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Overview of the National Research Agenda on Health Systems for Children and Youth With Special Health Care Needs

by: Christopher J. Stille, Ryan J. Coller, Charlene Shelton, Nora Wells, Anna Desmarais, Jay G. Berry

This executive summary introduces the National Research Agenda on Health Systems for Children and Youth With Special Health Care Needs, a supplement to Academic Pediatrics. Authors identify six research priorities aimed at improving health outcomes and well-being for children and youth with special health needs and their families: transition to adulthood, caregiving, family health, child health care, principles of care, and financing.

Learn more about the supplement and access all the articles.

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Associated Grant

The El Arc de California Statewide Equity Project

The Arc of California

Through this grant, El Arc de California, a statewide collective action group of Spanish-speaking parents, professionals, and people with disabilities, aims to develop legislation that will provide insight into racial and ethnic disparities in services provided by the state's regional centers.

A Roundtable Process Plan to Create Systems-Level Change for Young Adult Patients

Generation Patient

This small grant supports Generation Patient’s planning process to create a Roundtable on Young Adults with Chronic Medical Conditions.

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A National Health Systems Research Agenda for Children and Youth With Special Health Care Needs: Supplement to Academic Pediatrics

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