Organización: Los regentes de la Universidad de California en Los Ángeles
Contacto principal: Dr. Paul Chung
Monto de la subvención: $165,362 for 18 months
Fecha de concesión:
To identify short and long-term outcomes important to children with medical complexity and to achieve consensus among national stakeholders of measurable key population outcomes and measurement gaps.
Proyecto completado
Children with medical complexity account for about 40 percent of pediatric Medicaid spending, yet comprise only 3 percent of the pediatric population. Currently, no population measures exist to describe these children, who have diverse conditions of variable severity. A study published in Pediatrics suggests 10 potential outcome domains as a starting point.
Researchers interviewed 23 national experts on children with medical complexity to better understand population health for these children. They developed five themes that characterize this group of children and their families, concluding that measuring population health for them is challenging but necessary.
