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Advancing National Standards for Children and Youth with Special Health Care Needs

Organization: National Academy for State Health Policy

Primary Contact: Karen VanLandeghem

Grant Amount: $262,601 for 18 months

Date Awarded:

Date Completed:


In spite of widespread recognition of the importance and benefits of care coordination, many states report challenges around implementing care coordination that fully and effectively meets the needs of children with special health care needs and their families. National Care Coordination Standards, developed by NASHP with previous funding from the Foundation, have been completed and will be released in early fall of 2020. This grant funding will support dissemination and implementation of the Care Coordination Standards, as well as the National Standards for CYSHCN, by enabling NASHP to provide technical assistance, quality measurement and financing resources, and support to state Medicaid agencies, state Title V CYSHCN programs, health plans, families of CYSHCN, and others.


Efforts focused on disseminating and implementing the Care Coordination Standards with a broad range of stakeholders. NASHP produced an implementation guide for the standards, as well as issue briefs on key quality measurement and financing implications. A National Care Coordination Forum was held in June 2022 to learn about innovative practices and implementation across the country. A proceedings document was developed from the forum, which can be used by programs interested in implementing the Standards.

Related Resources

This guide is intended to support state health officials and stakeholders in using, adapting, and implementing the National Care Coordination Standards for CYSHCN to develop or improve care coordination systems. 

The National Academy for State Health Policy convened a national forum  to discuss innovations, strategies, and opportunities to improve high-quality, equitable care coordination for children and youth with special health care needs, with particular focus on integrated care and the care coordination workforce.