새로운 보조금은 건강 시스템 변화에 대한 가족 참여를 촉진합니다

PALO ALTO – Equitable funding for health services, improved transition to adult care, and increased media coverage of child health policy are among the goals of six grants recently awarded by the Lucile Packard Foundation for Children’s Health.

All six grants are designed to improve the health care system for children with special health care needs, with two grants focusing particular attention on family involvement in promoting system change.

캘리포니아 가족의 목소리 (FVCA) will use funding to strengthen its communications capacity and increase visibility around the state for its services and programs. FVCA provides information and support to families regarding their children with special health care needs. A key FVCA program offers training to empower family members to advocate for improved public and private policies, and assists individuals in finding opportunities to serve on policy committees.

A grant to 지금 아이들, a child health advocacy organization, will facilitate meaningful family participation in state health policymaking. Funds will be used for work that will enable family members to participate on state and local health advisory committees in consistent and substantive ways.

"Families' involvement is crucial to system improvement," said Ed Schor, MD, senior vice president at the foundation."Families interact with multiple agencies on a regular basis, and they are well aware of the strengths and weaknesses of California's child health policies. Families also are the most effective advocates for their children. With additional training and support, more family members can make a real difference in how policy decisions are made."

A grant to the Sacramento-based 캘리포니아 건강 보고서 builds on previous funding to the nonprofit journalism project, which covers health and health policy. Funds will be used to expand in-depth coverage of state and national policy decisions that affect children, with a special focus on children with special needs.

그만큼 Kern County Public Health Services Department received support to develop a process of assessment and intervention to improve the transition from pediatric to adult health care for children in the California Children's Services program in the county. A successful model would be disseminated for use in transition planning in other California counties.

Public Counsel, a pro bono law firm, will undertake a project to collect and disseminate information on inequities in funding in the state's Regional Center network. The goal is to advocate for program and policy changes to address any racial and ethnic disparities in the provision of developmental disability services.

A grant to 스탠포드 대학교 is designed to increase research by pediatric faculty on the system of care for children and strengthen the capacity for research of the Division of General Pediatrics.

See details about each of the grants:

• Communicating with Parents of CSHCN in California
• Creating Meaningful Roles for Families in State Health Policymaking
• Expanding Media Coverage of Child Health and Health Policy
• Improving the Readiness of Transitioning CCS Adolescents: Building a Best Practice Model
• Assuring Equitable Funding for Children with Developmental Disabilities
• Innovators in General Pediatrics Award Program at Stanford

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루실 패커드 아동 건강 재단 소개: 루실 패커드 아동 건강 재단은 1997년에 설립된 공익 자선 단체입니다. 재단의 사명은 아동 건강의 우선순위를 높이고, 리더십과 직접 투자를 통해 아동 건강 관리의 질과 접근성을 높이는 것입니다. 재단은 루실 패커드 스탠퍼드 아동 병원 및 스탠퍼드 대학교 아동 건강 프로그램과 협력하여 활동합니다. 재단은 특수 의료가 필요한 아동 프로그램을 통해 아동의 건강 증진과 가족의 삶의 질 향상을 위한 고품질 의료 시스템 구축을 지원합니다.