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Supporting States to Improve Equitable Systems of Care for Children and Youth with Special Health Care Needs

Organization: National Academy for State Health Policy

Primary Contact: Karen VanLandeghem

Grant Amount: $190,259 for 18 months

Date Awarded:


Many states are eager to address health care inequities in their programs serving CYSHCN. To promote this work the foundation has over the past decade supported creation and dissemination of the National Standards for Systems Serving Children and Youth with Special Health Care Needs (CYSHCN), which have been adopted into the Medicaid and Title V programs of 45 states. The foundation also has funded National Care Coordination Standards.

This project will include a 50-state scan of states’ approaches to addressing health equity in systems improvements for CYSHCN, and an analysis of additional opportunities for progress. The findings will lay the groundwork for future equity work using the Standards as a framework. The project also will produce updated tools and information to support states in implementing both sets of Standards and measuring their impact.