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Development of a Novel Measure of Ableism in Pediatric Health Care

Organization: University of Utah Department of Pediatrics

Primary Contact: Stefanie Ames

Grant Amount: $338,520 for 12 months

Date Awarded:


Ableism, which is disability-related discrimination, negatively impacts health. Our current understanding of its prevalence and effects is based on research with adults. Adults with disabilities report experiences such as inappropriate clinical assessments, unnecessarily limited treatments, denial of coverage or treatment, and dehumanization. We know very little about how ableism impacts children and their families. This project aims to address this knowledge gap by collecting, organizing, and analyzing information about how children with disabilities and their families have experienced ableism in pediatric health care, and laying the groundwork for developing a reliable and valid measure that can be used in future research, advocacy, and policy development.