Establishing Core Standards for Pediatric Complex Care Fellowship Training

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The care of children with medical complexity (CMC)—who have multisystem chronic conditions and intensive service needs—requires a specialized skillset including interprofessional collaboration, family partnership, care coordination, and comfort with uncertainty. Through a previous Foundation grant, an international consensus study with clinicians, family partners, and young adults with lived experience identified core competencies for pediatricians caring for CMC. While these competencies provide a roadmap for how to care for CMC, there is currently no standardized framework for integrating these competencies into pediatric complex care fellowship training, and existing training programs vary widely.

Led by co-principal investigators from Boston Children’s Hospital, The Hospital for Sick Children (SickKids), and The Bluebird Way Foundation, the team of family-educators and clinicians will develop consensus-based standards for pediatric complex care fellowship training and produce a clear and actionable best practices guide for new and existing programs. Project products will include a peer-reviewed manuscript and an implementation-focused best practices guide to support standardized, humanistic training aligned with the needs of CMC and their families.