Care Coordination Standards, COVID-19 Impact on CSHCN Are Among Topics of New Grants

PALO ALTO – Four grants recently awarded by the Lucile Packard Foundation for Children’s Health address the adoption of care coordination standards, the impact of COVID-19 policy changes on CSHCN, family engagement in California policymaking, and California’s responses to its Title V needs assessments.

Ang mga gawad:

Advancing National Standards for Children and Youth with Special Health Care Needs
National Academy for State Health Policy (NASHP)

Sa kabila ng malawakang pagkilala sa kahalagahan at benepisyo ng koordinasyon ng pangangalaga, maraming estado ang nag-uulat ng mga hamon sa pagpapatupad ng koordinasyon ng pangangalaga na ganap at epektibong nakakatugon sa mga pangangailangan ng mga bata na may espesyal na pangangailangan sa pangangalagang pangkalusugan at kanilang mga pamilya. Ang National Care Coordination Standards, na binuo ng NASHP na may dating pagpopondo mula sa Foundation, ay nakumpleto at ilalabas sa unang bahagi ng taglagas ng 2020. Ang pagpopondo ng grant na ito ay susuportahan ang pagpapakalat at pagpapatupad ng Care Coordination Standards, gayundin ang Pambansang Pamantayan para sa CYSHCN, sa pamamagitan ng pagpapagana sa NASHP na magbigay ng teknikal na tulong, pagsukat ng kalidad at mga mapagkukunan ng financing, at suporta sa mga ahensya ng Medicaid ng estado, mga programa ng Title V CYSHCN ng estado, mga planong pangkalusugan, mga pamilya ng CYSHCN, at iba pa.

Assessing Trends of COVID-19-related Health System Changes with Implications for Children and Youth with Special Health Care Needs
Health Management Associates, Inc.

In response to the COVID-19 pandemic, states are rapidly establishing new funding mechanisms and implementing emergency regulations, while providers are deploying innovative technologies to connect with their patients. It is unclear how these changes will affect children and youth with special health care needs (CYSHCN) and their families. The goal of this project is to examine how COVID-19 and the responses by federal and state governments, health systems, and providers affect health care for CYSHCN in both the short and long term.

From Assessing Needs to Taking Action
Family Health Outcomes Project, Regents of the University of California, San Francisco

California children with special health care needs (CSHCN) and their families receive health care and support services from state agencies that are funded in part through a federal Title V Maternal and Child Health Services Block Grant. Every five years, the Maternal and Child Health Bureau conducts a needs assessment to monitor the progress of the Title V programs it funds. The objective of this project is to determine how and why progress has been slow or hindered on the implementation of Action Plans established through the last four needs assessments in California, and to make recommendations for improving progress toward better care.

Legislative Analysis of Family Engagement in California Organizations
Children Now

State policy decisions about children’s health and well-being are made far too often without drawing on the experience and expertise of parents, caregivers, and youth themselves. This project is a continuation of a past Foundation grant to Children Now under which the California Research Bureau collected data on family engagement policies within state agencies serving children. The goal of this grant is to produce an official, government-sanctioned baseline report on all opportunities for families to engage in state policymaking conversations. Advocacy organizations will be encouraged to use the report to urge policymakers to create additional family engagement roles, and to recruit partners to press for these opportunities.

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Tungkol sa Foundation: Ang Lucile Packard Foundation for Children's Health ay isang pampublikong kawanggawa, na itinatag noong 1997. Ang misyon nito ay itaas ang priyoridad ng kalusugan ng mga bata, at pataasin ang kalidad at accessibility ng pangangalaga sa kalusugan ng mga bata sa pamamagitan ng pamumuno at direktang pamumuhunan. Sa pamamagitan ng Programa nito para sa mga Batang may Espesyal na Pangangailangan sa Pangangalaga sa Pangkalusugan, sinusuportahan ng foundation ang pagbuo ng isang mataas na kalidad na sistema ng pangangalagang pangkalusugan na nagreresulta sa mas magandang resulta sa kalusugan para sa mga bata at pinahusay na kalidad ng buhay para sa mga pamilya. Gumagana ang Foundation sa pagkakahanay sa Lucile Packard Children's Hospital Stanford at sa mga programa sa kalusugan ng bata ng Stanford University.