“I wish all of his doctors were in one building.”
Meet Evan, who lives at Beale Air Force Base, CA. Evan lives with neurofibromatosis, including physical and speech delays. “It hasn’t been easy for me…
Category: CYSHCN Stories
“It’s a puzzle. It’s a juggle. And no one’s going to figure it out for you.”
Meet Isabella from San Marcos, CA. Isabella lives with Down syndrome, developmental delays, and a heart defect. April Villafaña and her daughter, Isabella, at their…
“It’s a ticking time bomb. We have to live our daily lives knowing that things could go haywire at any time.”
Meet Daniel from Ontario, CA. Daniel lives with neurofibromatosis. At 5:30 a.m., Manuel Iniguez wakes up Daniel, the youngest of his four children. “How do…
“At the end of the day, we are a normal family.”
Meet Celeste and Alexia from Marysville, CA. Celeste and Alexia live with 22q deletion syndrome. Celeste and Alexia Madrigal were each born without one kidney,…
“Get up, and do it all over again. Every. Single. Day.”
Meet Emmett and Cohen from Grass Valley, CA. Emmett and Cohen live with type 1 diabetes. At 6:45 a.m., 8-year-old Emmett Jones wakes up and…
“There is a huge shortage of specialized therapists.”
Meet Kathryn from Fresno, CA. Kathryn lives with hydrocephalus, cerebral palsy, periventricular leukomalasia, agenisis of the corpus callosum, and cortical visual impairment. Dorilyn Chimienti takes…
