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What does it take to create and implement an effective, family-centered plan of care for a child with special health care needs? In this webinar, two expert speakers discussed their approaches to the process of care planning in two very different settings—Children’s Hospital of Philadelphia and a small private practice in Vermont.

The moderator is the author of Achieving a Shared Plan of Care with Children and Youth with Special Health Care Needs, a report that describes the key content of a comprehensive and integrated care plan, and lists the steps necessary to create one.

Webinar Recording

Speakers

Annique K. Hogan, MD

Annique K. Hogan, MD, graduated from the University of Toledo College of Medicine and Life Sciences and completed her Residency in Pediatrics at the Children's Hospital of Philadelphia (CHOP). Her work focuses on the care of children with medical complexity and improving transitions of care between the inpatient and outpatient settings. She is the Medical Director of the CHOP Compass Care program and the Integrated Care Service, both serving the needs of medically complex and fragile children. Taking a patient and family-centered approach, she discussed the process of developing care plans in a manner that promotes shared decision-making, patient and family engagement, and optimal communication.

Jill S. Rinehart, MD, FAAP

Jill S. Rinehart, MD, FAAP, is a partner in a small private pediatric practice in Burlington, Vermont, and Clinical Associate Professor of Pediatrics at the University of Vermont College of Medicine. She has worked both locally and nationally to advance the practice of care coordination and medical home transformation. She is lead faculty for Vermont's Pediatric Care Coordination Learning Collaborative, helping practices throughout the state unify their efforts to help care for children with special health care needs. Dr. Rinehart discussed techniques for achieving shared plans of care with families, including care mapping, care conferencing, and problem-solving conversation strategies.

Jeanne W. McAllister, BSN, MS, MHA

Jeanne W. McAllister, BSN, MS, MHA, is an Associate Research Professor of Pediatrics at Indiana University School of Medicine, Children's Health Services Research Division. As co-founder and former director of New Hampshire's Center for Medical Home Improvement, she brings more than 30 years of health care experience to the arena of health care improvement, education, and research.

Related Grants

This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.

This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.