Grants Aid Families of Children with Special Health Care Needs

PALO ALTO – Helping families of children with special health care needs monitor and manage the care of their children is the focus of grants (PDF) awarded November 11 by the Lucile Packard Foundation for Children’s Health.

助成金受給者とその活動の詳細については、こちらをご覧ください。.

“Families are always at the center of caring for children with complex medical conditions,” said Edward Schor, MD, senior vice president at the foundation. “It is imperative to support them as they navigate the complex health system that serves these children.”

* ルシール・パッカード小児病院スタンフォード will help parents develop skills in managing their child’s condition by establishing a state-wide Parent Mentor Learning Collaborative in California. Parent mentors typically are veteran parents of children with chronic or complex conditions who share their experiences and navigational strategies with parents of newly diagnosed children. The grant project will support the education, training and ongoing support of parent mentors in 10 child health institutions around the state, and will develop and test a parent mentor training curriculum.

* The Center for Health Policy Research at UCLA will study the caregiver burden of families caring for children with chronic and complex health problems, and identify how health care providers can assist families in managing their responsibilities.

* A grant to Boston Children’s Hospital/Harvard will support ongoing work to identify, develop and test best practices for hospital discharge for children with medical complexity, to ensure better care at home and reduce readmissions. Prior foundation support led to the development of a framework to initiate, structure, monitor and complete pediatric discharge processes.

A fourth grant, to advocacy organization チルドレン・ナウ, will support development of strategic action plans to address policies that affect the health of children with special health care needs. These will include coordination of physical and behavioral health services; promotion of family and youth involvement in state health care planning; and facilitating collaboration among public agencies providing services for children with special needs.

その grantmaking program, the foundation focuses on improving the health care system for the state’s estimated 1.4 million children who have one or more special health care needs.

助成金受給者とそのプロジェクトに関する詳しい情報については、 ここ.

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ルシール・パッカード小児保健財団について: ルシール・パッカード小児保健財団は、1997年に設立された公益慈善団体です。その使命は、小児の健康を最優先に考え、リーダーシップと直接投資を通じて小児医療の質とアクセスを向上させることです。財団は、ルシール・パッカード小児病院およびスタンフォード大学の小児保健プログラムと連携して活動しています。特別な医療ニーズを持つ小児のためのプログラムを通じて、財団は質の高い医療システムの構築を支援し、小児の健康状態の改善と家族の生活の質の向上につなげています。