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An estimated one million California children and teens have a special health care need, and many of these children require multiple services from the state’s health care system. But compared to children in other states, California’s children with special health care needs (CSHCN) receive care that is less coordinated, less family-centered, and fails to meet many of the key quality indicators prescribed by the Federal Maternal and Child Health Bureau. The Lucile Packard Foundation for Children’s Health co-sponsored a briefing for California lawmakers regarding how the state health care system functions for CSHCN and their families. The briefing was sponsored by Assemblymember Richard Pan, MD, chair of the Assembly Health Committee.

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Findings from a survey of California-based caregivers that asked them about their experiences receiving peer support for caring for children and youth with special health care needs.

This fact sheet explains the methods used in a study of California caregivers of CYSHCN, including the study’s purpose, survey instrument, sample, survey distribution, data analysis, and more.