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Barriers, Inequities, and Policy Options for Youth with Special Health Care Needs Aging Out of Public Programs

Organization: National Alliance to Advance Adolescent Health

Primary Contact: Peggy McManus

Grant Amount: $233,314 for 24 months

Date Awarded:

Purpose

Transition from pediatric to adult care is one of the most challenging hurdles for youth with special health care needs, yet there has been little research, policy, and advocacy attention paid to this aging-out process. This project will focus particular attention on the experiences and needs of Black youth, who have higher rates of disability, are more likely to live in poverty, and are twice as likely as their White counterparts to be uninsured. This project will identify policies and strategies to reduce disruptions and inequities in care, and will provide recommendations for how to ensure and improve access to adult public benefits, specifically through four key providers: Medicaid, the Children’s Health Insurance Program, Supplemental Security Income, and Title V services.

Related Resources

This national report by The National Alliance to Advance Adolescent Health presents recommendations to address the challenges experienced by low-income youth and young adults with disabilities when they are no longer eligible for Medicaid, CHIP, SSI, and Title V programs.

This policy brief by The National Alliance to Advance Adolescent Health investigates the changes experienced by low-income youth and young adults with disabilities when they lose their childhood eligibility status under Medicaid and the Children’s Health Insurance Program (CHIP).

This policy brief by The National Alliance to Advance Adolescent Health investigates the changes that result when low-income youth and young adults with disabilities lose their childhood eligibility status under SSI following the age 18 redetermination process.

This policy brief by The National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs.

This five-state case study by The National Alliance to Advance Adolescent Health aims to understand barriers faced by Black young adults with disabilities who lose childhood eligibility status under public programs and provides recommendations to improve policies and programs.