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This webinar is part two of a 10-part seminar series entitled, Collaborative Conversations with Families to Advance the Clinical Care of Children with Medical Complexities and Disabilities (C6). The series is led by complex care pediatricians from the Hospital for Sick Children (SickKids) and Lurie Children’s Hospital, and representatives from Family Voices.

In this session, Dr. Julie Hauer, Caitlin Scanlon, Sarah Tueller, and Shawnda Hicks discussed Irritability and Pain.

See recaps of other seminars in this series:

The C6 seminar series is funded through a grant from the Lucile Packard Foundation for Children’s Health.

Webinar Recording


Shawnda Hicks

Program Coordinator, Partnerships for Action Voices for Empowerment (PAVE)

Shawnda has been a Program Coordinator and Family Navigator at PAVE, a non-profit that supports individuals with neurodiversity, developmental disability, and medical complexity and their families for four years. She has three children, her oldest child diagnosed with trichotillomania and her son, born with Down syndrome. A lifelong learner, Shawnda is in her second year as a UW LEND Fellow in the Family Discipline Cohort.

Dr. Julie Hauer, MD

Pediatrician, Boston Children’s Hospital

Dr. Julie Hauer's clinical and research interests include symptom treatment in children with impairment of the central nervous system. She is faculty at Boston Children’s Hospital, Harvard Medical School and the medical director of a long-term and respite care facility for children and young adults with severe neurological impairment. Dr. Hauer's work has included innovative symptom treatment protocols targeting the mechanisms of pain generation specific to this population. Her publications include an American Academy of Pediatrics Clinical Report on pain in this group of children.

Sarah Tueller

Parent Education Coordinator, Idaho Parents Unlimited (IPUL)

Sarah and her husband raise three boys in the Treasure Valley. Her son Truman was born at 26-weeks gestation and due to complications from his traumatic birth he was diagnosed with Spastic Quadriplegia Cerebral Palsy, Seizure Disorder, Dysphagia and uses a feeding tube for nutrition and medication delivery. She has 16 years of experience navigating Medicaid, health care, and special education/services, as well as 20 years working in education including early childhood education. Sarah has a passion for developing relationships, sharing resources, and cultivating a sense of community that will enhance care. In turn, Sarah participates on many councils, committees, and workgroups related to children with medical complexity in addition to her role at IPUL.

Caitlin Scanlon, LCSW, MSW

Caitlin Scanlon is a fellowship-trained pediatric palliative care social worker who recently transitioned from a major children's hospital to full time private practice specializing in grief, loss and bereavement, and supporting families through chronic, serious, and/or life-threatening illness. Caitlin has had the opportunity to present on many topics regionally and internationally. Caitlin is thrilled to be a part of this seminar series that beautifully highlights the importance of continued collaboration between clinical expertise and first-hand parental experience.

Related Grants

This issue brief identifies inconsistencies within the federal laws governing access to pediatric at-home care and provides recommendations for how states can provide access and high-quality care to children at home.

Drawn from a scan of all 50 U.S. states, this brief published by the National Academy for State Health Policy highlights strategies designed to address inequities in accessing pediatric specialty care and support equitable systems of care for CYSHCN.