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Validation of a Parent-Reported Experience Measure of Integrated Care

by: Sonja I. Ziniel, Hannah N. Rosenberg, Ashley M. Bach, Sara J. Singer, Richard C. Antonelli

Researchers created the Pediatric Integrated Care Survey, a validated tool that measures a family’s experience with the integration of health care and related services for children and youth with special health care needs. The survey can be used in quality improvement efforts to measure family-reported experience of pediatric care integration.

Learn more about the development of the survey and access the tool, free of charge.

Journal Article

Associated Grant

Connect and Empower Caregivers: Improving Outcomes for Black Children with Medical Complexity

Duke University School of Medicine

The project team will (1) adapt an existing health care communication coaching and resource navigation program to the needs of Black caregivers of children with medical complexity (CMC) using human-centered design, and (2) conduct a feasibility study to determine if the adapted intervention has the potential to be successful in promoting Black caregiver self-efficacy and reducing acute care use by Black CMC.

Ensuring Protections for California's Families at a Critical Time

National Health Law Program

The National Health Law Program (NHeLP) will continue to provide independent oversight and monitoring of the California Children’s Services program, building on the relationships with...

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New Tool Helps Measure How Families Experience Integration of Care

New Tool Helps Measure How Families Experience Integration of Care

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