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The health care delivery system in California is challenging for families of children with special health care needs. The Lucile Packard Foundation for Children’s Health sponsored a survey to identify key issues that the Foundation should address, notably care coordination, family-centered care and finance reform. Survey respondents also ranked specific activities to undertake, including dissemination of best practice information and sponsorship of regional meetings to tackle local problems. 

The California Advocacy Network for Children with Special Health Care Needs was a Foundation sponsored group with the goal of improving programs and policies that could better support families.

 

Related Grants

This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.

This policy brief by the National Alliance to Advance Adolescent Health investigates the changes that result when low-income youth and young adults with disabilities lose their childhood eligibility status under SSI following the age 18 redetermination process and provides policy recommendations.