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After being diagnosed with a rare mitochondrial disease, Trevor received care from Packard specialists in genetics, neurology, and gastroenterology. In 2010, Trevor spent more than six months in our pediatric intensive care unit as his medical team worked together to understand and control his movement disorder. Sadly, even though Trevor was able to be discharged, he passed away suddenly at home in 2011 due to complications from the disease.

Our Bereavement and Family Guidance Program—which is funded through philanthropy—was there for Trevor’s family, surrounding them with a community of compassionate and understanding individuals and families. Trevor’s father says, “Our involvement with the Bereavement and Family Guidance program and the Summer Scamper are ways in which we honor Trevor and simultaneously show our gratitude for the excellent care he received from everyone at Packard Children’s.”