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When access to assessment and routine care by a pediatric specialist is delayed, patients may receive inappropriate or insufficient treatment, experience complications, and have potentially avoidable emergency department visits and hospitalizations. In response to growing concerns about pediatric patients’ ability to access subspecialty care, the Children’s Specialty Care Coalition partnered with Practical Research Solutions to survey its membership institutions on metrics related to access to care, including patient wait times and length of time for physician recruitment. This fact sheet describes the population of children with medical complexity in California and summarizes the current status of access to care from pediatric subspecialists compared to data collected in 2019.

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This issue brief identifies inconsistencies within the federal laws governing access to pediatric at-home care and provides recommendations for how states can provide access and high-quality care to children at home.

Drawn from a scan of all 50 U.S. states, this brief published by the National Academy for State Health Policy highlights strategies designed to address inequities in accessing pediatric specialty care and support equitable systems of care for CYSHCN.