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In a 2012 survey, families of children with special health care needs identified care coordination as their top priority. A new fact sheet provides a concise summary of the key elements necessary for a quality system of care coordination.

Done well, care coordination addresses the interrelated medical, social, developmental, behavioral, educational, and financial needs of children and their families. Care coordination is broader than case management, which focuses solely on the medical needs of patients. High-quality care coordination is proactive, planned and comprehensive, and emphasizes cross-organizational relationships.

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Teaching Families to Fish: How to Support Families as Care Coordinators

Next Steps Toward Care Coordination

Care Coordination for California’s Children and Youth with Special Health Care Needs: Building Blocks from other States

California Community Care Coordination Collaborative

Related Grants

This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.

This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.