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Delivering family-centered care is a hallmark of high-quality health care. When families feel that they are partners with their children’s health care providers, the quality of care improves and parents’ fears and anxieties are reduced. This is especially important when the health of children with chronic, complex conditions depends on hospital care. Establishing Family Advisory Councils (FACs) in children’s hospitals is one means of ensuring that families have a strong voice regarding the care delivered to their children.

To encourage development of FACs that truly have an impact, the Lucile Packard Foundation for Children’s Health provided grant funding for the formation of the California Patient & Family Centered Care Network, a statewide collaborative composed of parents and providers representing 15 pediatric hospitals and clinics. The Network members shared their experiences with FACs and developed this checklist for establishing effective Councils.

For a full account of the work of the Network, see the full report.

Related Grants

This fact sheet presents the results of a survey related to the time it takes families to travel to and from new subspecialist appointments and whether that impacts their preferences for in-person or telehealth visits.

Findings from a survey of California-based caregivers that asked them about their experiences receiving peer support for caring for children and youth with special health care needs.