Grants Aid Families of Children with Special Health Care Needs
PALO ALTO – Helping families of children with special health care needs monitor and manage the care of their children is the focus of grants (PDF) awarded November 11 by the Lucile Packard Foundation for Children’s Health.
“Families are always at the center of caring for children with complex medical conditions,” said Edward Schor, MD, senior vice president at the foundation. “It is imperative to support them as they navigate the complex health system that serves these children.”
* 斯坦福大学卢西尔·帕卡德儿童医院 will help parents develop skills in managing their child’s condition by establishing a state-wide Parent Mentor Learning Collaborative in California. Parent mentors typically are veteran parents of children with chronic or complex conditions who share their experiences and navigational strategies with parents of newly diagnosed children. The grant project will support the education, training and ongoing support of parent mentors in 10 child health institutions around the state, and will develop and test a parent mentor training curriculum.
* The Center for Health Policy Research at UCLA will study the caregiver burden of families caring for children with chronic and complex health problems, and identify how health care providers can assist families in managing their responsibilities.
* A grant to Boston Children’s Hospital/Harvard will support ongoing work to identify, develop and test best practices for hospital discharge for children with medical complexity, to ensure better care at home and reduce readmissions. Prior foundation support led to the development of a framework to initiate, structure, monitor and complete pediatric discharge processes.
A fourth grant, to advocacy organization 现在的孩子, will support development of strategic action plans to address policies that affect the health of children with special health care needs. These will include coordination of physical and behavioral health services; promotion of family and youth involvement in state health care planning; and facilitating collaboration among public agencies providing services for children with special needs.
通过其 grantmaking program, the foundation focuses on improving the health care system for the state’s estimated 1.4 million children who have one or more special health care needs.
有关受助者及其项目的更多详细信息，请点击 这里.
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关于露西尔·帕卡德儿童健康基金会： 卢西尔·帕卡德儿童健康基金会是一家成立于1997年的公共慈善机构。其使命是通过发挥领导作用和直接投资，提升儿童健康的重要性，并提高儿童医疗保健的质量和可及性。该基金会与卢西尔·帕卡德儿童医院和斯坦福大学的儿童健康项目紧密合作。通过其“特殊健康需求儿童项目”，该基金会致力于发展高质量的医疗保健体系，从而改善儿童的健康状况，并提升家庭的生活质量。
