Skip to content
See all Grants Awarded

Best Practices for Engaging Patient, Youth, & Family Leaders as Research Partners

Organization: University of Colorado Denver

Primary Contact: Charlene Shelton

Grant Amount: $122,195 for 18 months

Date Awarded:


While the role of youth and family partners (YFP) has been expanding, defining the most effective strategies for YFP collaboration on research has lagged. This project will create a guide to help researchers, youth, and families understand the benefits of partnering on research projects and the nuances of successful partnership. The guide will aim to clarify the roles of YFPs, ensure that research questions reflect the needs of children, youth and families, and enhance understanding of how researchers and YFP can learn from each other to make studies more robust and actionable. This guide will be a follow-up to A Standard of Compensation for Youth and Family Partners, which is available at