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Overview of the National Research Agenda on Health Systems for Children and Youth With Special Health Care Needs

by: Christopher J. Stille, Ryan J. Coller, Charlene Shelton, Nora Wells, Anna Desmarais, Jay G. Berry

This executive summary introduces the National Research Agenda on Health Systems for Children and Youth With Special Health Care Needs, a supplement to Academic Pediatrics. Authors identify six research priorities aimed at improving health outcomes and well-being for children and youth with special health needs and their families: transition to adulthood, caregiving, family health, child health care, principles of care, and financing.

Learn more about the supplement and access all the articles.

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Travel Time and Family Preferences for In-Person Care

This fact sheet presents the results of a survey related to the time it takes families to travel to and from new subspecialist appointments and whether that impacts their preferences for in-person or telehealth visits.

A Survey of Caregivers of Children and Youth with Special Health Care Needs: Family Perspectives on Peer Support

Findings from a survey of California-based caregivers that asked them about their experiences receiving peer support for caring for children and youth with special health care needs.

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A National Health Systems Research Agenda for Children and Youth With Special Health Care Needs: Supplement to Academic Pediatrics

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