New Grant Supports Advocacy Training for Families of Children with Special Health Care Needs

PALO ALTO – No better advocates exist for children than their own families. But parents and guardians often lack the tools and confidence to make the case for the services their children require.

A new grant to 캘리포니아 가족의 목소리 from the Lucile Packard Foundation for Children’s Health will support advocacy training for families of children with special health care needs. The goal is to enhance families’ ability to participate on advisory committees and educate elected officials and other health care decision-makers on the difficulties they face in accessing quality health care services for their children.

“Families know their children best, and are the best judges of their needs, yet their voices are the least heard when decisions are made about programs and policies” said Edward L. Schor, MD, senior vice president at the foundation. “By strengthening the cadre of families around the state who feel confident in participating actively in policymaking and program oversight we hope to make the system more responsive to the needs of children and families.”

The grant will build on earlier grants to Family Voices that successfully supported development of a training curriculum for families. In the current project, Family Voices will work with counties around the state to launch new training programs. The grant will underwrite an infrastructure to train local trainers, update and provide curricular materials, encourage evaluation, offer coaching and technical assistance to new training sites, and network among training programs and trained parent advocates. Registries of trained parents will be developed, along with opportunities to participate on advisory committees.

Four other grants also were approved recently:

* To 캘리포니아 가족의 목소리 to support its 2015 Health Summit & Legislative Day;

* To the 의료 혁신 연구소 to define certification criteria for Pediatric Complex Care Clinics;

* To the American Academy of Pediatrics, Division of Healthcare Finance, to support two webinars for pediatric practices on billing for the care of children with chronic medical conditions; and

* To the Research Institute at Nationwide Children’s Hospital to support convening of recipients of Center for Medicare and Medicaid Innovation grants and other leaders in the care of children with chronic and complex health problems

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루실 패커드 아동 건강 재단 소개: 루실 패커드 아동 건강 재단은 1997년에 설립된 공익 자선 단체입니다. 재단의 사명은 아동 건강의 우선순위를 높이고, 리더십과 직접 투자를 통해 아동 건강 관리의 질과 접근성을 높이는 것입니다. 재단은 루실 패커드 아동 병원 및 스탠퍼드 대학교 아동 건강 프로그램과 협력하여 활동합니다. 재단은 특수 의료가 필요한 아동 프로그램을 통해 아동의 건강 증진과 가족의 삶의 질 향상을 위한 고품질 의료 시스템 구축을 지원합니다.