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If it takes a village to raise a healthy child, then what does it take to raise a child with a special need? The Lucile Packard Foundation for Children’s Health enlisted Deanne Fitzmaurice, a Pulitzer Prize-winning photographer, to find out. Deanne shadowed 10 families living throughout California – from rural farms to large urban centers to the suburbs surrounding Silicon Valley – who provide care for their children with special needs every day and every night.

 

Explore: Family Stories from Super Parents

 

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This virtual cafe provided a brief overview of key topics, major frameworks, and emerging trends to advance the quality of life and well-being of children with medical complexity and their families. The café was the first of a six-part series led by the Center for Innovation in Social Work and Health at the Boston University School of Social Work.

A new article in the Journal of Pediatric Health Care from the Institute for Patient- and Family-Centered Care and Cincinnati Children's Hospital Medical Center discusses best practices for supporting diverse membership in children's hospital patient and family advisory councils and advancing the involvement of patient and family advisors in hospital-wide diversity, equity, and inclusion projects and initiatives.