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If it takes a village to raise a healthy child, then what does it take to raise a child with a special need? The Lucile Packard Foundation for Children’s Health enlisted Deanne Fitzmaurice, a Pulitzer Prize-winning photographer, to find out. Deanne shadowed 10 families living throughout California – from rural farms to large urban centers to the suburbs surrounding Silicon Valley – who provide care for their children with special needs every day and every night.

 

Explore: Family Stories from Super Parents

 

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Findings from a survey of California-based caregivers that asked them about their experiences receiving peer support for caring for children and youth with special health care needs.

This fact sheet explains the methods used in a study of California caregivers of CYSHCN, including the study’s purpose, survey instrument, sample, survey distribution, data analysis, and more.