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Managing a child’s daily life can be stressful for any parent. When a child has special health care needs, the challenges are multiplied. Parents must cope with ongoing medical visits, medications, special schools, therapists, day care, accessible transportation, insurers and more. One family discusses the joys and stresses of rearing a special needs child, and suggests that life would be better for them if care were better coordinated. View the video.

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This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.

The National Academy for State Health Policy convened a national forum  to discuss innovations, strategies, and opportunities to improve high-quality, equitable care coordination for children and youth with special health care needs, with particular focus on integrated care and the care coordination workforce.