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Children with chronic and complex health conditions and their families require access to a wide array of health care and other services to function optimally. These needs can be identified by patients and families in the creation of shared care plans, or consequent to screenings and assessments. Various referral policies and practices have been developed to facilitate access to these services. The following lists are intended to provide a classified enumeration of services that may be used and of value to children with special health care needs and their families. It can be used for care mapping, care planning, resource database creation and referral system development.

Related Grants

Findings from a survey of California-based caregivers that asked them about their experiences receiving peer support for caring for children and youth with special health care needs.

This fact sheet explains the methods used in a study of California caregivers of CYSHCN, including the study’s purpose, survey instrument, sample, survey distribution, data analysis, and more.