Knowledge Gaps in the Care of Children with Medical Complexity and Neurodisability
Panelists discussed findings from a 2020 international study (PDF) that identified clinical research questions related to children with medical complexity, including: irritability and pain, child mental health, disorders of tone, poly-pharmacy, sleep, aspiration, behavior, dysautonomia, and feeding intolerance. Panelists also reflected on topics the study may have missed, the overall importance of family involvement, and how to start addressing the topics identified.
This webinar is part of a 10-part seminar series entitled, Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6). The series is led by complex care pediatricians from the Hospital for Sick Children (SickKids) and Lurie Children’s Hospital, and representatives from Family Voices.
The C6 seminar series is funded through a grant from the Lucile Packard Foundation for Children’s Health.
See recaps of other seminars in this series:
- Session 2: Irritability and Pain
- Session 3: Feeding Intolerance
- Session 4: Behavior/Child Mental Health
- Session 5: Shared Decision Making
- Session 6: Disorders of Tone
- Session 7: Polypharmacy
- Session 8: Sleep
- Session 9: Aspiration
- Session 10: Patient Engagement in Clinical Research
Webinar Recording
Speakers
Eyal Cohen, MD, M.Sc., FRCPC
Program Head of Child Health Evaluative Sciences at SickKids Research Institute and Co-Executive Director of the S.H. Leong Centre for Healthy Children
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Catherine Diskin, MB, BCh, BAO, MSc, MRPCI (Paeds)
Staff physician at the Hospital for Sick Children (SickKids)
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Tara Haynes, BSc
Family Voices Manager at RI Parent Information Network (RIPIN)
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Debbi Harris, MS, MA
Director of the Board at The Arc of the United States
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