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Barriers, Inequities, and Policy Options for Youth with Special Health Care Needs Aging Out of Public Programs

Organization: National Alliance to Advance Adolescent Health

Primary Contact: Peggy McManus

Grant Amount: $233,314 for 24 months

Date Awarded:


Transition from pediatric to adult care is one of the most challenging hurdles for youth with special health care needs, yet there has been little research, policy, and advocacy attention paid to this aging-out process. This project will focus particular attention on the experiences and needs of Black youth, who have higher rates of disability, are more likely to live in poverty, and are twice as likely as their White counterparts to be uninsured. This project will identify policies and strategies to reduce disruptions and inequities in care, and will provide recommendations for how to ensure and improve access to adult public benefits, specifically through four key providers: Medicaid, the Children’s Health Insurance Program, Supplemental Security Income, and Title V services.