard.

Related Resources

Although federal programs are a major source of support for children with special health care needs and their families, the state in which a family lives can heavily influence whether the child has access to quality health care and other needed services. State and local statutes and regulations often determine eligibility criteria and requirements for receiving care. A new report from Child Trends, funded by the Lucile Packard Foundation for Children’s Health, offers a framework for state agencies and other stakeholders to assess and improve how a state provides care across health, education, justice and other systems.