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To inaugurate its work on improving services for children with special health care needs and their families, the Foundation in 2009 began a series of convenings with wide-ranging groups of stakeholders from around the state and the nation.


In this key gathering, families, advocates, researchers, health care providers, insurance groups and public officials spent two full days discussing the strengths and weaknesses of the existing system, the challenges of the present and the future, and the nature and composition of an ideal future system. At a follow-up workshop, participants built on a model of an ideal system developed at the first workshop and proposed projects for the Foundation to consider to move the system closer to this ideal.


The results of these two workshops were presented to the Foundation’s Board of Directors, and guided the Foundation as it developed its grantmaking program.


Developing an Ideal System of Care for Children with Special Health Care Needs





Related Grants

Drawn from a scan of all 50 U.S. states, this brief published by the National Academy for State Health Policy highlights strategies designed to address inequities in accessing pediatric specialty care and support equitable systems of care for CYSHCN.

A new article in the Journal of Pediatric Health Care from the Institute for Patient- and Family-Centered Care and Cincinnati Children's Hospital Medical Center discusses best practices for supporting diverse membership in children's hospital patient and family advisory councils and advancing the involvement of patient and family advisors in hospital-wide diversity, equity, and inclusion projects and initiatives.