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Clear communication between families and health care providers is essential to the delivery of high-quality care for children with medical complexity. Marsha Perez provides bilingual support as a parent mentor for Spanish-speaking families at the Lucile Packard Children’s Hospital. She teaches families how to manage their child’s care and helps them realize how much their voice matters in their child’s treatment. She shares tips for health care professionals on how best to communicate with Spanish-speaking families.

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Findings from a survey of California-based caregivers that asked them about their experiences receiving peer support for caring for children and youth with special health care needs.

This fact sheet explains the methods used in a study of California caregivers of CYSHCN, including the study’s purpose, survey instrument, sample, survey distribution, data analysis, and more.