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Moving from pediatric to adult health care during adolescence is ordinarily a simple and successful process. For young people with special health care needs, however, the transition to the adult care system requires complex coordination by health care teams working to maintain delivery of high quality, comprehensive, patient-centered care.

In many states, health agencies have developed websites to facilitate planning and provide support for adolescents and families during the transition. Using these state sites as models, California’s health care programs serving children and youth with special needs should collaborate to create a state-specific website as a transition resource for patients, families, providers and those serving them.

Related Grants

This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.

This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.