The Lucile Packard Foundation for Children’s Health announces the latest grants awarded both in response to the rapidly changing health care landscape and to continue core standards development through its 助成金交付およびアドボカシープログラム. The program focuses on transforming health care systems to work better for children with complex health needs and their families.
The three rapid response grants center on:
- Leveraging national data to inform health care policy priorities for children with medical complexity (CMC) amid reductions in Medicaid funding
- Tracking California and federal policy changes to preserve California Children’s Services (CCS) for CMC from low-income households
- Advocating for refinements and extension of the CCS Advisory Group
The fourth grant provides funding for a second phase of developing standards for pediatric complex care fellowship training programs.
助成金：
Leveraging National Data to Inform Policy for CMC
Grantees: Boston Children’s Hospital and Children’s Hospital Association
The project team will generate research to help advocates, clinicians, health care administrators, and policymakers better understand and respond to proposed and enacted policy changes affecting CMC. This work will result in an advocacy toolkit and fact sheets that will help stakeholders better understand and respond to the challenges recently posed by reductions in Medicaid funding and coverage of home and community-based services.
児童地域統合サービスシステム（CRISS）における、特別な医療ニーズを持つ子どもと若者（CYSHCN）のための政策分析、教育、および擁護活動
Grantee: Lucile Packard Children’s Hospital Stanford
CRISS will track Medicaid and Medi-Cal policy changes, analyze potential impacts on CYSHCN, provide education to CRISS members and allies, and develop informational materials that support advocacy. At the state level, CRISS will create materials to promote CCS case management and recommend strategies to improve the access of CCS children and youth to Private Duty Nursing services.
Preserving and Strengthening the CCS Advisory Group
Grantee: Children Now
The CCS Advisory Group ensures that policy and program decision making for the CCS program reflects family experience, addresses persistent gaps, and evolves in response to emerging challenges. Children Now will advance a targeted policy and advocacy strategy to strengthen the CCS Advisory Group by developing legislation focused on more meaningful family and stakeholder participation, clearer expectations for engagement with the Department of Health Care Services, and transparent reporting to the state Legislature.
Establishing Core Standards for Pediatric Complex Care Fellowship Training
Grantees: Boston Children’s Hospital, The Hospital for Sick Children (SickKids), and The Bluebird Way Foundation
The care of CMC requires a specialized skillset including interprofessional collaboration, family partnership, care coordination, and comfort with uncertainty. A previous grant identified core competencies for pediatricians caring for CMC. This project will develop standards for pediatric complex care fellowship training and produce a guide for new and existing programs based on the identified competencies.
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