Skip to content

Managing a child’s daily life can be stressful for any parent. When a child has special health care needs, the challenges are multiplied. Parents must cope with ongoing medical visits, medications, special schools, therapists, day care, accessible transportation, insurers and more. One family discusses the joys and stresses of rearing a special needs child, and suggests that life would be better for them if care were better coordinated. View the video.

Related Grants

This policy brief by the National Alliance to Advance Adolescent Health looks at what happens when low-income youth and young adults with chronic conditions and disabilities age out of the Title V Program for Children and Youth with Special Health Care Needs and provides policy recommendations.

This fact sheet from the National Health Law Program is designed to inform families about the steps they can take to appeal decisions about their child’s CCS benefits and highlight key resources available to support the process.