Care Coordination Standards, COVID-19 Impact on CSHCN Are Among Topics of New Grants

PALO ALTO – Four grants recently awarded by the Lucile Packard Foundation for Children’s Health address the adoption of care coordination standards, the impact of COVID-19 policy changes on CSHCN, family engagement in California policymaking, and California’s responses to its Title V needs assessments.

Las subvenciones:

Advancing National Standards for Children and Youth with Special Health Care Needs
National Academy for State Health Policy (NASHP)

A pesar del amplio reconocimiento de la importancia y los beneficios de la coordinación de la atención, muchos estados reportan dificultades para implementar una coordinación que satisfaga de forma completa y eficaz las necesidades de los niños con necesidades especiales de atención médica y sus familias. Los Estándares Nacionales de Coordinación de la Atención, desarrollados por la NASHP con financiación previa de la Fundación, se han completado y se publicarán a principios del otoño de 2020. Esta subvención apoyará la difusión e implementación de los Estándares de Coordinación de la Atención, así como... Normas nacionales para CYSHCN, al permitir que NASHP brinde asistencia técnica, recursos de medición de calidad y financiamiento, y apoyo a las agencias estatales de Medicaid, programas CYSHCN del Título V del estado, planes de salud, familias de CYSHCN y otros.

Assessing Trends of COVID-19-related Health System Changes with Implications for Children and Youth with Special Health Care Needs
Health Management Associates, Inc.

In response to the COVID-19 pandemic, states are rapidly establishing new funding mechanisms and implementing emergency regulations, while providers are deploying innovative technologies to connect with their patients. It is unclear how these changes will affect children and youth with special health care needs (CYSHCN) and their families. The goal of this project is to examine how COVID-19 and the responses by federal and state governments, health systems, and providers affect health care for CYSHCN in both the short and long term.

From Assessing Needs to Taking Action
Family Health Outcomes Project, Regents of the University of California, San Francisco

California children with special health care needs (CSHCN) and their families receive health care and support services from state agencies that are funded in part through a federal Title V Maternal and Child Health Services Block Grant. Every five years, the Maternal and Child Health Bureau conducts a needs assessment to monitor the progress of the Title V programs it funds. The objective of this project is to determine how and why progress has been slow or hindered on the implementation of Action Plans established through the last four needs assessments in California, and to make recommendations for improving progress toward better care.

Legislative Analysis of Family Engagement in California Organizations
Children Now

State policy decisions about children’s health and well-being are made far too often without drawing on the experience and expertise of parents, caregivers, and youth themselves. This project is a continuation of a past Foundation grant to Children Now under which the California Research Bureau collected data on family engagement policies within state agencies serving children. The goal of this grant is to produce an official, government-sanctioned baseline report on all opportunities for families to engage in state policymaking conversations. Advocacy organizations will be encouraged to use the report to urge policymakers to create additional family engagement roles, and to recruit partners to press for these opportunities.

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Acerca de la Fundación: La Fundación Lucile Packard para la Salud Infantil es una organización benéfica pública, fundada en 1997. Su misión es priorizar la salud infantil y mejorar la calidad y la accesibilidad de la atención médica para niños mediante el liderazgo y la inversión directa. A través de su Programa para Niños con Necesidades Especiales de Salud, la fundación apoya el desarrollo de un sistema de atención médica de alta calidad que se traduce en mejores resultados de salud para los niños y una mayor calidad de vida para las familias. La Fundación colabora estrechamente con el Hospital Infantil Lucile Packard de Stanford y los programas de salud infantil de la Universidad de Stanford.