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New Foundation Grant Continues Support for Family Participation in Policymaking

PALO ALTO – Building on the success of رهبری پروژه, an advocacy training program for families of children with special health care needs, the Lucile Packard Foundation for Children's Health on September 21 awarded Family Voices of California a new grant to enhance opportunities for families to participate in advisory roles for policymaking and programs.

Project Leadership, a community-based training program, seeks both to increase family representation and to educate elected officials and other health care decision-makers on the difficulties families face in accessing quality health care services for their children with special needs. Since 2013, the project has provided training for more than 125 family advocates in San Diego, San Francisco, Santa Barbara, Napa, Los Angeles, and Alameda counties.

"The most effective way to influence policymakers is to have families tell their own stories and advocate for what their children need," said Edward Schor, MD, senior vice president at the foundation. “Our original grants to Family Voice of California helped support development of a curriculum and the launch of training programs. Families are beginning to put that training into action, and our new grant will support expansion of those opportunities."

The new funds will help the project maintain and update a database that Project Leadership graduates can use to identify organizations and agencies that provide opportunities for them to serve as family representatives. The project also will maintain a database of family leaders and expand the data available on each leader to include such information as location, advocacy experience, and advocacy interests. The grant will support continuing education and networking of family leaders, as well as opportunities for local agencies to receive training and offer Family Leadership instruction.

See details about the grant: Project Leadership Training Families to Advocate for Systems Change: Phase IV

For more information, contact صدای خانواده کالیفرنیا.

Also see previous Project Leadership grants:

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درباره بنیاد لوسیل پاکارد برای سلامت کودکان: بنیاد لوسیل پاکارد برای سلامت کودکان، یک موسسه خیریه عمومی است که در سال ۱۹۹۷ تأسیس شد. ماموریت آن ارتقای اولویت سلامت کودکان و افزایش کیفیت و دسترسی به مراقبت‌های بهداشتی کودکان از طریق رهبری و سرمایه‌گذاری مستقیم است. این بنیاد با بیمارستان کودکان لوسیل پاکارد استنفورد و برنامه‌های سلامت کودکان دانشگاه استنفورد هماهنگ است. این بنیاد از طریق برنامه خود برای کودکان دارای نیازهای ویژه مراقبت‌های بهداشتی، از توسعه یک سیستم مراقبت بهداشتی با کیفیت بالا حمایت می‌کند که منجر به نتایج بهتر سلامت برای کودکان و افزایش کیفیت زندگی برای خانواده‌ها می‌شود.