메디케이드에서의 가족 참여: 의료 정책 결정에 CSHCN 가족을 의미 있게 참여시키기 위한 50개 주 노력 검토

목적

Medicaid is the single largest insurer of children with special health care needs, and thus sets the standards and expectations for their care for the practice community. Federal regulations require state Medicaid programs to have advisory committees of key stakeholders. Anecdotal evidence suggests that there is great variation in the extent and ways in which state Medicaid programs engage CSHCN beneficiaries in their work designing policies and programs, but no reliable data are available. This grant, to the Center for Health Care Strategies, will help identify and document the full range of activities that state Medicaid agencies are undertaking to engage pediatric beneficiaries and families. The report will outline promising practices and areas for improvement, and will provide a set of recommendations on how Medicaid and other state agencies can improve their family engagement practices.