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Effective care coordination ranks high on the priority list of families of children with special health care needs, yet it remains an elusive goal for most. This webinar featured a parent’s perspective, along with real-life examples from a provider and a payer on how to develop effective local care coordination systems. The webinar was designed as a first step in building a national movement to promote care coordination policies and payment options that better serve children, families, and care providers.

The discussion was based on the report, The Care Coordination Conundrum and Children and Youth with Special Health Care Needs.

Webinar Recording

Speakers

Sara S. Bachman, Ph.D

Director of the Health & Disability Working Group at the Boston University School of Public Health and Principal Investigator for the Catalyst Center: National Center for Health Insurance and Financing of Care for Children and Youth with Special Health Care Needs. She is Research Associate Professor of Health Law, Policy and Management at the School of Public Health and Chair of the Research Department at the School of Social Work.

Meg Comeau, MHA

Senior Project Director at the Health & Disability Working Group at the Boston University School of Public Health and Co-Principal Investigator for the Catalyst Center: National Center for Health Insurance and Financing of Care for Children and Youth with Special Health Care Needs. Ms. Comeau is the parent of a young adult with complex health care needs.

Lisa Rossignol, MA

Healthcare Liaison for the Family to Family Health Information Center (FFHIC) at Parents Reaching Out, in Albuquerque, New Mexico. Mother of two medically complex daughters, JAMA published author, and Parent Liaison to the American Academy of Pediatrics' Council on Quality Improvement and Patient Safety (COQIPS) Executive Committee. She also served for two years on the inaugural Patient Centered Outcomes Research Institute (PCORI) Improving Healthcare Systems Advisory Panel and is an active member of the American Academy of Communication in Healthcare.

Kelly Kelleher, MD

Director of the Center for Innovation in Pediatric Practice and Vice President of health services research at The Research Institute at Nationwide Children's Hospital in Columbus, Ohio. Professor in the Department of Pediatrics of The Ohio State University College of Medicine.

Matt Lanphier, MPH

Accountable Care Collaborative (ACC) Policy Analyst, State of Colorado, Department of Health Care Policy and Financing. He is responsible for managing three Regional Care Collaborative Organization contracts, ACC program coordination with the state data and analytics vendor, as well as ACC program Managed Care Organization (MCO) management.

Regina Fetterolf

Director of Care Management for Colorado Access. She has primary responsibility for Regional Care Collaborative Organization care management activities and operations for approximately 465,000 Medicaid members. Regina has a Master of Science degree in Health Services Administration and 10 years' experience working in health care coordination/management.

Related Grants

This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.

This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.